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  2. PCU Updates Archives - Page 18 of 54 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/18/
    24 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body,
  3. Group Blogs Archives - Page 20 of 51 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/20/
    24 Feb 2024: It shows […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often experience persisting medical insecurity and negative healthcare-behaviours. ... These arise from traumatic
  4. PCU Updates Archives - Page 22 of 54 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/22/
    24 Feb 2024: The new plain-language framework, the For Us (For Unit Safety) framework, was developed through a multi-site ethnographic study and […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and ... These arise from traumatic diagnostic
  5. Research News Archives - Page 15 of 43 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/research/page/15/
    24 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body,
  6. Research News Archives - Page 18 of 43 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/research/page/18/
    24 Feb 2024: The new plain-language framework, the For Us (For Unit Safety) framework, was developed through a multi-site ethnographic study and […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and ... These arise from traumatic diagnostic
  7. patient and public involvement Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/patient-and-public-involvement/
    23 Feb 2024: In addition to my work supporting students and researchers within the PCU, I am beginning to develop […]. Filed Under:Tagged With:March 8, 2021. Lupus patient experiences Lupus patients joined a ... research team at the University of Cambridge to study
  8. https://www.phpc.cam.ac.uk/pcu/tag/telephone/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/telephone/feed/
    19 Feb 2024: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%)./p pThis is the first telemedicine study to have combined data from rheumatology patients, ... telemedicine but new patients, those with worsening
  9. Dr Alexandre Bignon | Cambridge Immunology Network

    https://www.immunology.cam.ac.uk/Networkdirectory/bignon
    23 Feb 2024: CXCR4 dysfunction in non-alcoholic steatohepatitis in mice and patients. Clin Sci (Lond). ... Expression of CXCL12 receptors in B cells from Mexican Mestizos patients with systemic Lupus erythematosus.
  10. Dr Luis F. Quintana | Cambridge Immunology Network

    https://www.immunology.cam.ac.uk/Networkdirectory/quintana
    23 Feb 2024: Search site. Cambridge Immunology Network. Dr Luis F. Quintana. Biomarker studies in ANCA-associated vasculitis, lupus and immune-mediated renal disease. ... We perform state-of-the-art proteomic analyses on plasma and urine samples of patients with
  11. https://www.phpc.cam.ac.uk/pcu/tag/telemedicine/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/telemedicine/feed/
    19 Feb 2024: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%)./p pThis is the first telemedicine study to have combined data from rheumatology patients, ... telemedicine but new patients, those with worsening
  12. https://www.phpc.cam.ac.uk/pcu/tag/virtual-ethnography/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/virtual-ethnography/feed/
    19 Feb 2024: symptom and support experiences of patients with lupus and related systemic autoimmune diseases/a and a href="https://academic.oup.com/rheumap/article/4/2/rkaa037/5875068?searchresult=1" target="_blank" ... The impact of patient–physician interactions
  13. https://www.phpc.cam.ac.uk/pcu/tag/patient-and-public-involvement/feed…

    https://www.phpc.cam.ac.uk/pcu/tag/patient-and-public-involvement/feed/
    19 Feb 2024: pcu/?p=23264 Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... of Cambridge to study the experiences of patients with lupus and related
  14. https://www.phpc.cam.ac.uk/pcu/category/featured/feed/

    https://www.phpc.cam.ac.uk/pcu/category/featured/feed/
    19 Feb 2024: This is despite many lupus symptoms – such as headache, hallucinations and depression – being invisible and not testable, and so only captured through self-assessments./p pDoctors and patients gave many examples ... For example, brain scans, even in
  15. All Primary Care Unit Publications - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/research/all-pcu-publications/
    23 Feb 2024: Mortality rates and proximal causes of death in patients with Lewy body dementia versus Alzheimer's disease: A longitudinal study using secondary care mental health records. ... Improving the diagnostic process for patients with possible bladder and
  16. https://www.phpc.cam.ac.uk/pcu/feed/

    https://www.phpc.cam.ac.uk/pcu/feed/
    19 Feb 2024: This is despite many lupus symptoms – such as headache, hallucinations and depression – being invisible and not testable, and so only captured through self-assessments./p pDoctors and patients gave many examples ... For example, brain scans, even in
  17. https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/feed/

    https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/feed/
    19 Feb 2024: This is despite many lupus symptoms – such as headache, hallucinations and depression – being invisible and not testable, and so only captured through self-assessments./p pDoctors and patients gave many examples ... For example, brain scans, even in
  18. https://www.phpc.cam.ac.uk/pcu/tag/covid-19/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/covid-19/feed/
    19 Feb 2024: delays contributed to potentially avoidable deaths: ‘I don’t think they would have died if they’d come in earlier,’ said another consultant, discussing two lupus patients./p pSome patients reported ... telemedicine but new patients, those with
  19. £14m investment in new stratified medicine initiatives attracts…

    https://www.mrc-bsu.cam.ac.uk/blog/minister-announces-14m-investment-in-stratified-medicine/
    23 Feb 2024: Bringing together UK universities, the NHS and commercial partners, these collaborations will investigate targeted treatments that will benefit patients with cancer, heart disease, asthma and lupus. ... Funded by the MRC (c£4.2m). The MASTERPLANS
  20. https://www.phpc.cam.ac.uk/pcu/tag/remote-consulting/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/remote-consulting/feed/
    19 Feb 2024: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%)./p pThis is the first telemedicine study to have combined data from rheumatology patients, ... telemedicine but new patients, those with worsening
  21. https://www.phpc.cam.ac.uk/pcu/category/news/research/feed/

    https://www.phpc.cam.ac.uk/pcu/category/news/research/feed/
    19 Feb 2024: This is despite many lupus symptoms – such as headache, hallucinations and depression – being invisible and not testable, and so only captured through self-assessments./p pDoctors and patients gave many examples ... For example, brain scans, even in
  22. CRMH - Data Management - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/research/research-groups/crmh/research/crmh-data-mangement/
    23 Feb 2024: To measure the impact of peer support and research involvement on the mental health, wellbeing, self-esteem and disease acceptance of patients with systemic autoimmune rheumatic diseases. ... To compare lupus and related disease patients’ wellbeing,
  23. 'Inconsistent' shielding guidance increases fears for…

    https://www.phpc.cam.ac.uk/pcu/inconsistent-shielding-guidance-increases-fears-for-vulnerable-lupus-patients-during-the-pandemic/
    23 Feb 2024: Patients with Lupus and related diseases suffer from complex multi-system disease, often with unpredictable flares and frequent use of immunosuppression medication. ... This important research has highlighted the unmet needs of patients with lupus and
  24. Publications - Behavioural Science Group - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/research/research-groups/bsg/publications/
    23 Feb 2024: COVID-19 and shielding: experiences of UK patients with lupus and related diseases. ... Medically explained symptoms: a mixed methods study of diagnostic, symptom and support experiences of patients with lupus and related systemic autoimmune diseases.
  25. https://www.phpc.cam.ac.uk/pcu/tag/mental-health/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/mental-health/feed/
    19 Feb 2024: Updates Research News autoimmune disease lupus Melanie Sloan Mental health patient experience https://www.phpc.cam.ac.uk/pcu/?p=29635 More than half of patients with auto-immune conditions experience ... psychiatric symptoms amongst 1,853 patients with
  26. https://www.phpc.cam.ac.uk/pcu/tag/gp/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/gp/feed/
    19 Feb 2024: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%)./p pThis is the first telemedicine study to have combined data from rheumatology patients, ... telemedicine but new patients, those with worsening
  27. Roser Vento-Tormo receives Chan Zuckerberg Initiative support for…

    https://www.trophoblast.cam.ac.uk/news/roser-vento-tormo-receives-chan-zuckerberg-initiative-support-for-covid-19-study
    12 Jul 2024: Patients will include people with autoimmune diseases, such as systemic lupus erythematosus, rheumatoid arthritis, psoriasis, and multiple sclerosis, as well as immunodeficient patients, to help understand the immune response and progression
  28. https://www.phpc.cam.ac.uk/pcu/category/group-blogs/feed/

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/feed/
    19 Feb 2024: However, the timing of such prescriptions is challenging, given the prognostic uncertainty for patients, especially those with non-cancer conditions such as dementia, multimorbidity and frailty in old age,where a ... Discussion with patients and family
  29. https://www.phpc.cam.ac.uk/pcu/tag/health-services/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/health-services/feed/
    19 Feb 2024: delays contributed to potentially avoidable deaths: ‘I don’t think they would have died if they’d come in earlier,’ said another consultant, discussing two lupus patients./p pSome patients reported ... evidence of the pandemic’s impact on the
  30. https://www.phpc.cam.ac.uk/pcu/category/news/feed/

    https://www.phpc.cam.ac.uk/pcu/category/news/feed/
    19 Feb 2024: This is despite many lupus symptoms – such as headache, hallucinations and depression – being invisible and not testable, and so only captured through self-assessments./p pDoctors and patients gave many examples ... For example, brain scans, even in
  31. https://www.phpc.cam.ac.uk/pcu/tag/healthcare-inequalities/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/healthcare-inequalities/feed/
    19 Feb 2024: delays contributed to potentially avoidable deaths: ‘I don’t think they would have died if they’d come in earlier,’ said another consultant, discussing two lupus patients./p pSome patients reported ... evidence of the pandemic’s impact on the
  32. Diagnostic delays for people with lupus described in new study -…

    https://www.phpc.cam.ac.uk/pcu/diagnostic-delays-for-people-with-lupus-described-in-new-study/
    23 Feb 2024: Lupus and other systemic autoimmune diseases are notoriously challenging for both patients and physicians in terms of diagnostic difficulties and management of these diseases. ... and support experiences of patients with lupus and related systemic
  33. ‘But you don’t look sick’: A qualitative analysis of the LUPUS UK…

    https://www.phpc.cam.ac.uk/pcu/but-you-dont-look-sick-a-qualitative-analysis-of-the-lupus-uk-forum/
    23 Feb 2024: This research study, in conjunction with the two research papers previously published this year (Medically explained symptoms: A mixed methods study of diagnostic, symptom and support experiences of patients with lupus ... The impact of
  34. How lupus patients would like to be treated: study identifies…

    https://www.phpc.cam.ac.uk/pcu/how-lupus-patients-would-like-to-be-treated-study-identifies-physician-behaviours-that-help-build-trust-and-medical-security/
    23 Feb 2024: September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often experience persisting medical insecurity and negative healthcare-behaviours. ... which were previously published here: Medically explained symptoms: a

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