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lupus Archives - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/tag/lupus/23 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Patients with Lupus and related diseases […]. Filed Under:Tagged With:December 14, -
Dr Melanie Sloan - Department of Public Health and Primary Care
https://www.phpc.cam.ac.uk/people/pcu-group/researchers/melanie-sloan/23 Feb 2024: COVID-19 and shielding: experiences of UK patients with lupus and related diseases. ... Medically explained symptoms: a mixed methods study of diagnostic, symptom and support experiences of patients with lupus and related systemic autoimmune diseases. -
Melanie Sloan Archives - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/tag/melanie-sloan/23 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Patients with lupus – and related systemic autoimmune rheumatic diseases, (or SARDs) -
PPI Archives - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/tag/ppi/23 Feb 2024: In addition to my work supporting students and researchers within the PCU, I am beginning to develop […]. Filed Under:Tagged With:March 8, 2021. Lupus patient experiences Lupus patients joined a ... research team at the University of Cambridge to study -
patient experience Archives - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/tag/patient-experience/23 Feb 2024: Primary Care Unit. Tag: patient experience. July 26, 2023. More than half of patients with auto-immune conditions experience mental health conditions such as depression or anxiety, yet the majority are ... the […]. Filed Under:Tagged With:July 19, 2021. -
Behavioural Science Group Archives - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/23 Feb 2024: a prototype intervention to support patients with high blood pressure to take medication. ... New research highlights the impact of current and past medical interactions – especially adverse experiences – on medication adherence amongst lupus -
PCU in the media - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/pcu-in-the-media/23 Feb 2024: Patient experience: The LISTEN study explores the experiences of patients with lupus and related conditions, led by Melanie Sloan in the Behavioural Science Group. ... Lupus researchers Coco Barrerre, expert patient and Dr Chris Wincup, rheumatologist, -
Relationships with clinicians and adverse medical experiences affect…
https://www.phpc.cam.ac.uk/pcu/relationships-with-clinicians-and-adverse-medical-experiences-affect-medication-adherence-amongst-lupus-patients/23 Feb 2024: Site Search. Relationships with clinicians and adverse medical experiences affect medication adherence amongst lupus patients. ... Primary Care Unit. Behavioural Science Group. Relationships with clinicians and adverse medical experiences affect -
Patient and public involvement (PPI) - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/work-with-us/ppi/23 Feb 2024: 4. Remote PPI . Tried and tested ways to engage remotely with patients and the public. ... March 8, 2021. Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. -
CRMH - Data Management - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/research/research-groups/crmh/research/crmh-data-mangement/23 Feb 2024: To measure the impact of peer support and research involvement on the mental health, wellbeing, self-esteem and disease acceptance of patients with systemic autoimmune rheumatic diseases. ... To compare lupus and related disease patients’ wellbeing, -
LUPUS UK Archives - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/tag/lupus-uk/23 Feb 2024: How COVID-19-related healthcare changes affected patients with systemic autoimmune rheumatic diseases, including lupus. ... Filed Under:Tagged With:September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often -
News Archives - Page 21 of 76 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/news/page/21/24 Feb 2024: January 26, 2021. Patients with lupus – and related systemic autoimmune rheumatic diseases, (or SARDs) – have experienced the UK’s shielding guidance as inconsistent, and many who felt they should have shielded ... Patients with Lupus and related -
COVID-19 Archives - Page 3 of 5 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/tag/covid-19/page/3/23 Feb 2024: Lockdown and social distancing measures have meant that many people have little or no contact with others, which can […]. Filed Under:Tagged With:January 26, 2021. Patients with lupus – and related ... Patients with Lupus and related diseases […]. -
The strength of the wolf is the pack: how a study of lupus patient…
https://www.phpc.cam.ac.uk/pcu/lupus-patient-experiences/23 Feb 2024: 2020)Medically explained symptoms: a mixed method study of diagnostic, symptom and support experiences of patients with lupus and related systemic autoimmune diseases (2020). ... The impact of Covid 19 and the U.K.’s shielding guidance on patients with -
Behavioural Science Group Archives - Page 2 of 6 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/page/2/23 Feb 2024: Primary Care Unit. Behavioural Science Group. March 8, 2021. Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus ... Patients with Lupus and related diseases […]. -
Melanie Sloan Archives - Page 2 of 2 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/tag/melanie-sloan/page/2/23 Feb 2024: How COVID-19-related healthcare changes affected patients with systemic autoimmune rheumatic diseases, including lupus. ... Filed Under:Tagged With:September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often -
public Archives - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/tag/public/23 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body, -
News Archives - Page 16 of 76 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/news/page/16/24 Feb 2024: Scenarios where […]. Filed Under:Tagged With:July 19, 2021. New research highlights the impact of current and past medical interactions – especially adverse experiences – on medication adherence amongst lupus patients and indicates ... People with -
Featured Archives - Page 20 of 45 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/featured/page/20/24 Feb 2024: Lockdown and social distancing measures have meant that many people have little or no contact with others, which can […]. Filed Under:Tagged With:January 26, 2021. Patients with lupus – and related ... Patients with Lupus and related diseases […]. -
Featured Archives - Page 21 of 45 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/featured/page/21/24 Feb 2024: How COVID-19-related healthcare changes affected patients with systemic autoimmune rheumatic diseases, including lupus. ... December 14, 2020. During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a -
Featured Archives - Page 16 of 45 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/featured/page/16/24 Feb 2024: Scenarios where […]. Filed Under:Tagged With:July 19, 2021. New research highlights the impact of current and past medical interactions – especially adverse experiences – on medication adherence amongst lupus patients and indicates ... People with -
lupus Archives - Page 2 of 2 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/tag/lupus/page/2/23 Feb 2024: How lupus patients would like to be treated: study identifies physician behaviours that help build trust and medical security. ... September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often experience persisting -
PCU Updates Archives - Page 19 of 54 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/19/24 Feb 2024: Lockdown and social distancing measures have meant that many people have little or no contact with others, which can […]. Filed Under:Tagged With:January 26, 2021. Patients with lupus – and related ... Patients with Lupus and related diseases […]. -
Group Blogs Archives - Page 14 of 51 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/14/24 Feb 2024: Primary Care Unit. Group Blogs. July 19, 2021. New research highlights the impact of current and past medical interactions – especially adverse experiences – on medication adherence amongst lupus patients and indicates the ... People with incurable -
Group Blogs Archives - Page 18 of 51 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/18/24 Feb 2024: January 26, 2021. Patients with lupus – and related systemic autoimmune rheumatic diseases, (or SARDs) – have experienced the UK’s shielding guidance as inconsistent, and many who felt they should have shielded ... Patients with Lupus and related -
Group Blogs Archives - Page 19 of 51 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/19/24 Feb 2024: How COVID-19-related healthcare changes affected patients with systemic autoimmune rheumatic diseases, including lupus. ... December 14, 2020. During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a -
PCU Updates Archives - Page 20 of 54 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/20/24 Feb 2024: During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a strong sense of being endangered from both the virus and the redeployment of medical resources. ... in practice and challenges in providing care -
PCU Updates Archives - Page 15 of 54 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/15/24 Feb 2024: Scenarios where […]. Filed Under:Tagged With:July 19, 2021. New research highlights the impact of current and past medical interactions – especially adverse experiences – on medication adherence amongst lupus patients and indicates ... People with -
Research News Archives - Page 12 of 43 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/news/research/page/12/24 Feb 2024: Scenarios where […]. Filed Under:Tagged With:July 19, 2021. New research highlights the impact of current and past medical interactions – especially adverse experiences – on medication adherence amongst lupus patients and indicates ... People with -
Research News Archives - Page 16 of 43 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/news/research/page/16/24 Feb 2024: Lockdown and social distancing measures have meant that many people have little or no contact with others, which can […]. Filed Under:Tagged With:January 26, 2021. Patients with lupus – and related ... Patients with Lupus and related diseases […]. -
Research News Archives - Page 17 of 43 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/news/research/page/17/24 Feb 2024: During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a strong sense of being endangered from both the virus and the redeployment of medical resources. ... Fraction (HFpEF) – the cause of a half of -
News Archives - Page 19 of 76 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/news/page/19/24 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body, -
News Archives - Page 23 of 76 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/news/page/23/24 Feb 2024: The new plain-language framework, the For Us (For Unit Safety) framework, was developed through a multi-site ethnographic study and […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and ... These arise from traumatic diagnostic -
Miranda Van Emmenis Archives - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/tag/miranda-van-emmenis/23 Feb 2024: Primary Care Unit. Tag: Miranda Van Emmenis. March 1, 2022. “Could the app be tailor-made?” Patients and healthcare providers give feedback on a prototype intervention to support patients with high ... Lupus patient experiences Lupus patients joined -
Featured Archives - Page 23 of 45 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/featured/page/23/24 Feb 2024: How lupus patients would like to be treated: study identifies physician behaviours that help build trust and medical security. ... September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often experience persisting -
Featured Archives - Page 19 of 45 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/featured/page/19/24 Feb 2024: Primary Care Unit. Featured. March 8, 2021. Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related ... diseases. Lupus is a chronic auto-immune condition -
GP News Archives - Page 4 of 21 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/gp-news/page/4/23 Feb 2024: It shows […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often experience persisting medical insecurity and negative healthcare-behaviours. ... These arise from traumatic -
Group Blogs Archives - Page 16 of 51 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/16/24 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body, -
PCU Updates Archives - Page 18 of 54 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/18/24 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body, -
Group Blogs Archives - Page 20 of 51 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/20/24 Feb 2024: It shows […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often experience persisting medical insecurity and negative healthcare-behaviours. ... These arise from traumatic -
PCU Updates Archives - Page 22 of 54 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/22/24 Feb 2024: The new plain-language framework, the For Us (For Unit Safety) framework, was developed through a multi-site ethnographic study and […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and ... These arise from traumatic diagnostic -
Experts call for urgent mental health support for people living with…
https://www.phpc.cam.ac.uk/pcu/experts-call-for-urgent-mental-health-support-for-people-living-with-long-term-autoimmune-diseases/23 Feb 2024: The team surveyed neurological and psychiatric symptoms amongst 1,853 patients with systemic auto-immune rheumatic diseases (SARDs) such as lupus and rheumatoid arthritis. ... For example, three times as many lupus patients reported experiencing suicidal -
Research News Archives - Page 15 of 43 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/news/research/page/15/24 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body, -
Research News Archives - Page 18 of 43 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/news/research/page/18/24 Feb 2024: The new plain-language framework, the For Us (For Unit Safety) framework, was developed through a multi-site ethnographic study and […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and ... These arise from traumatic diagnostic -
Research reveals pandemic's impact on healthcare for people with…
https://www.phpc.cam.ac.uk/pcu/research-reveals-the-pandemics-impact-on-healthcare-for-people-with-chronic-disease/23 Feb 2024: The delays contributed to potentially avoidable deaths: ‘I don’t think they would have died if they’d come in earlier,’ said another consultant, discussing two lupus patients. ... We found clear evidence of the pandemic’s impact on the physical -
Doctors rank patients’ own assessment of their illness as least…
https://www.phpc.cam.ac.uk/pcu/doctors-rank-patients-own-assessment-of-their-illness-as-least-important-in-diagnosis/23 Feb 2024: For example, brain scans, even in patients with severe neuropsychiatric lupus, are often completely normal. ... Many of the symptoms patients told us about – such as increased nightmares, tingling all over, severe fatigue, or feeling “spaced out” -
patient and public involvement Archives - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/tag/patient-and-public-involvement/23 Feb 2024: In addition to my work supporting students and researchers within the PCU, I am beginning to develop […]. Filed Under:Tagged With:March 8, 2021. Lupus patient experiences Lupus patients joined a ... research team at the University of Cambridge to study -
Publications - Behavioural Science Group - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/research/research-groups/bsg/publications/23 Feb 2024: COVID-19 and shielding: experiences of UK patients with lupus and related diseases. ... Medically explained symptoms: a mixed methods study of diagnostic, symptom and support experiences of patients with lupus and related systemic autoimmune diseases. -
“Perfect for some but disastrous for others”: Patients and clinicians …
https://www.phpc.cam.ac.uk/pcu/perfect-for-some-but-disastrous-for-others-patients-and-clinicians-express-concerns-over-phone-and-video-consultations/23 Feb 2024: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%). ... patients, those with worsening symptoms or more complex conditions such as lupus need quickly accessible, face-to face appointments to manage their -
All Primary Care Unit Publications - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/research/all-pcu-publications/23 Feb 2024: Mortality rates and proximal causes of death in patients with Lewy body dementia versus Alzheimer's disease: A longitudinal study using secondary care mental health records. ... Improving the diagnostic process for patients with possible bladder and
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