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How COVID-19-related healthcare changes affected patients with…
https://www.phpc.cam.ac.uk/pcu/the-system-abandoned-its-existing-patients-to-make-room-for-new-ones-due-to-covid-19-how-covid-19-related-healthcare-changes-affected-patients-with-systemic-autoimmune-rheumatic-diseases-includi/Site Search. How COVID-19-related healthcare changes affected patients with systemic autoimmune rheumatic diseases, including lupus. ... Primary Care Unit. Behavioural Science Group. How COVID-19-related healthcare changes affected patients with systemic -
public Archives - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/tag/public/23 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body, -
https://www.phpc.cam.ac.uk/pcu/tag/online-forum/feed/
https://www.phpc.cam.ac.uk/pcu/tag/online-forum/feed/19 Feb 2024: but-you-dont-look-sick-a-qualitative-analysis-of-the-lupus-uk-forum/ ll448 Mon, 02 Nov 2020 14:37:03 0000 Behavioural Science Group Featured News Research News lupus LUPUS ... lupus LUPUS UK Melanie Sloan online forum SLE https://www.phpc.cam.ac.uk/pcu/?p -
Research reveals pandemic's impact on healthcare for people with…
https://www.phpc.cam.ac.uk/pcu/research-reveals-the-pandemics-impact-on-healthcare-for-people-with-chronic-disease/23 Feb 2024: The delays contributed to potentially avoidable deaths: ‘I don’t think they would have died if they’d come in earlier,’ said another consultant, discussing two lupus patients. ... A patient with lupus explained: ‘I would never try and report it -
online forum Archives - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/tag/online-forum/23 Feb 2024: But you don’t look sick’: A qualitative analysis of the LUPUS UK forum. ... This in-depth analysis of the LUPUS UK forum, led by Melanie Sloan from the BSG and involving forum members, LUPUS UK, psychologists and leading rheumatologists, found -
The Listen Study - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/research/research-projects-list/other-projects/the-listen-study/23 Feb 2024: Primary Care Unit. The Listen Study. Title:. Listening: Involving SLE (Systemic Lupus Erythematosus) patients to empower and negotiate recognition. ... Collaborative:. Professor Stephen Sutton (University of Cambridge). Funding information. Funding -
https://www.phpc.cam.ac.uk/pcu/feed/
https://www.phpc.cam.ac.uk/pcu/feed/19 Feb 2024: then that is a very unsafe environment”./p figurefigcaptionemspan class="caption"span class="caption"Neuropsychiatric lupus explained/span/span/emiframe title="Neuropsychiatric Lupus: 4 Questions with Dr. ... all over, severe fatigue, or feeling -
https://www.phpc.cam.ac.uk/pcu/tag/telemedicine/feed/
https://www.phpc.cam.ac.uk/pcu/tag/telemedicine/feed/19 Feb 2024: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%)./p pThis is the first telemedicine study to have combined data from rheumatology patients, ... p“emWaiting for a call back after 4 voicemails…feel sad -
News Archives - Page 23 of 76 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/news/page/23/24 Feb 2024: But you don’t look sick’: A qualitative analysis of the LUPUS UK forum. ... These arise from traumatic diagnostic journeys and negative medical interactions, according to an in-depth study of patients’ experiences led by the University of Cambridge -
News Archives - Page 21 of 76 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/news/page/21/24 Feb 2024: Patients with Lupus and related diseases […]. Filed Under:Tagged With:January 7, 2021. ... During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a strong sense of being endangered from both the virus -
COVID-19 Archives - Page 3 of 5 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/tag/covid-19/page/3/23 Feb 2024: Patients with Lupus and related diseases […]. Filed Under:Tagged With:January 4, 2021. ... During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a strong sense of being endangered from both the virus -
News Archives - Page 19 of 76 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/news/page/19/24 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body, -
https://www.phpc.cam.ac.uk/pcu/tag/public/feed/
https://www.phpc.cam.ac.uk/pcu/tag/public/feed/19 Feb 2024: of Cambridge to study the experiences of patients with lupus and related diseases. ... patient reps very quickly named us the ‘wolf pack’, from lupus, stemming from the Latin for wolf. -
News Archives - Page 26 of 76 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/news/page/26/24 Feb 2024: with lupus report frequent lengthy time delays between their first symptoms and their lupus diagnosis, in new research from the University of Cambridge and LUPUS UK. -
Melanie Sloan Archives - Page 2 of 2 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/tag/melanie-sloan/page/2/23 Feb 2024: How COVID-19-related healthcare changes affected patients with systemic autoimmune rheumatic diseases, including lupus. ... Filed Under:Tagged With:September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often -
virtual ethnography Archives - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/tag/virtual-ethnography/23 Feb 2024: But you don’t look sick’: A qualitative analysis of the LUPUS UK forum. ... This in-depth analysis of the LUPUS UK forum, led by Melanie Sloan from the BSG and involving forum members, LUPUS UK, psychologists and leading rheumatologists, found -
News Archives - Page 16 of 76 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/news/page/16/24 Feb 2024: Scenarios where […]. Filed Under:Tagged With:July 19, 2021. New research highlights the impact of current and past medical interactions – especially adverse experiences – on medication adherence amongst lupus patients and indicates ... People with -
https://www.phpc.cam.ac.uk/pcu/tag/lupus-uk/feed/
https://www.phpc.cam.ac.uk/pcu/tag/lupus-uk/feed/19 Feb 2024: ll448 Mon, 14 Dec 2020 16:24:36 0000 Behavioural Science Group Featured News PCU Updates Research News COVID-19 lupus LUPUS UK Melanie Sloan ... Group Featured News Research News lupus LUPUS UK Melanie Sloan online forum SLE virtual ethnography -
Featured Archives - Page 19 of 45 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/featured/page/19/24 Feb 2024: Primary Care Unit. Featured. March 8, 2021. Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related ... diseases. Lupus is a chronic auto-immune condition -
Miranda Van Emmenis Archives - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/tag/miranda-van-emmenis/23 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body, -
Featured Archives - Page 26 of 45 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/featured/page/26/24 Feb 2024: with lupus report frequent lengthy time delays between their first symptoms and their lupus diagnosis, in new research from the University of Cambridge and LUPUS UK. -
GP News Archives - Page 6 of 21 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/gp-news/page/6/24 Feb 2024: with lupus report frequent lengthy time delays between their first symptoms and their lupus diagnosis, in new research from the University of Cambridge and LUPUS UK. -
https://www.phpc.cam.ac.uk/pcu/tag/lupus/feed/
https://www.phpc.cam.ac.uk/pcu/tag/lupus/feed/19 Feb 2024: of Cambridge to study the experiences of patients with lupus and related diseases. ... News COVID-19 lupus LUPUS UK Melanie Sloan https://www.phpc.cam.ac.uk/pcu/?p=21900 During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases -
Featured Archives - Page 23 of 45 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/featured/page/23/24 Feb 2024: How lupus patients would like to be treated: study identifies physician behaviours that help build trust and medical security. ... September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often experience persisting -
Featured Archives - Page 22 of 45 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/featured/page/22/24 Feb 2024: This in-depth analysis of the LUPUS UK forum, led by Melanie Sloan from the BSG and involving forum members, LUPUS UK, psychologists and leading rheumatologists, found ‘Invalidation’ was the key […]. -
Group Blogs Archives - Page 20 of 51 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/20/24 Feb 2024: It shows […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often experience persisting medical insecurity and negative healthcare-behaviours. ... These arise from traumatic -
GP News Archives - Page 4 of 21 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/gp-news/page/4/23 Feb 2024: It shows […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often experience persisting medical insecurity and negative healthcare-behaviours. ... These arise from traumatic -
https://www.phpc.cam.ac.uk/pcu/tag/virtual-ethnography/feed/
https://www.phpc.cam.ac.uk/pcu/tag/virtual-ethnography/feed/19 Feb 2024: but-you-dont-look-sick-a-qualitative-analysis-of-the-lupus-uk-forum/ ll448 Mon, 02 Nov 2020 14:37:03 0000 Behavioural Science Group Featured News Research News lupus LUPUS ... members, LUPUS UK, psychologists and leading rheumatologists, found -
Featured Archives - Page 2 of 45 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/featured/page/2/23 Feb 2024: Quick Links. For staff. For alumni. For business. Colleges & departments. Libraries & facilities. Museums & collections. Email & phone search. Site Search. Site Search. Featured. Primary Care Unit. Featured. September 21, 2023. Poet, author and -
https://www.phpc.cam.ac.uk/pcu/tag/rheumatology/feed/
https://www.phpc.cam.ac.uk/pcu/tag/rheumatology/feed/19 Feb 2024: delays contributed to potentially avoidable deaths: ‘I don’t think they would have died if they’d come in earlier,’ said another consultant, discussing two lupus patients./p pSome patients reported ... on the telephone.’ (Patient with lupus)/p -
Experts call for urgent mental health support for people living with…
https://www.phpc.cam.ac.uk/pcu/experts-call-for-urgent-mental-health-support-for-people-living-with-long-term-autoimmune-diseases/23 Feb 2024: The team surveyed neurological and psychiatric symptoms amongst 1,853 patients with systemic auto-immune rheumatic diseases (SARDs) such as lupus and rheumatoid arthritis. ... For example, three times as many lupus patients reported experiencing suicidal -
https://www.phpc.cam.ac.uk/pcu/tag/autoimmune-disease/feed/
https://www.phpc.cam.ac.uk/pcu/tag/autoimmune-disease/feed/19 Feb 2024: psychiatric symptoms amongst 1,853 patients with systemic auto-immune rheumatic diseases (SARDs) such as lupus and rheumatoid arthritis. ... For example, three times as many lupus patients reported experiencing suicidal thoughts compared to the estimate -
Group Blogs Archives - Page 2 of 51 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/2/23 Feb 2024: Quick Links. For staff. For alumni. For business. Colleges & departments. Libraries & facilities. Museums & collections. Email & phone search. Site Search. Site Search. Group Blogs. Primary Care Unit. Group Blogs. July 31, 2023. Robbie Duschinsky -
PCU Updates Archives - Page 2 of 54 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/2/23 Feb 2024: Quick Links. For staff. For alumni. For business. Colleges & departments. Libraries & facilities. Museums & collections. Email & phone search. Site Search. Site Search. PCU Updates. Primary Care Unit. PCU Updates. September 21, 2023. Poet, author -
https://www.phpc.cam.ac.uk/pcu/tag/ppi/feed/
https://www.phpc.cam.ac.uk/pcu/tag/ppi/feed/19 Feb 2024: PPI Archives - Primary Care Unit https://www.phpc.cam.ac.uk/pcu/tag/ppi/ Department of Public Health & Primary Care Mon, 31 Oct 2022 12:41:59 0000 en-US hourly 1 https://wordpress.org/?v=6.4.3 LGBTQ+ Research and Involvement – what have we learnt? -
Events Archive - Page 16 of 39 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/events/page/16/Quick Links. For staff. For alumni. For business. Colleges & departments. Libraries & facilities. Museums & collections. Email & phone search. Site Search. Site Search. Events. Primary Care Unit. News. Past Events. Events Search and Views Navigation. -
Research News Archives - Page 2 of 43 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/news/research/page/2/23 Feb 2024: Quick Links. For staff. For alumni. For business. Colleges & departments. Libraries & facilities. Museums & collections. Email & phone search. Site Search. Site Search. Research News. Primary Care Unit. Research News. August 3, 2023. NIHR has -
Publications - Behavioural Science Group - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/research/research-groups/bsg/publications/23 Feb 2024: COVID-19 and shielding: experiences of UK patients with lupus and related diseases. ... But you don't look sick': a qualitative analysis of the LUPUS UK online forum. -
https://www.phpc.cam.ac.uk/pcu/tag/melanie-sloan/feed/
https://www.phpc.cam.ac.uk/pcu/tag/melanie-sloan/feed/19 Feb 2024: the University of Cambridge to study the experiences of patients with lupus and related diseases. ... of Cambridge to study the experiences of patients with lupus and related diseases. -
https://www.phpc.cam.ac.uk/pcu/search/lupus/feed/rss2/
https://www.phpc.cam.ac.uk/pcu/search/lupus/feed/rss2/19 Feb 2024: the University of Cambridge to study the experiences of patients with lupus and related diseases. ... of Cambridge to study the experiences of patients with lupus and related diseases. -
“Perfect for some but disastrous for others”: Patients and clinicians …
https://www.phpc.cam.ac.uk/pcu/perfect-for-some-but-disastrous-for-others-patients-and-clinicians-express-concerns-over-phone-and-video-consultations/23 Feb 2024: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%). ... patients, those with worsening symptoms or more complex conditions such as lupus need quickly accessible, face-to face appointments to manage their -
NMAHP RESEARCH and PRACTICE: Breaking Down Barriers - Primary Care…
https://www.phpc.cam.ac.uk/pcu/event/nmahp-research-practice-breaking-barriers/24 Feb 2024: Quick Links. For staff. For alumni. For business. Colleges & departments. Libraries & facilities. Museums & collections. Email & phone search. Site Search. Site Search. NMAHP RESEARCH and PRACTICE: Breaking Down Barriers. Primary Care Unit. This -
https://www.phpc.cam.ac.uk/pcu/tag/remote-consulting/feed/
https://www.phpc.cam.ac.uk/pcu/tag/remote-consulting/feed/19 Feb 2024: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%)./p pThis is the first telemedicine study to have combined data from rheumatology patients, ... p“emWaiting for a call back after 4 voicemails…feel sad -
https://www.phpc.cam.ac.uk/pcu/tag/miranda-van-emmenis/feed/
https://www.phpc.cam.ac.uk/pcu/tag/miranda-van-emmenis/feed/19 Feb 2024: of Cambridge to study the experiences of patients with lupus and related diseases. ... patient reps very quickly named us the ‘wolf pack’, from lupus, stemming from the Latin for wolf. -
https://www.phpc.cam.ac.uk/pcu/tag/gp/feed/
https://www.phpc.cam.ac.uk/pcu/tag/gp/feed/19 Feb 2024: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%)./p pThis is the first telemedicine study to have combined data from rheumatology patients, ... p“emWaiting for a call back after 4 voicemails…feel sad -
All Primary Care Unit Publications - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/research/all-pcu-publications/23 Feb 2024: Quick Links. For staff. For alumni. For business. Colleges & departments. Libraries & facilities. Museums & collections. Email & phone search. Site Search. Site Search. All Primary Care Unit Publications. Primary Care Unit. All Primary Care Unit -
https://www.phpc.cam.ac.uk/pcu/category/featured/feed/
https://www.phpc.cam.ac.uk/pcu/category/featured/feed/19 Feb 2024: then that is a very unsafe environment”./p figurefigcaptionemspan class="caption"span class="caption"Neuropsychiatric lupus explained/span/span/emiframe title="Neuropsychiatric Lupus: 4 Questions with Dr. ... all over, severe fatigue, or feeling -
https://www.phpc.cam.ac.uk/pcu/tag/patient-experience/feed/
https://www.phpc.cam.ac.uk/pcu/tag/patient-experience/feed/19 Feb 2024: psychiatric symptoms amongst 1,853 patients with systemic auto-immune rheumatic diseases (SARDs) such as lupus and rheumatoid arthritis. ... and past medical interactions – especially adverse experiences – on medication adherence amongst lupus -
https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/feed/
https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/feed/19 Feb 2024: psychiatric symptoms amongst 1,853 patients with systemic auto-immune rheumatic diseases (SARDs) such as lupus and rheumatoid arthritis. ... test results (which can be misleading in lupus-related conditions) and said the listening skills of clinicians -
https://www.phpc.cam.ac.uk/pcu/tag/covid-19/feed/
https://www.phpc.cam.ac.uk/pcu/tag/covid-19/feed/19 Feb 2024: delays contributed to potentially avoidable deaths: ‘I don’t think they would have died if they’d come in earlier,’ said another consultant, discussing two lupus patients./p pSome patients reported ... on the telephone.’ (Patient with lupus)/p
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