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  2. Relationships with clinicians and adverse medical experiences affect…

    https://www.phpc.cam.ac.uk/pcu/relationships-with-clinicians-and-adverse-medical-experiences-affect-medication-adherence-amongst-lupus-patients/
    23 Feb 2024: Site Search. Relationships with clinicians and adverse medical experiences affect medication adherence amongst lupus patients. ... Professor David D’Cruz, Consultant Rheumatologist, Louise Coote Lupus Unit at St Thomas’ Hospital.
  3. patient experience Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/patient-experience/
    23 Feb 2024: the […]. Filed Under:Tagged With:July 19, 2021. New research highlights the impact of current and past medical interactions – especially adverse experiences – on medication adherence amongst lupus patients and indicates the ... People with
  4. Behavioural Science Group Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/
    23 Feb 2024: New research highlights the impact of current and past medical interactions – especially adverse experiences – on medication adherence amongst lupus patients and indicates the clinician behaviours that help. ... People with incurable systemic
  5. https://www.phpc.cam.ac.uk/pcu/feed/

    https://www.phpc.cam.ac.uk/pcu/feed/
    19 Feb 2024: then that is a very unsafe environment”./p figurefigcaptionemspan class="caption"span class="caption"Neuropsychiatric lupus explained/span/span/emiframe title="Neuropsychiatric Lupus: 4 Questions with Dr. ... all over, severe fatigue, or feeling
  6. PCU Updates Archives - Page 20 of 54 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/20/
    24 Feb 2024: During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a strong sense of being endangered from both the virus and the redeployment of medical resources.
  7. PCU Updates Archives - Page 15 of 54 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/15/
    24 Feb 2024: Scenarios where […]. Filed Under:Tagged With:July 19, 2021. New research highlights the impact of current and past medical interactions – especially adverse experiences – on medication adherence amongst lupus patients and indicates ... People with
  8. Behavioural Science Group Archives - Page 3 of 6 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/page/3/
    23 Feb 2024: Primary Care Unit. Behavioural Science Group. May 14, 2020. People living with lupus report frequent lengthy time delays between their first symptoms and their lupus diagnosis, in new research from the ... University of Cambridge and LUPUS UK.
  9. patient and public involvement Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/patient-and-public-involvement/
    23 Feb 2024: research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body, affecting people’s lives deeply, yet can take years
  10. Research News Archives - Page 12 of 43 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/research/page/12/
    24 Feb 2024: Scenarios where […]. Filed Under:Tagged With:July 19, 2021. New research highlights the impact of current and past medical interactions – especially adverse experiences – on medication adherence amongst lupus patients and indicates ... People with
  11. Research News Archives - Page 16 of 43 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/research/page/16/
    24 Feb 2024: Lockdown and social distancing measures have meant that many people have little or no contact with others, which can […]. Filed Under:Tagged With:January 26, 2021. Patients with lupus – and related ... Patients with Lupus and related diseases […].
  12. Research News Archives - Page 17 of 43 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/research/page/17/
    24 Feb 2024: During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a strong sense of being endangered from both the virus and the redeployment of medical resources.
  13. PCU in the media - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/pcu-in-the-media/
    23 Feb 2024: Media work done in February and March 2021 has helped to raise awareness of lupus and the challenges experienced by patients. ... What’s it like having lupus? what’s it like to be a doctor diagnosing/managing lupus, especially during the pandemic?
  14. autoimmune disease Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/autoimmune-disease/
    23 Feb 2024: Quick Links. For staff. For alumni. For business. Colleges & departments. Libraries & facilities. Museums & collections. Email & phone search. Site Search. Site Search. autoimmune disease. Primary Care Unit. Tag: autoimmune disease. July 26, 2023.
  15. Mental health Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/mental-health/
    23 Feb 2024: Quick Links. For staff. For alumni. For business. Colleges & departments. Libraries & facilities. Museums & collections. Email & phone search. Site Search. Site Search. Mental health. Primary Care Unit. Tag: Mental health. July 26, 2023. More than
  16. News Archives - Page 2 of 76 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/page/2/
    23 Feb 2024: Quick Links. For staff. For alumni. For business. Colleges & departments. Libraries & facilities. Museums & collections. Email & phone search. Site Search. Site Search. News. Primary Care Unit. News. September 21, 2023. New evidence indicates the
  17. https://www.phpc.cam.ac.uk/pcu/tag/online-forum/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/online-forum/feed/
    19 Feb 2024: but-you-dont-look-sick-a-qualitative-analysis-of-the-lupus-uk-forum/ ll448 Mon, 02 Nov 2020 14:37:03 0000 Behavioural Science Group Featured News Research News lupus LUPUS ... lupus LUPUS UK Melanie Sloan online forum SLE https://www.phpc.cam.ac.uk/pcu/?p
  18. 'Inconsistent' shielding guidance increases fears for…

    https://www.phpc.cam.ac.uk/pcu/inconsistent-shielding-guidance-increases-fears-for-vulnerable-lupus-patients-during-the-pandemic/
    23 Feb 2024: Site Search. ‘Inconsistent’ shielding guidance increases fears for vulnerable lupus patients during the pandemic. ... wide disparity in the communication and level of support received by lupus and related disease patients.
  19. Patient and public involvement (PPI) - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/work-with-us/ppi/
    23 Feb 2024: March 8, 2021. Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases.
  20. How lupus patients would like to be treated: study identifies…

    https://www.phpc.cam.ac.uk/pcu/how-lupus-patients-would-like-to-be-treated-study-identifies-physician-behaviours-that-help-build-trust-and-medical-security/
    23 Feb 2024: Site Search. How lupus patients would like to be treated: study identifies physician behaviours that help build trust and medical security. ... September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often
  21. CRMH - Data Management - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/research/research-groups/crmh/research/crmh-data-mangement/
    23 Feb 2024: To compare lupus and related disease patients’ wellbeing, mental health and perception of medical care with patients with RA, fibromyalgia and healthy friend controls.
  22. https://www.phpc.cam.ac.uk/pcu/tag/telephone/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/telephone/feed/
    19 Feb 2024: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%)./p pThis is the first telemedicine study to have combined data from rheumatology patients, ... p“emWaiting for a call back after 4 voicemails…feel sad
  23. Doctors rank patients’ own assessment of their illness as least…

    https://www.phpc.cam.ac.uk/pcu/doctors-rank-patients-own-assessment-of-their-illness-as-least-important-in-diagnosis/
    23 Feb 2024: In reality, objective tests in lupus and other rheumatology diseases can be unrevealing or even misleading. ... For example, brain scans, even in patients with severe neuropsychiatric lupus, are often completely normal.
  24. SLE Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/sle/
    23 Feb 2024: But you don’t look sick’: A qualitative analysis of the LUPUS UK forum. ... This in-depth analysis of the LUPUS UK forum, led by Melanie Sloan from the BSG and involving forum members, LUPUS UK, psychologists and leading rheumatologists, found
  25. public Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/public/
    23 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body,
  26. online forum Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/online-forum/
    23 Feb 2024: But you don’t look sick’: A qualitative analysis of the LUPUS UK forum. ... This in-depth analysis of the LUPUS UK forum, led by Melanie Sloan from the BSG and involving forum members, LUPUS UK, psychologists and leading rheumatologists, found
  27. https://www.phpc.cam.ac.uk/pcu/tag/virtual-ethnography/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/virtual-ethnography/feed/
    19 Feb 2024: but-you-dont-look-sick-a-qualitative-analysis-of-the-lupus-uk-forum/ ll448 Mon, 02 Nov 2020 14:37:03 0000 Behavioural Science Group Featured News Research News lupus LUPUS ... members, LUPUS UK, psychologists and leading rheumatologists, found
  28. News Archives - Page 23 of 76 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/page/23/
    24 Feb 2024: But you don’t look sick’: A qualitative analysis of the LUPUS UK forum. ... These arise from traumatic diagnostic journeys and negative medical interactions, according to an in-depth study of patients’ experiences led by the University of Cambridge
  29. Melanie Sloan Archives - Page 2 of 2 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/melanie-sloan/page/2/
    23 Feb 2024: How COVID-19-related healthcare changes affected patients with systemic autoimmune rheumatic diseases, including lupus. ... Filed Under:Tagged With:September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often
  30. News Archives - Page 21 of 76 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/page/21/
    24 Feb 2024: Patients with Lupus and related diseases […]. Filed Under:Tagged With:January 7, 2021. ... During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a strong sense of being endangered from both the virus
  31. COVID-19 Archives - Page 3 of 5 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/covid-19/page/3/
    23 Feb 2024: Patients with Lupus and related diseases […]. Filed Under:Tagged With:January 4, 2021. ... During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a strong sense of being endangered from both the virus
  32. https://www.phpc.cam.ac.uk/pcu/tag/lupus/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/lupus/feed/
    19 Feb 2024: of Cambridge to study the experiences of patients with lupus and related diseases. ... News COVID-19 lupus LUPUS UK Melanie Sloan https://www.phpc.cam.ac.uk/pcu/?p=21900 During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases
  33. virtual ethnography Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/virtual-ethnography/
    23 Feb 2024: But you don’t look sick’: A qualitative analysis of the LUPUS UK forum. ... This in-depth analysis of the LUPUS UK forum, led by Melanie Sloan from the BSG and involving forum members, LUPUS UK, psychologists and leading rheumatologists, found
  34. News Archives - Page 19 of 76 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/page/19/
    24 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body,
  35. News Archives - Page 26 of 76 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/page/26/
    24 Feb 2024: with lupus report frequent lengthy time delays between their first symptoms and their lupus diagnosis, in new research from the University of Cambridge and LUPUS UK.
  36. Miranda Van Emmenis Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/miranda-van-emmenis/
    23 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body,
  37. https://www.phpc.cam.ac.uk/pcu/tag/telemedicine/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/telemedicine/feed/
    19 Feb 2024: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%)./p pThis is the first telemedicine study to have combined data from rheumatology patients, ... p“emWaiting for a call back after 4 voicemails…feel sad
  38. Featured Archives - Page 19 of 45 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/featured/page/19/
    24 Feb 2024: Primary Care Unit. Featured. March 8, 2021. Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related ... diseases. Lupus is a chronic auto-immune condition
  39. Featured Archives - Page 26 of 45 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/featured/page/26/
    24 Feb 2024: with lupus report frequent lengthy time delays between their first symptoms and their lupus diagnosis, in new research from the University of Cambridge and LUPUS UK.
  40. News Archives - Page 16 of 76 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/page/16/
    24 Feb 2024: Scenarios where […]. Filed Under:Tagged With:July 19, 2021. New research highlights the impact of current and past medical interactions – especially adverse experiences – on medication adherence amongst lupus patients and indicates ... People with
  41. The Listen Study - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/research/research-projects-list/other-projects/the-listen-study/
    23 Feb 2024: Primary Care Unit. The Listen Study. Title:. Listening: Involving SLE (Systemic Lupus Erythematosus) patients to empower and negotiate recognition. ... Collaborative:. Professor Stephen Sutton (University of Cambridge). Funding information. Funding
  42. https://www.phpc.cam.ac.uk/pcu/tag/lupus-uk/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/lupus-uk/feed/
    19 Feb 2024: ll448 Mon, 14 Dec 2020 16:24:36 0000 Behavioural Science Group Featured News PCU Updates Research News COVID-19 lupus LUPUS UK Melanie Sloan ... Group Featured News Research News lupus LUPUS UK Melanie Sloan online forum SLE virtual ethnography
  43. Group Blogs Archives - Page 20 of 51 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/20/
    24 Feb 2024: It shows […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often experience persisting medical insecurity and negative healthcare-behaviours. ... These arise from traumatic
  44. GP News Archives - Page 6 of 21 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/gp-news/page/6/
    24 Feb 2024: with lupus report frequent lengthy time delays between their first symptoms and their lupus diagnosis, in new research from the University of Cambridge and LUPUS UK.
  45. https://www.phpc.cam.ac.uk/pcu/tag/sle/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/sle/feed/
    19 Feb 2024: dont-look-sick-a-qualitative-analysis-of-the-lupus-uk-forum/ ll448 Mon, 02 Nov 2020 14:37:03 0000 Behavioural Science Group Featured News Research News lupus LUPUS UK Melanie ... lupus LUPUS UK Melanie Sloan online forum SLE https://www.phpc.cam.ac.uk/pcu
  46. Featured Archives - Page 23 of 45 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/featured/page/23/
    24 Feb 2024: How lupus patients would like to be treated: study identifies physician behaviours that help build trust and medical security. ... September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often experience persisting
  47. https://www.phpc.cam.ac.uk/pcu/tag/public/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/public/feed/
    19 Feb 2024: of Cambridge to study the experiences of patients with lupus and related diseases. ... patient reps very quickly named us the ‘wolf pack’, from lupus, stemming from the Latin for wolf.
  48. Featured Archives - Page 22 of 45 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/featured/page/22/
    24 Feb 2024: This in-depth analysis of the LUPUS UK forum, led by Melanie Sloan from the BSG and involving forum members, LUPUS UK, psychologists and leading rheumatologists, found ‘Invalidation’ was the key […].
  49. Featured Archives - Page 2 of 45 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/featured/page/2/
    23 Feb 2024: Quick Links. For staff. For alumni. For business. Colleges & departments. Libraries & facilities. Museums & collections. Email & phone search. Site Search. Site Search. Featured. Primary Care Unit. Featured. September 21, 2023. Poet, author and
  50. Behavioural Science Group Archives - Page 2 of 6 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/page/2/
    23 Feb 2024: Patients with Lupus and related diseases […]. Filed Under:Tagged With:December 14, 2020. ... Filed Under:Tagged With:September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often experience persisting medical
  51. GP News Archives - Page 4 of 21 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/gp-news/page/4/
    23 Feb 2024: It shows […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often experience persisting medical insecurity and negative healthcare-behaviours. ... These arise from traumatic

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