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  2. patient experience Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/patient-experience/
    23 Feb 2024: the […]. Filed Under:Tagged With:July 19, 2021. New research highlights the impact of current and past medical interactions – especially adverse experiences – on medication adherence amongst lupus patients and indicates the ... People with
  3. Behavioural Science Group Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/
    23 Feb 2024: New research highlights the impact of current and past medical interactions – especially adverse experiences – on medication adherence amongst lupus patients and indicates the clinician behaviours that help. ... People with incurable systemic
  4. PCU in the media - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/pcu-in-the-media/
    23 Feb 2024: Media work done in February and March 2021 has helped to raise awareness of lupus and the challenges experienced by patients. ... What’s it like having lupus? what’s it like to be a doctor diagnosing/managing lupus, especially during the pandemic?
  5. https://www.phpc.cam.ac.uk/pcu/feed/

    https://www.phpc.cam.ac.uk/pcu/feed/
    19 Feb 2024: then that is a very unsafe environment”./p figurefigcaptionemspan class="caption"span class="caption"Neuropsychiatric lupus explained/span/span/emiframe title="Neuropsychiatric Lupus: 4 Questions with Dr. ... all over, severe fatigue, or feeling
  6. Behavioural Science Group Archives - Page 3 of 6 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/page/3/
    23 Feb 2024: Primary Care Unit. Behavioural Science Group. May 14, 2020. People living with lupus report frequent lengthy time delays between their first symptoms and their lupus diagnosis, in new research from the ... University of Cambridge and LUPUS UK.
  7. patient and public involvement Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/patient-and-public-involvement/
    23 Feb 2024: research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body, affecting people’s lives deeply, yet can take years
  8. Research News Archives - Page 12 of 43 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/research/page/12/
    24 Feb 2024: Scenarios where […]. Filed Under:Tagged With:July 19, 2021. New research highlights the impact of current and past medical interactions – especially adverse experiences – on medication adherence amongst lupus patients and indicates ... People with
  9. Research News Archives - Page 16 of 43 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/research/page/16/
    24 Feb 2024: Lockdown and social distancing measures have meant that many people have little or no contact with others, which can […]. Filed Under:Tagged With:January 26, 2021. Patients with lupus – and related ... Patients with Lupus and related diseases […].
  10. Research News Archives - Page 17 of 43 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/research/page/17/
    24 Feb 2024: During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a strong sense of being endangered from both the virus and the redeployment of medical resources.
  11. autoimmune disease Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/autoimmune-disease/
    23 Feb 2024: Quick Links. For staff. For alumni. For business. Colleges & departments. Libraries & facilities. Museums & collections. Email & phone search. Site Search. Site Search. autoimmune disease. Primary Care Unit. Tag: autoimmune disease. July 26, 2023.
  12. Mental health Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/mental-health/
    23 Feb 2024: Quick Links. For staff. For alumni. For business. Colleges & departments. Libraries & facilities. Museums & collections. Email & phone search. Site Search. Site Search. Mental health. Primary Care Unit. Tag: Mental health. July 26, 2023. More than
  13. News Archives - Page 2 of 76 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/page/2/
    23 Feb 2024: Quick Links. For staff. For alumni. For business. Colleges & departments. Libraries & facilities. Museums & collections. Email & phone search. Site Search. Site Search. News. Primary Care Unit. News. September 21, 2023. New evidence indicates the
  14. 'Inconsistent' shielding guidance increases fears for…

    https://www.phpc.cam.ac.uk/pcu/inconsistent-shielding-guidance-increases-fears-for-vulnerable-lupus-patients-during-the-pandemic/
    23 Feb 2024: Site Search. ‘Inconsistent’ shielding guidance increases fears for vulnerable lupus patients during the pandemic. ... wide disparity in the communication and level of support received by lupus and related disease patients.
  15. https://www.phpc.cam.ac.uk/pcu/tag/online-forum/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/online-forum/feed/
    19 Feb 2024: but-you-dont-look-sick-a-qualitative-analysis-of-the-lupus-uk-forum/ ll448 Mon, 02 Nov 2020 14:37:03 0000 Behavioural Science Group Featured News Research News lupus LUPUS ... lupus LUPUS UK Melanie Sloan online forum SLE https://www.phpc.cam.ac.uk/pcu/?p
  16. HE@Cam Seminar: Tray Brown - Building a Discrete Event Simulation to…

    https://www.phpc.cam.ac.uk/pcu/event/hecam-seminar-tray-brown-building-a-discrete-event-simulation-to-determine-the-cost-effectiveness-of-treatments-for-systemic-lupus-erythematosus-tray-brown-department-of-public-health-and-prima/
    Site Search. HE@Cam Seminar: Tray Brown – Building a Discrete Event Simulation to Determine the Cost-Effectiveness of Treatments for Systemic Lupus Erythematosus – Tray Brown -Department of Public Health and Primary ... In this Seminar, Tray will
  17. Patient and public involvement (PPI) - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/work-with-us/ppi/
    23 Feb 2024: March 8, 2021. Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases.
  18. How lupus patients would like to be treated: study identifies…

    https://www.phpc.cam.ac.uk/pcu/how-lupus-patients-would-like-to-be-treated-study-identifies-physician-behaviours-that-help-build-trust-and-medical-security/
    23 Feb 2024: Site Search. How lupus patients would like to be treated: study identifies physician behaviours that help build trust and medical security. ... September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often
  19. CRMH - Data Management - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/research/research-groups/crmh/research/crmh-data-mangement/
    23 Feb 2024: To compare lupus and related disease patients’ wellbeing, mental health and perception of medical care with patients with RA, fibromyalgia and healthy friend controls.
  20. https://www.phpc.cam.ac.uk/pcu/tag/telephone/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/telephone/feed/
    19 Feb 2024: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%)./p pThis is the first telemedicine study to have combined data from rheumatology patients, ... p“emWaiting for a call back after 4 voicemails…feel sad
  21. Doctors rank patients’ own assessment of their illness as least…

    https://www.phpc.cam.ac.uk/pcu/doctors-rank-patients-own-assessment-of-their-illness-as-least-important-in-diagnosis/
    23 Feb 2024: In reality, objective tests in lupus and other rheumatology diseases can be unrevealing or even misleading. ... For example, brain scans, even in patients with severe neuropsychiatric lupus, are often completely normal.

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