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  2. Miranda Van Emmenis Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/miranda-van-emmenis/
    23 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body,
  3. GP News Archives - Page 6 of 21 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/gp-news/page/6/
    24 Feb 2024: with lupus report frequent lengthy time delays between their first symptoms and their lupus diagnosis, in new research from the University of Cambridge and LUPUS UK.
  4. https://www.phpc.cam.ac.uk/pcu/tag/lupus/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/lupus/feed/
    19 Feb 2024: of Cambridge to study the experiences of patients with lupus and related diseases. ... News COVID-19 lupus LUPUS UK Melanie Sloan https://www.phpc.cam.ac.uk/pcu/?p=21900 During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases
  5. Featured Archives - Page 2 of 45 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/featured/page/2/
    23 Feb 2024: Quick Links. For staff. For alumni. For business. Colleges & departments. Libraries & facilities. Museums & collections. Email & phone search. Site Search. Site Search. Featured. Primary Care Unit. Featured. September 21, 2023. Poet, author and
  6. Featured Archives - Page 23 of 45 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/featured/page/23/
    24 Feb 2024: How lupus patients would like to be treated: study identifies physician behaviours that help build trust and medical security. ... September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often experience persisting
  7. Featured Archives - Page 22 of 45 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/featured/page/22/
    24 Feb 2024: This in-depth analysis of the LUPUS UK forum, led by Melanie Sloan from the BSG and involving forum members, LUPUS UK, psychologists and leading rheumatologists, found ‘Invalidation’ was the key […].
  8. GP News Archives - Page 4 of 21 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/gp-news/page/4/
    23 Feb 2024: It shows […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often experience persisting medical insecurity and negative healthcare-behaviours. ... These arise from traumatic
  9. Group Blogs Archives - Page 20 of 51 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/20/
    24 Feb 2024: It shows […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often experience persisting medical insecurity and negative healthcare-behaviours. ... These arise from traumatic
  10. https://www.phpc.cam.ac.uk/pcu/tag/virtual-ethnography/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/virtual-ethnography/feed/
    19 Feb 2024: but-you-dont-look-sick-a-qualitative-analysis-of-the-lupus-uk-forum/ ll448 Mon, 02 Nov 2020 14:37:03 0000 Behavioural Science Group Featured News Research News lupus LUPUS ... members, LUPUS UK, psychologists and leading rheumatologists, found
  11. https://www.phpc.cam.ac.uk/pcu/tag/rheumatology/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/rheumatology/feed/
    19 Feb 2024: delays contributed to potentially avoidable deaths: ‘I don’t think they would have died if they’d come in earlier,’ said another consultant, discussing two lupus patients./p pSome patients reported ... on the telephone.’ (Patient with lupus)/p
  12. Experts call for urgent mental health support for people living with…

    https://www.phpc.cam.ac.uk/pcu/experts-call-for-urgent-mental-health-support-for-people-living-with-long-term-autoimmune-diseases/
    23 Feb 2024: The team surveyed neurological and psychiatric symptoms amongst 1,853 patients with systemic auto-immune rheumatic diseases (SARDs) such as lupus and rheumatoid arthritis. ... For example, three times as many lupus patients reported experiencing suicidal
  13. https://www.phpc.cam.ac.uk/pcu/tag/autoimmune-disease/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/autoimmune-disease/feed/
    19 Feb 2024: psychiatric symptoms amongst 1,853 patients with systemic auto-immune rheumatic diseases (SARDs) such as lupus and rheumatoid arthritis. ... For example, three times as many lupus patients reported experiencing suicidal thoughts compared to the estimate
  14. Group Blogs Archives - Page 2 of 51 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/2/
    23 Feb 2024: Quick Links. For staff. For alumni. For business. Colleges & departments. Libraries & facilities. Museums & collections. Email & phone search. Site Search. Site Search. Group Blogs. Primary Care Unit. Group Blogs. July 31, 2023. Robbie Duschinsky
  15. PCU Updates Archives - Page 2 of 54 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/2/
    23 Feb 2024: Quick Links. For staff. For alumni. For business. Colleges & departments. Libraries & facilities. Museums & collections. Email & phone search. Site Search. Site Search. PCU Updates. Primary Care Unit. PCU Updates. September 21, 2023. Poet, author
  16. https://www.phpc.cam.ac.uk/pcu/tag/ppi/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/ppi/feed/
    19 Feb 2024: PPI Archives - Primary Care Unit https://www.phpc.cam.ac.uk/pcu/tag/ppi/ Department of Public Health & Primary Care Mon, 31 Oct 2022 12:41:59 0000 en-US hourly 1 https://wordpress.org/?v=6.4.3 LGBTQ+ Research and Involvement – what have we learnt?
  17. Research News Archives - Page 2 of 43 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/research/page/2/
    23 Feb 2024: Quick Links. For staff. For alumni. For business. Colleges & departments. Libraries & facilities. Museums & collections. Email & phone search. Site Search. Site Search. Research News. Primary Care Unit. Research News. August 3, 2023. NIHR has
  18. Events Archive - Page 16 of 39 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/events/page/16/
    Quick Links. For staff. For alumni. For business. Colleges & departments. Libraries & facilities. Museums & collections. Email & phone search. Site Search. Site Search. Events. Primary Care Unit. News. Past Events. Events Search and Views Navigation.
  19. Publications - Behavioural Science Group - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/research/research-groups/bsg/publications/
    23 Feb 2024: COVID-19 and shielding: experiences of UK patients with lupus and related diseases. ... But you don't look sick': a qualitative analysis of the LUPUS UK online forum.
  20. https://www.phpc.cam.ac.uk/pcu/tag/melanie-sloan/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/melanie-sloan/feed/
    19 Feb 2024: the University of Cambridge to study the experiences of patients with lupus and related diseases. ... of Cambridge to study the experiences of patients with lupus and related diseases.
  21. https://www.phpc.cam.ac.uk/pcu/search/lupus/feed/rss2/

    https://www.phpc.cam.ac.uk/pcu/search/lupus/feed/rss2/
    19 Feb 2024: the University of Cambridge to study the experiences of patients with lupus and related diseases. ... of Cambridge to study the experiences of patients with lupus and related diseases.
  22. “Perfect for some but disastrous for others”: Patients and clinicians …

    https://www.phpc.cam.ac.uk/pcu/perfect-for-some-but-disastrous-for-others-patients-and-clinicians-express-concerns-over-phone-and-video-consultations/
    23 Feb 2024: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%). ... patients, those with worsening symptoms or more complex conditions such as lupus need quickly accessible, face-to face appointments to manage their
  23. https://www.phpc.cam.ac.uk/pcu/tag/remote-consulting/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/remote-consulting/feed/
    19 Feb 2024: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%)./p pThis is the first telemedicine study to have combined data from rheumatology patients, ... p“emWaiting for a call back after 4 voicemails…feel sad
  24. NMAHP RESEARCH and PRACTICE: Breaking Down Barriers - Primary Care…

    https://www.phpc.cam.ac.uk/pcu/event/nmahp-research-practice-breaking-barriers/
    24 Feb 2024: Quick Links. For staff. For alumni. For business. Colleges & departments. Libraries & facilities. Museums & collections. Email & phone search. Site Search. Site Search. NMAHP RESEARCH and PRACTICE: Breaking Down Barriers. Primary Care Unit. This
  25. https://www.phpc.cam.ac.uk/pcu/tag/miranda-van-emmenis/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/miranda-van-emmenis/feed/
    19 Feb 2024: of Cambridge to study the experiences of patients with lupus and related diseases. ... patient reps very quickly named us the ‘wolf pack’, from lupus, stemming from the Latin for wolf.
  26. https://www.phpc.cam.ac.uk/pcu/tag/gp/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/gp/feed/
    19 Feb 2024: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%)./p pThis is the first telemedicine study to have combined data from rheumatology patients, ... p“emWaiting for a call back after 4 voicemails…feel sad
  27. All Primary Care Unit Publications - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/research/all-pcu-publications/
    23 Feb 2024: Quick Links. For staff. For alumni. For business. Colleges & departments. Libraries & facilities. Museums & collections. Email & phone search. Site Search. Site Search. All Primary Care Unit Publications. Primary Care Unit. All Primary Care Unit
  28. https://www.phpc.cam.ac.uk/pcu/category/featured/feed/

    https://www.phpc.cam.ac.uk/pcu/category/featured/feed/
    19 Feb 2024: then that is a very unsafe environment”./p figurefigcaptionemspan class="caption"span class="caption"Neuropsychiatric lupus explained/span/span/emiframe title="Neuropsychiatric Lupus: 4 Questions with Dr. ... all over, severe fatigue, or feeling
  29. https://www.phpc.cam.ac.uk/pcu/tag/patient-experience/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/patient-experience/feed/
    19 Feb 2024: psychiatric symptoms amongst 1,853 patients with systemic auto-immune rheumatic diseases (SARDs) such as lupus and rheumatoid arthritis. ... and past medical interactions – especially adverse experiences – on medication adherence amongst lupus
  30. https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/feed/

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/feed/
    19 Feb 2024: psychiatric symptoms amongst 1,853 patients with systemic auto-immune rheumatic diseases (SARDs) such as lupus and rheumatoid arthritis. ... test results (which can be misleading in lupus-related conditions) and said the listening skills of clinicians
  31. https://www.phpc.cam.ac.uk/pcu/tag/covid-19/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/covid-19/feed/
    19 Feb 2024: delays contributed to potentially avoidable deaths: ‘I don’t think they would have died if they’d come in earlier,’ said another consultant, discussing two lupus patients./p pSome patients reported ... on the telephone.’ (Patient with lupus)/p
  32. https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/feed/

    https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/feed/
    19 Feb 2024: then that is a very unsafe environment”./p figurefigcaptionemspan class="caption"span class="caption"Neuropsychiatric lupus explained/span/span/emiframe title="Neuropsychiatric Lupus: 4 Questions with Dr. ... all over, severe fatigue, or feeling
  33. https://www.phpc.cam.ac.uk/pcu/category/news/research/feed/

    https://www.phpc.cam.ac.uk/pcu/category/news/research/feed/
    19 Feb 2024: then that is a very unsafe environment”./p figurefigcaptionemspan class="caption"span class="caption"Neuropsychiatric lupus explained/span/span/emiframe title="Neuropsychiatric Lupus: 4 Questions with Dr. ... all over, severe fatigue, or feeling
  34. https://www.phpc.cam.ac.uk/pcu/tag/mental-health/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/mental-health/feed/
    19 Feb 2024: psychiatric symptoms amongst 1,853 patients with systemic auto-immune rheumatic diseases (SARDs) such as lupus and rheumatoid arthritis. ... For example, three times as many lupus patients reported experiencing suicidal thoughts compared to the estimate
  35. Past Events

    https://www.phpc.cam.ac.uk/pcu/events/category/health-economics-cambridge/
    HE@Cam Seminar: Tray Brown – Building a Discrete Event Simulation to Determine the Cost-Effectiveness of Treatments for Systemic Lupus Erythematosus – Tray Brown -Department of Public Health and Primary care.
  36. https://www.phpc.cam.ac.uk/pcu/tag/health-services/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/health-services/feed/
    19 Feb 2024: delays contributed to potentially avoidable deaths: ‘I don’t think they would have died if they’d come in earlier,’ said another consultant, discussing two lupus patients./p pSome patients reported ... on the telephone.’ (Patient with lupus)/p
  37. https://www.phpc.cam.ac.uk/pcu/tag/patient-and-public-involvement/feed…

    https://www.phpc.cam.ac.uk/pcu/tag/patient-and-public-involvement/feed/
    19 Feb 2024: of Cambridge to study the experiences of patients with lupus and related diseases. ... patient reps very quickly named us the ‘wolf pack’, from lupus, stemming from the Latin for wolf.
  38. https://www.phpc.cam.ac.uk/pcu/category/group-blogs/feed/

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/feed/
    19 Feb 2024: Group Blogs Archives - Primary Care Unit https://www.phpc.cam.ac.uk/pcu/category/group-blogs/ Department of Public Health & Primary Care Thu, 30 Nov 2023 10:59:22 0000 en-US hourly 1 https://wordpress.org/?v=6.4.3 Sensing technology is set to
  39. https://www.phpc.cam.ac.uk/pcu/tag/healthcare-inequalities/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/healthcare-inequalities/feed/
    19 Feb 2024: delays contributed to potentially avoidable deaths: ‘I don’t think they would have died if they’d come in earlier,’ said another consultant, discussing two lupus patients./p pSome patients reported ... on the telephone.’ (Patient with lupus)/p
  40. News - Page 2 of 89 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/news-about-research-and-activities-at-the-primary-care-unit-research-news-medical-education-news-applied-clinical-research-news-primary-care-research-news/page/2/
    Quick Links. For staff. For alumni. For business. Colleges & departments. Libraries & facilities. Museums & collections. Email & phone search. Site Search. Site Search. News. Primary Care Unit. News. September 21, 2023. New evidence indicates the
  41. Research Team - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/research/research-projects-list/vbi/vbi-research-team/
    23 Feb 2024: Ed has applied these in a variety of disease areas including obesity, stroke, dementia, lupus, IVF, erectile dysfunction, essential thrombocythaemia, diabetes, actinic keratosis, malignant melanoma, prostate cancer, and ulcerative colitis.
  42. The puzzle of adolescent depression - Professor Shirley Reynolds,…

    https://www.phpc.cam.ac.uk/pcu/event/the-puzzle-of-adolescent-depression-professor-shirley-reynolds-professor-of-evidence-based-psychological-therapies-university-of-reading/
    24 Feb 2024: Quick Links. For staff. For alumni. For business. Colleges & departments. Libraries & facilities. Museums & collections. Email & phone search. Site Search. Site Search. The puzzle of adolescent depression – Professor Shirley Reynolds, Professor of
  43. News - Page 20 of 89 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/news-about-research-and-activities-at-the-primary-care-unit-research-news-medical-education-news-applied-clinical-research-news-primary-care-research-news/page/20/
    Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body,
  44. News - Page 28 of 89 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/news-about-research-and-activities-at-the-primary-care-unit-research-news-medical-education-news-applied-clinical-research-news-primary-care-research-news/page/28/
    with lupus report frequent lengthy time delays between their first symptoms and their lupus diagnosis, in new research from the University of Cambridge and LUPUS UK.
  45. News - Page 24 of 89 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/news-about-research-and-activities-at-the-primary-care-unit-research-news-medical-education-news-applied-clinical-research-news-primary-care-research-news/page/24/
    This in-depth analysis of the LUPUS UK forum, led by Melanie Sloan from the BSG and involving forum members, LUPUS UK, psychologists and leading rheumatologists, found ‘Invalidation’ was the key […].
  46. News - Page 25 of 89 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/news-about-research-and-activities-at-the-primary-care-unit-research-news-medical-education-news-applied-clinical-research-news-primary-care-research-news/page/25/
    The new plain-language framework, the For Us (For Unit Safety) framework, was developed through a multi-site ethnographic study and […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and ... These arise from traumatic diagnostic
  47. News - Page 17 of 89 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/news-about-research-and-activities-at-the-primary-care-unit-research-news-medical-education-news-applied-clinical-research-news-primary-care-research-news/page/17/
    Scenarios where […]. Filed Under:Tagged With:July 19, 2021. New research highlights the impact of current and past medical interactions – especially adverse experiences – on medication adherence amongst lupus patients and indicates ... People with
  48. News - Page 22 of 89 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/news-about-research-and-activities-at-the-primary-care-unit-research-news-medical-education-news-applied-clinical-research-news-primary-care-research-news/page/22/
    Lockdown and social distancing measures have meant that many people have little or no contact with others, which can […]. Filed Under:Tagged With:January 26, 2021. Patients with lupus – and related ... Patients with Lupus and related diseases […].
  49. News - Page 23 of 89 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/news-about-research-and-activities-at-the-primary-care-unit-research-news-medical-education-news-applied-clinical-research-news-primary-care-research-news/page/23/
    During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a strong sense of being endangered from both the virus and the redeployment of medical resources.

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