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  2. Miranda Van Emmenis Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/miranda-van-emmenis/
    23 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body,
  3. GP News Archives - Page 6 of 21 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/gp-news/page/6/
    24 Feb 2024: with lupus report frequent lengthy time delays between their first symptoms and their lupus diagnosis, in new research from the University of Cambridge and LUPUS UK.
  4. Group Blogs Archives - Page 20 of 51 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/20/
    24 Feb 2024: It shows […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often experience persisting medical insecurity and negative healthcare-behaviours. ... These arise from traumatic
  5. Patient and public involvement (PPI) - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/work-with-us/ppi/
    23 Feb 2024: March 8, 2021. Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases.
  6. Featured Archives - Page 22 of 45 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/featured/page/22/
    24 Feb 2024: This in-depth analysis of the LUPUS UK forum, led by Melanie Sloan from the BSG and involving forum members, LUPUS UK, psychologists and leading rheumatologists, found ‘Invalidation’ was the key […].
  7. Featured Archives - Page 23 of 45 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/featured/page/23/
    24 Feb 2024: How lupus patients would like to be treated: study identifies physician behaviours that help build trust and medical security. ... September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often experience persisting
  8. SLE Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/sle/
    23 Feb 2024: But you don’t look sick’: A qualitative analysis of the LUPUS UK forum. ... This in-depth analysis of the LUPUS UK forum, led by Melanie Sloan from the BSG and involving forum members, LUPUS UK, psychologists and leading rheumatologists, found
  9. PPI Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/ppi/
    23 Feb 2024: research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body, affecting people’s lives deeply, yet can take years
  10. Melanie Sloan Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/melanie-sloan/
    23 Feb 2024: People with incurable systemic auto-immune conditions, including lupus, often need lifelong medications to slow or stop the progression of the disease. ... Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to
  11. public Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/public/
    23 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body,
  12. Publications - Professor Clatworthy's Group

    https://www.med.cam.ac.uk/clatworthy/publications/
    23 Feb 2024: Kaplan MJ, Kaser A, Johnson RS, Murphy MP, Siegel RM, Clatworthy MR.Macrophage Metabolic Reprogramming Presents a Therapeutic Target in Lupus Nephritis. ... KGC. Loss of function of a lupus-associated FcgRIIb polymorphism through exclusion from lipid
  13. https://www.phpc.cam.ac.uk/pcu/tag/public/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/public/feed/
    19 Feb 2024: of Cambridge to study the experiences of patients with lupus and related diseases. ... patient reps very quickly named us the ‘wolf pack’, from lupus, stemming from the Latin for wolf.
  14. Behavioural Science Group Archives - Page 2 of 6 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/page/2/
    23 Feb 2024: Patients with Lupus and related diseases […]. Filed Under:Tagged With:December 14, 2020. ... Filed Under:Tagged With:September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often experience persisting medical
  15. GP News Archives - Page 4 of 21 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/gp-news/page/4/
    23 Feb 2024: It shows […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often experience persisting medical insecurity and negative healthcare-behaviours. ... These arise from traumatic
  16. Research News Archives - Page 18 of 43 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/research/page/18/
    24 Feb 2024: But you don’t look sick’: A qualitative analysis of the LUPUS UK forum. ... These arise from traumatic diagnostic journeys and negative medical interactions, according to an in-depth study of patients’ experiences led by the University of Cambridge
  17. Autoimmunity and inflammation | Cambridge Immunology Network

    https://www.immunology.cam.ac.uk/taxonomy/term/7/%22/Networkdirectory/past%22
    23 Feb 2024: Honorary Consultant, Vasculitis and Lupus Clinic, Cambridge University Hospitals. Investigator- Drug Discovery Biologist at GSK.
  18. Research reveals pandemic's impact on healthcare for people with…

    https://www.phpc.cam.ac.uk/pcu/research-reveals-the-pandemics-impact-on-healthcare-for-people-with-chronic-disease/
    23 Feb 2024: The delays contributed to potentially avoidable deaths: ‘I don’t think they would have died if they’d come in earlier,’ said another consultant, discussing two lupus patients. ... A patient with lupus explained: ‘I would never try and report it
  19. Clinical and translational immunology | Cambridge Immunology Network

    https://www.immunology.cam.ac.uk/taxonomy/term/9/%22/Networkdirectory/past%22
    23 Feb 2024: Wellcome Trust Clinical Career Development Fellow. Honorary Consultant, Vasculitis and Lupus Clinic, Cambridge University Hospitals.
  20. online forum Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/online-forum/
    23 Feb 2024: But you don’t look sick’: A qualitative analysis of the LUPUS UK forum. ... This in-depth analysis of the LUPUS UK forum, led by Melanie Sloan from the BSG and involving forum members, LUPUS UK, psychologists and leading rheumatologists, found
  21. PCU in the media - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/pcu-in-the-media/
    23 Feb 2024: Media work done in February and March 2021 has helped to raise awareness of lupus and the challenges experienced by patients. ... What’s it like having lupus? what’s it like to be a doctor diagnosing/managing lupus, especially during the pandemic?
  22. News Archives - Page 23 of 76 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/page/23/
    24 Feb 2024: But you don’t look sick’: A qualitative analysis of the LUPUS UK forum. ... These arise from traumatic diagnostic journeys and negative medical interactions, according to an in-depth study of patients’ experiences led by the University of Cambridge
  23. https://www.phpc.cam.ac.uk/pcu/tag/lupus-uk/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/lupus-uk/feed/
    19 Feb 2024: ll448 Mon, 14 Dec 2020 16:24:36 0000 Behavioural Science Group Featured News PCU Updates Research News COVID-19 lupus LUPUS UK Melanie Sloan ... Group Featured News Research News lupus LUPUS UK Melanie Sloan online forum SLE virtual ethnography
  24. News Archives - Page 21 of 76 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/page/21/
    24 Feb 2024: Patients with Lupus and related diseases […]. Filed Under:Tagged With:January 7, 2021. ... During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a strong sense of being endangered from both the virus
  25. COVID-19 Archives - Page 3 of 5 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/covid-19/page/3/
    23 Feb 2024: Patients with Lupus and related diseases […]. Filed Under:Tagged With:January 4, 2021. ... During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a strong sense of being endangered from both the virus
  26. Melanie Sloan Archives - Page 2 of 2 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/melanie-sloan/page/2/
    23 Feb 2024: How COVID-19-related healthcare changes affected patients with systemic autoimmune rheumatic diseases, including lupus. ... Filed Under:Tagged With:September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often
  27. Autoimmunity and inflammation | Cambridge Immunology Network

    https://www.immunology.cam.ac.uk/Networkdirectory/research-themes/autoimmunity-inflammation
    23 Feb 2024: Honorary Consultant, Vasculitis and Lupus Clinic, Cambridge University Hospitals. Investigator- Drug Discovery Biologist at GSK.
  28. News Archives - Page 19 of 76 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/page/19/
    24 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body,
  29. Clinical and translational immunology | Cambridge Immunology Network

    https://www.immunology.cam.ac.uk/taxonomy/term/9/%22/subject/confocal-microscopy%22
    23 Feb 2024: Wellcome Trust Clinical Career Development Fellow. Honorary Consultant, Vasculitis and Lupus Clinic, Cambridge University Hospitals.
  30. https://www.phpc.cam.ac.uk/pcu/feed/

    https://www.phpc.cam.ac.uk/pcu/feed/
    19 Feb 2024: then that is a very unsafe environment”./p figurefigcaptionemspan class="caption"span class="caption"Neuropsychiatric lupus explained/span/span/emiframe title="Neuropsychiatric Lupus: 4 Questions with Dr. ... all over, severe fatigue, or feeling
  31. Featured Archives - Page 16 of 45 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/featured/page/16/
    24 Feb 2024: Scenarios where […]. Filed Under:Tagged With:July 19, 2021. New research highlights the impact of current and past medical interactions – especially adverse experiences – on medication adherence amongst lupus patients and indicates ... People with
  32. Featured Archives - Page 20 of 45 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/featured/page/20/
    24 Feb 2024: Lockdown and social distancing measures have meant that many people have little or no contact with others, which can […]. Filed Under:Tagged With:January 26, 2021. Patients with lupus – and related ... Patients with Lupus and related diseases […].
  33. Featured Archives - Page 21 of 45 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/featured/page/21/
    24 Feb 2024: How COVID-19-related healthcare changes affected patients with systemic autoimmune rheumatic diseases, including lupus. ... December 14, 2020. During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a
  34. patient experience Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/patient-experience/
    23 Feb 2024: the […]. Filed Under:Tagged With:July 19, 2021. New research highlights the impact of current and past medical interactions – especially adverse experiences – on medication adherence amongst lupus patients and indicates the ... People with
  35. “Perfect for some but disastrous for others”: Patients and clinicians …

    https://www.phpc.cam.ac.uk/pcu/perfect-for-some-but-disastrous-for-others-patients-and-clinicians-express-concerns-over-phone-and-video-consultations/
    23 Feb 2024: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%). ... patients, those with worsening symptoms or more complex conditions such as lupus need quickly accessible, face-to face appointments to manage their
  36. News Archives - Page 26 of 76 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/page/26/
    24 Feb 2024: with lupus report frequent lengthy time delays between their first symptoms and their lupus diagnosis, in new research from the University of Cambridge and LUPUS UK.
  37. https://www.phpc.cam.ac.uk/pcu/tag/sle/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/sle/feed/
    19 Feb 2024: dont-look-sick-a-qualitative-analysis-of-the-lupus-uk-forum/ ll448 Mon, 02 Nov 2020 14:37:03 0000 Behavioural Science Group Featured News Research News lupus LUPUS UK Melanie ... lupus LUPUS UK Melanie Sloan online forum SLE https://www.phpc.cam.ac.uk/pcu
  38. Draft version July 18, 2022Typeset using LATEX default style ...

    https://people.ast.cam.ac.uk/~wyatt/swmw22.pdf
    22 Mar 2024: evolutionary models. For example, Lovell et al. (2021) used ALMA to detect 4/30 Class III systems in the Lupus.
  39. The puzzle of adolescent depression - Professor Shirley Reynolds,…

    https://www.phpc.cam.ac.uk/pcu/event/the-puzzle-of-adolescent-depression-professor-shirley-reynolds-professor-of-evidence-based-psychological-therapies-university-of-reading/
    24 Feb 2024: Quick Links. For staff. For alumni. For business. Colleges & departments. Libraries & facilities. Museums & collections. Email & phone search. Site Search. Site Search. The puzzle of adolescent depression – Professor Shirley Reynolds, Professor of
  40. https://www.phpc.cam.ac.uk/pcu/tag/ppi/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/ppi/feed/
    19 Feb 2024: PPI Archives - Primary Care Unit https://www.phpc.cam.ac.uk/pcu/tag/ppi/ Department of Public Health & Primary Care Mon, 31 Oct 2022 12:41:59 0000 en-US hourly 1 https://wordpress.org/?v=6.4.3 LGBTQ+ Research and Involvement – what have we learnt?
  41. Group Blogs Archives - Page 16 of 51 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/16/
    24 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body,
  42. PCU Updates Archives - Page 18 of 54 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/18/
    24 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body,
  43. Group Blogs Archives - Page 23 of 51 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/23/
    24 Feb 2024: with lupus report frequent lengthy time delays between their first symptoms and their lupus diagnosis, in new research from the University of Cambridge and LUPUS UK.
  44. PCU Updates Archives - Page 25 of 54 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/25/
    24 Feb 2024: with lupus report frequent lengthy time delays between their first symptoms and their lupus diagnosis, in new research from the University of Cambridge and LUPUS UK.
  45. Research News Archives - Page 15 of 43 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/research/page/15/
    24 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body,
  46. Research News Archives - Page 21 of 43 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/research/page/21/
    24 Feb 2024: with lupus report frequent lengthy time delays between their first symptoms and their lupus diagnosis, in new research from the University of Cambridge and LUPUS UK.
  47. PCU Updates Archives - Page 22 of 54 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/22/
    24 Feb 2024: The new plain-language framework, the For Us (For Unit Safety) framework, was developed through a multi-site ethnographic study and […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and ... These arise from traumatic diagnostic
  48. BSU Seminar: "Causal machine learning for biomarker subgroup…

    https://www.mrc-bsu.cam.ac.uk/event/bsu-seminar-causal-machine-learning-for-biomarker-subgroup-discovery-in-randomised-trials/
    23 Feb 2024: I will then share some (anonymised) results from on-going application of these methods to detect and predict responder subgroups from transcriptomic data measured in two Phase 3 Lupus trials.
  49. Autoimmunity and inflammation | Cambridge Immunology Network

    https://www.immunology.cam.ac.uk/taxonomy/term/7/%22/Networkdirectory/others%22
    23 Feb 2024: Honorary Consultant, Vasculitis and Lupus Clinic, Cambridge University Hospitals. Investigator- Drug Discovery Biologist at GSK.
  50. Experts call for urgent mental health support for people living with…

    https://www.phpc.cam.ac.uk/pcu/experts-call-for-urgent-mental-health-support-for-people-living-with-long-term-autoimmune-diseases/
    23 Feb 2024: The team surveyed neurological and psychiatric symptoms amongst 1,853 patients with systemic auto-immune rheumatic diseases (SARDs) such as lupus and rheumatoid arthritis. ... For example, three times as many lupus patients reported experiencing suicidal
  51. https://www.phpc.cam.ac.uk/pcu/tag/online-forum/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/online-forum/feed/
    19 Feb 2024: but-you-dont-look-sick-a-qualitative-analysis-of-the-lupus-uk-forum/ ll448 Mon, 02 Nov 2020 14:37:03 0000 Behavioural Science Group Featured News Research News lupus LUPUS ... lupus LUPUS UK Melanie Sloan online forum SLE https://www.phpc.cam.ac.uk/pcu/?p

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