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Patient and public involvement (PPI) - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/work-with-us/ppi/23 Feb 2024: March 8, 2021. Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. -
https://www.phpc.cam.ac.uk/pcu/category/news/feed/
https://www.phpc.cam.ac.uk/pcu/category/news/feed/19 Feb 2024: then that is a very unsafe environment”./p figurefigcaptionemspan class="caption"span class="caption"Neuropsychiatric lupus explained/span/span/emiframe title="Neuropsychiatric Lupus: 4 Questions with Dr. ... all over, severe fatigue, or feeling -
PCU Updates Archives - Page 19 of 54 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/19/24 Feb 2024: Lockdown and social distancing measures have meant that many people have little or no contact with others, which can […]. Filed Under:Tagged With:January 26, 2021. Patients with lupus – and related ... Patients with Lupus and related diseases […]. -
Group Blogs Archives - Page 14 of 51 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/14/24 Feb 2024: Primary Care Unit. Group Blogs. July 19, 2021. New research highlights the impact of current and past medical interactions – especially adverse experiences – on medication adherence amongst lupus patients and indicates the ... People with incurable -
PCU Updates Archives - Page 15 of 54 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/15/24 Feb 2024: Scenarios where […]. Filed Under:Tagged With:July 19, 2021. New research highlights the impact of current and past medical interactions – especially adverse experiences – on medication adherence amongst lupus patients and indicates ... People with -
Group Blogs Archives - Page 18 of 51 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/18/24 Feb 2024: January 26, 2021. Patients with lupus – and related systemic autoimmune rheumatic diseases, (or SARDs) – have experienced the UK’s shielding guidance as inconsistent, and many who felt they should have shielded ... Patients with Lupus and related -
Group Blogs Archives - Page 19 of 51 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/19/24 Feb 2024: How COVID-19-related healthcare changes affected patients with systemic autoimmune rheumatic diseases, including lupus. ... December 14, 2020. During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a -
PCU Updates Archives - Page 20 of 54 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/20/24 Feb 2024: During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a strong sense of being endangered from both the virus and the redeployment of medical resources. -
'Inconsistent' shielding guidance increases fears for…
https://www.phpc.cam.ac.uk/pcu/inconsistent-shielding-guidance-increases-fears-for-vulnerable-lupus-patients-during-the-pandemic/23 Feb 2024: Site Search. ‘Inconsistent’ shielding guidance increases fears for vulnerable lupus patients during the pandemic. ... wide disparity in the communication and level of support received by lupus and related disease patients. -
Research News Archives - Page 12 of 43 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/news/research/page/12/24 Feb 2024: Scenarios where […]. Filed Under:Tagged With:July 19, 2021. New research highlights the impact of current and past medical interactions – especially adverse experiences – on medication adherence amongst lupus patients and indicates ... People with -
Research News Archives - Page 16 of 43 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/news/research/page/16/24 Feb 2024: Lockdown and social distancing measures have meant that many people have little or no contact with others, which can […]. Filed Under:Tagged With:January 26, 2021. Patients with lupus – and related ... Patients with Lupus and related diseases […]. -
Research News Archives - Page 17 of 43 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/news/research/page/17/24 Feb 2024: During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a strong sense of being endangered from both the virus and the redeployment of medical resources. -
Behavioural Science Group Archives - Page 3 of 6 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/page/3/23 Feb 2024: Primary Care Unit. Behavioural Science Group. May 14, 2020. People living with lupus report frequent lengthy time delays between their first symptoms and their lupus diagnosis, in new research from the ... University of Cambridge and LUPUS UK. -
patient and public involvement Archives - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/tag/patient-and-public-involvement/23 Feb 2024: research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body, affecting people’s lives deeply, yet can take years -
Research reveals pandemic's impact on healthcare for people with…
https://www.phpc.cam.ac.uk/pcu/research-reveals-the-pandemics-impact-on-healthcare-for-people-with-chronic-disease/23 Feb 2024: The delays contributed to potentially avoidable deaths: ‘I don’t think they would have died if they’d come in earlier,’ said another consultant, discussing two lupus patients. ... A patient with lupus explained: ‘I would never try and report it -
How lupus patients would like to be treated: study identifies…
https://www.phpc.cam.ac.uk/pcu/how-lupus-patients-would-like-to-be-treated-study-identifies-physician-behaviours-that-help-build-trust-and-medical-security/23 Feb 2024: Site Search. How lupus patients would like to be treated: study identifies physician behaviours that help build trust and medical security. ... September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often -
CRMH - Data Management - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/research/research-groups/crmh/research/crmh-data-mangement/23 Feb 2024: To compare lupus and related disease patients’ wellbeing, mental health and perception of medical care with patients with RA, fibromyalgia and healthy friend controls. -
HE@Cam Seminar: Tray Brown - Building a Discrete Event Simulation to…
https://www.phpc.cam.ac.uk/pcu/event/hecam-seminar-tray-brown-building-a-discrete-event-simulation-to-determine-the-cost-effectiveness-of-treatments-for-systemic-lupus-erythematosus-tray-brown-department-of-public-health-and-prima/Site Search. HE@Cam Seminar: Tray Brown – Building a Discrete Event Simulation to Determine the Cost-Effectiveness of Treatments for Systemic Lupus Erythematosus – Tray Brown -Department of Public Health and Primary ... In this Seminar, Tray will -
https://www.phpc.cam.ac.uk/pcu/tag/telephone/feed/
https://www.phpc.cam.ac.uk/pcu/tag/telephone/feed/19 Feb 2024: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%)./p pThis is the first telemedicine study to have combined data from rheumatology patients, ... p“emWaiting for a call back after 4 voicemails…feel sad -
SLE Archives - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/tag/sle/23 Feb 2024: But you don’t look sick’: A qualitative analysis of the LUPUS UK forum. ... This in-depth analysis of the LUPUS UK forum, led by Melanie Sloan from the BSG and involving forum members, LUPUS UK, psychologists and leading rheumatologists, found -
PPI Archives - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/tag/ppi/23 Feb 2024: research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body, affecting people’s lives deeply, yet can take years -
How COVID-19-related healthcare changes affected patients with…
https://www.phpc.cam.ac.uk/pcu/the-system-abandoned-its-existing-patients-to-make-room-for-new-ones-due-to-covid-19-how-covid-19-related-healthcare-changes-affected-patients-with-systemic-autoimmune-rheumatic-diseases-includi/Site Search. How COVID-19-related healthcare changes affected patients with systemic autoimmune rheumatic diseases, including lupus. ... Primary Care Unit. Behavioural Science Group. How COVID-19-related healthcare changes affected patients with systemic -
public Archives - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/tag/public/23 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body, -
https://www.phpc.cam.ac.uk/pcu/tag/online-forum/feed/
https://www.phpc.cam.ac.uk/pcu/tag/online-forum/feed/19 Feb 2024: but-you-dont-look-sick-a-qualitative-analysis-of-the-lupus-uk-forum/ ll448 Mon, 02 Nov 2020 14:37:03 0000 Behavioural Science Group Featured News Research News lupus LUPUS ... lupus LUPUS UK Melanie Sloan online forum SLE https://www.phpc.cam.ac.uk/pcu/?p -
The Listen Study - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/research/research-projects-list/other-projects/the-listen-study/23 Feb 2024: Primary Care Unit. The Listen Study. Title:. Listening: Involving SLE (Systemic Lupus Erythematosus) patients to empower and negotiate recognition. ... Collaborative:. Professor Stephen Sutton (University of Cambridge). Funding information. Funding -
online forum Archives - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/tag/online-forum/23 Feb 2024: But you don’t look sick’: A qualitative analysis of the LUPUS UK forum. ... This in-depth analysis of the LUPUS UK forum, led by Melanie Sloan from the BSG and involving forum members, LUPUS UK, psychologists and leading rheumatologists, found -
https://www.phpc.cam.ac.uk/pcu/feed/
https://www.phpc.cam.ac.uk/pcu/feed/19 Feb 2024: then that is a very unsafe environment”./p figurefigcaptionemspan class="caption"span class="caption"Neuropsychiatric lupus explained/span/span/emiframe title="Neuropsychiatric Lupus: 4 Questions with Dr. ... all over, severe fatigue, or feeling -
https://www.phpc.cam.ac.uk/pcu/tag/public/feed/
https://www.phpc.cam.ac.uk/pcu/tag/public/feed/19 Feb 2024: of Cambridge to study the experiences of patients with lupus and related diseases. ... patient reps very quickly named us the ‘wolf pack’, from lupus, stemming from the Latin for wolf. -
News Archives - Page 23 of 76 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/news/page/23/24 Feb 2024: But you don’t look sick’: A qualitative analysis of the LUPUS UK forum. ... These arise from traumatic diagnostic journeys and negative medical interactions, according to an in-depth study of patients’ experiences led by the University of Cambridge -
News Archives - Page 21 of 76 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/news/page/21/24 Feb 2024: Patients with Lupus and related diseases […]. Filed Under:Tagged With:January 7, 2021. ... During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a strong sense of being endangered from both the virus -
COVID-19 Archives - Page 3 of 5 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/tag/covid-19/page/3/23 Feb 2024: Patients with Lupus and related diseases […]. Filed Under:Tagged With:January 4, 2021. ... During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a strong sense of being endangered from both the virus -
News Archives - Page 19 of 76 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/news/page/19/24 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body, -
https://www.phpc.cam.ac.uk/pcu/tag/telemedicine/feed/
https://www.phpc.cam.ac.uk/pcu/tag/telemedicine/feed/19 Feb 2024: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%)./p pThis is the first telemedicine study to have combined data from rheumatology patients, ... p“emWaiting for a call back after 4 voicemails…feel sad -
News Archives - Page 26 of 76 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/news/page/26/24 Feb 2024: with lupus report frequent lengthy time delays between their first symptoms and their lupus diagnosis, in new research from the University of Cambridge and LUPUS UK. -
Melanie Sloan Archives - Page 2 of 2 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/tag/melanie-sloan/page/2/23 Feb 2024: How COVID-19-related healthcare changes affected patients with systemic autoimmune rheumatic diseases, including lupus. ... Filed Under:Tagged With:September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often -
virtual ethnography Archives - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/tag/virtual-ethnography/23 Feb 2024: But you don’t look sick’: A qualitative analysis of the LUPUS UK forum. ... This in-depth analysis of the LUPUS UK forum, led by Melanie Sloan from the BSG and involving forum members, LUPUS UK, psychologists and leading rheumatologists, found -
News Archives - Page 16 of 76 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/news/page/16/24 Feb 2024: Scenarios where […]. Filed Under:Tagged With:July 19, 2021. New research highlights the impact of current and past medical interactions – especially adverse experiences – on medication adherence amongst lupus patients and indicates ... People with -
https://www.phpc.cam.ac.uk/pcu/tag/lupus-uk/feed/
https://www.phpc.cam.ac.uk/pcu/tag/lupus-uk/feed/19 Feb 2024: ll448 Mon, 14 Dec 2020 16:24:36 0000 Behavioural Science Group Featured News PCU Updates Research News COVID-19 lupus LUPUS UK Melanie Sloan ... Group Featured News Research News lupus LUPUS UK Melanie Sloan online forum SLE virtual ethnography -
Featured Archives - Page 19 of 45 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/featured/page/19/24 Feb 2024: Primary Care Unit. Featured. March 8, 2021. Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related ... diseases. Lupus is a chronic auto-immune condition -
Featured Archives - Page 26 of 45 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/featured/page/26/24 Feb 2024: with lupus report frequent lengthy time delays between their first symptoms and their lupus diagnosis, in new research from the University of Cambridge and LUPUS UK. -
Miranda Van Emmenis Archives - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/tag/miranda-van-emmenis/23 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body, -
GP News Archives - Page 6 of 21 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/gp-news/page/6/24 Feb 2024: with lupus report frequent lengthy time delays between their first symptoms and their lupus diagnosis, in new research from the University of Cambridge and LUPUS UK. -
https://www.phpc.cam.ac.uk/pcu/tag/lupus/feed/
https://www.phpc.cam.ac.uk/pcu/tag/lupus/feed/19 Feb 2024: of Cambridge to study the experiences of patients with lupus and related diseases. ... News COVID-19 lupus LUPUS UK Melanie Sloan https://www.phpc.cam.ac.uk/pcu/?p=21900 During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases -
Featured Archives - Page 2 of 45 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/featured/page/2/23 Feb 2024: Quick Links. For staff. For alumni. For business. Colleges & departments. Libraries & facilities. Museums & collections. Email & phone search. Site Search. Site Search. Featured. Primary Care Unit. Featured. September 21, 2023. Poet, author and -
Featured Archives - Page 23 of 45 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/featured/page/23/24 Feb 2024: How lupus patients would like to be treated: study identifies physician behaviours that help build trust and medical security. ... September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often experience persisting -
Featured Archives - Page 22 of 45 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/featured/page/22/24 Feb 2024: This in-depth analysis of the LUPUS UK forum, led by Melanie Sloan from the BSG and involving forum members, LUPUS UK, psychologists and leading rheumatologists, found ‘Invalidation’ was the key […]. -
GP News Archives - Page 4 of 21 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/gp-news/page/4/23 Feb 2024: It shows […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often experience persisting medical insecurity and negative healthcare-behaviours. ... These arise from traumatic -
Group Blogs Archives - Page 20 of 51 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/20/24 Feb 2024: It shows […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often experience persisting medical insecurity and negative healthcare-behaviours. ... These arise from traumatic -
https://www.phpc.cam.ac.uk/pcu/tag/virtual-ethnography/feed/
https://www.phpc.cam.ac.uk/pcu/tag/virtual-ethnography/feed/19 Feb 2024: but-you-dont-look-sick-a-qualitative-analysis-of-the-lupus-uk-forum/ ll448 Mon, 02 Nov 2020 14:37:03 0000 Behavioural Science Group Featured News Research News lupus LUPUS ... members, LUPUS UK, psychologists and leading rheumatologists, found -
https://www.phpc.cam.ac.uk/pcu/tag/rheumatology/feed/
https://www.phpc.cam.ac.uk/pcu/tag/rheumatology/feed/19 Feb 2024: delays contributed to potentially avoidable deaths: ‘I don’t think they would have died if they’d come in earlier,’ said another consultant, discussing two lupus patients./p pSome patients reported ... on the telephone.’ (Patient with lupus)/p
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