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  2. https://www.phpc.cam.ac.uk/pcu/tag/miranda-van-emmenis/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/miranda-van-emmenis/feed/
    19 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... of Cambridge to study the experiences of patients with lupus and related diseases.
  3. Patient and public involvement (PPI) - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/work-with-us/ppi/
    23 Feb 2024: 4. Remote PPI . Tried and tested ways to engage remotely with patients and the public. ... March 8, 2021. Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases.
  4. https://www.phpc.cam.ac.uk/pcu/tag/patient-experience/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/patient-experience/feed/
    19 Feb 2024: Updates Research News autoimmune disease lupus Melanie Sloan Mental health patient experience https://www.phpc.cam.ac.uk/pcu/?p=29635 More than half of patients with auto-immune conditions experience ... psychiatric symptoms amongst 1,853 patients with
  5. Miranda Van Emmenis Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/miranda-van-emmenis/
    23 Feb 2024: Primary Care Unit. Tag: Miranda Van Emmenis. March 1, 2022. “Could the app be tailor-made?” Patients and healthcare providers give feedback on a prototype intervention to support patients with high ... Lupus patient experiences Lupus patients joined
  6. Featured Archives - Page 19 of 45 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/featured/page/19/
    24 Feb 2024: Primary Care Unit. Featured. March 8, 2021. Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related ... diseases. Lupus is a chronic auto-immune condition
  7. Featured Archives - Page 23 of 45 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/featured/page/23/
    24 Feb 2024: How lupus patients would like to be treated: study identifies physician behaviours that help build trust and medical security. ... September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often experience persisting
  8. GP News Archives - Page 4 of 21 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/gp-news/page/4/
    23 Feb 2024: It shows […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often experience persisting medical insecurity and negative healthcare-behaviours. ... These arise from traumatic
  9. https://www.phpc.cam.ac.uk/pcu/tag/autoimmune-disease/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/autoimmune-disease/feed/
    19 Feb 2024: Updates Research News autoimmune disease lupus Melanie Sloan Mental health patient experience https://www.phpc.cam.ac.uk/pcu/?p=29635 More than half of patients with auto-immune conditions experience ... psychiatric symptoms amongst 1,853 patients with
  10. https://www.phpc.cam.ac.uk/pcu/tag/online-forum/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/online-forum/feed/
    19 Feb 2024: symptom and support experiences of patients with lupus and related systemic autoimmune diseases/a and a href="https://academic.oup.com/rheumap/article/4/2/rkaa037/5875068?searchresult=1" target="_blank" ... patients with lupus and related systemic
  11. https://www.phpc.cam.ac.uk/pcu/tag/ppi/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/ppi/feed/
    19 Feb 2024: more about the telephone triage project here: a ... ac.uk/pcu/telephone-triage-in-primary-care-does-not-disadvantage-patients-with-multimorbidity//a/h3 h3We are working on another analysis of the GP Patient Survey, looking at healthcare experiences
  12. https://www.phpc.cam.ac.uk/pcu/tag/rheumatology/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/rheumatology/feed/
    19 Feb 2024: delays contributed to potentially avoidable deaths: ‘I don’t think they would have died if they’d come in earlier,’ said another consultant, discussing two lupus patients./p pSome patients reported ... telemedicine but new patients, those with
  13. Group Blogs Archives - Page 16 of 51 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/16/
    24 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body,
  14. PCU Updates Archives - Page 18 of 54 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/18/
    24 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body,
  15. Group Blogs Archives - Page 20 of 51 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/20/
    24 Feb 2024: It shows […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often experience persisting medical insecurity and negative healthcare-behaviours. ... These arise from traumatic
  16. PCU Updates Archives - Page 22 of 54 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/22/
    24 Feb 2024: The new plain-language framework, the For Us (For Unit Safety) framework, was developed through a multi-site ethnographic study and […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and ... These arise from traumatic diagnostic
  17. Experts call for urgent mental health support for people living with

    https://www.cam.ac.uk/research/news/experts-call-for-urgent-mental-health-support-for-people-living-with-long-term-autoimmune-diseases
    Thumbnail for Experts call for urgent mental health support for people living with long term autoimmune diseases | University of Cambridge 26 Jul 2023: The team surveyed neurological and psychiatric symptoms amongst 1,853 patients with systemic auto-immune rheumatic diseases (SARDs) such as lupus and rheumatoid arthritis. ... For example, three times as many lupus patients reported experiencing suicidal
  18. Research News Archives - Page 15 of 43 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/research/page/15/
    24 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body,
  19. Research News Archives - Page 18 of 43 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/research/page/18/
    24 Feb 2024: The new plain-language framework, the For Us (For Unit Safety) framework, was developed through a multi-site ethnographic study and […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and ... These arise from traumatic diagnostic
  20. patient and public involvement Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/patient-and-public-involvement/
    23 Feb 2024: In addition to my work supporting students and researchers within the PCU, I am beginning to develop […]. Filed Under:Tagged With:March 8, 2021. Lupus patient experiences Lupus patients joined a ... research team at the University of Cambridge to study
  21. https://www.phpc.cam.ac.uk/pcu/tag/telephone/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/telephone/feed/
    19 Feb 2024: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%)./p pThis is the first telemedicine study to have combined data from rheumatology patients, ... telemedicine but new patients, those with worsening
  22. Dr Alexandre Bignon | Cambridge Immunology Network

    https://www.immunology.cam.ac.uk/Networkdirectory/bignon
    23 Feb 2024: CXCR4 dysfunction in non-alcoholic steatohepatitis in mice and patients. Clin Sci (Lond). ... Expression of CXCL12 receptors in B cells from Mexican Mestizos patients with systemic Lupus erythematosus.
  23. Dr Luis F. Quintana | Cambridge Immunology Network

    https://www.immunology.cam.ac.uk/Networkdirectory/quintana
    23 Feb 2024: Search site. Cambridge Immunology Network. Dr Luis F. Quintana. Biomarker studies in ANCA-associated vasculitis, lupus and immune-mediated renal disease. ... We perform state-of-the-art proteomic analyses on plasma and urine samples of patients with
  24. https://www.phpc.cam.ac.uk/pcu/tag/telemedicine/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/telemedicine/feed/
    19 Feb 2024: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%)./p pThis is the first telemedicine study to have combined data from rheumatology patients, ... telemedicine but new patients, those with worsening
  25. https://www.phpc.cam.ac.uk/pcu/tag/virtual-ethnography/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/virtual-ethnography/feed/
    19 Feb 2024: symptom and support experiences of patients with lupus and related systemic autoimmune diseases/a and a href="https://academic.oup.com/rheumap/article/4/2/rkaa037/5875068?searchresult=1" target="_blank" ... The impact of patient–physician interactions
  26. https://www.phpc.cam.ac.uk/pcu/tag/patient-and-public-involvement/feed…

    https://www.phpc.cam.ac.uk/pcu/tag/patient-and-public-involvement/feed/
    19 Feb 2024: pcu/?p=23264 Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... of Cambridge to study the experiences of patients with lupus and related
  27. https://www.phpc.cam.ac.uk/pcu/category/featured/feed/

    https://www.phpc.cam.ac.uk/pcu/category/featured/feed/
    19 Feb 2024: This is despite many lupus symptoms – such as headache, hallucinations and depression – being invisible and not testable, and so only captured through self-assessments./p pDoctors and patients gave many examples ... For example, brain scans, even in
  28. All Primary Care Unit Publications - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/research/all-pcu-publications/
    23 Feb 2024: Mortality rates and proximal causes of death in patients with Lewy body dementia versus Alzheimer's disease: A longitudinal study using secondary care mental health records. ... Improving the diagnostic process for patients with possible bladder and
  29. https://www.phpc.cam.ac.uk/pcu/feed/

    https://www.phpc.cam.ac.uk/pcu/feed/
    19 Feb 2024: This is despite many lupus symptoms – such as headache, hallucinations and depression – being invisible and not testable, and so only captured through self-assessments./p pDoctors and patients gave many examples ... For example, brain scans, even in
  30. https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/feed/

    https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/feed/
    19 Feb 2024: This is despite many lupus symptoms – such as headache, hallucinations and depression – being invisible and not testable, and so only captured through self-assessments./p pDoctors and patients gave many examples ... For example, brain scans, even in
  31. https://www.phpc.cam.ac.uk/pcu/tag/covid-19/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/covid-19/feed/
    19 Feb 2024: delays contributed to potentially avoidable deaths: ‘I don’t think they would have died if they’d come in earlier,’ said another consultant, discussing two lupus patients./p pSome patients reported ... telemedicine but new patients, those with
  32. £14m investment in new stratified medicine initiatives attracts…

    https://www.mrc-bsu.cam.ac.uk/blog/minister-announces-14m-investment-in-stratified-medicine/
    23 Feb 2024: Bringing together UK universities, the NHS and commercial partners, these collaborations will investigate targeted treatments that will benefit patients with cancer, heart disease, asthma and lupus. ... Funded by the MRC (c£4.2m). The MASTERPLANS
  33. https://www.phpc.cam.ac.uk/pcu/tag/remote-consulting/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/remote-consulting/feed/
    19 Feb 2024: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%)./p pThis is the first telemedicine study to have combined data from rheumatology patients, ... telemedicine but new patients, those with worsening
  34. https://www.phpc.cam.ac.uk/pcu/category/news/research/feed/

    https://www.phpc.cam.ac.uk/pcu/category/news/research/feed/
    19 Feb 2024: This is despite many lupus symptoms – such as headache, hallucinations and depression – being invisible and not testable, and so only captured through self-assessments./p pDoctors and patients gave many examples ... For example, brain scans, even in
  35. CRMH - Data Management - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/research/research-groups/crmh/research/crmh-data-mangement/
    23 Feb 2024: To measure the impact of peer support and research involvement on the mental health, wellbeing, self-esteem and disease acceptance of patients with systemic autoimmune rheumatic diseases. ... To compare lupus and related disease patients’ wellbeing,
  36. 'Inconsistent' shielding guidance increases fears for…

    https://www.phpc.cam.ac.uk/pcu/inconsistent-shielding-guidance-increases-fears-for-vulnerable-lupus-patients-during-the-pandemic/
    23 Feb 2024: Patients with Lupus and related diseases suffer from complex multi-system disease, often with unpredictable flares and frequent use of immunosuppression medication. ... This important research has highlighted the unmet needs of patients with lupus and
  37. Publications - Behavioural Science Group - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/research/research-groups/bsg/publications/
    23 Feb 2024: COVID-19 and shielding: experiences of UK patients with lupus and related diseases. ... Medically explained symptoms: a mixed methods study of diagnostic, symptom and support experiences of patients with lupus and related systemic autoimmune diseases.
  38. https://www.phpc.cam.ac.uk/pcu/tag/mental-health/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/mental-health/feed/
    19 Feb 2024: Updates Research News autoimmune disease lupus Melanie Sloan Mental health patient experience https://www.phpc.cam.ac.uk/pcu/?p=29635 More than half of patients with auto-immune conditions experience ... psychiatric symptoms amongst 1,853 patients with
  39. https://www.phpc.cam.ac.uk/pcu/tag/gp/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/gp/feed/
    19 Feb 2024: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%)./p pThis is the first telemedicine study to have combined data from rheumatology patients, ... telemedicine but new patients, those with worsening
  40. https://www.phpc.cam.ac.uk/pcu/category/group-blogs/feed/

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/feed/
    19 Feb 2024: However, the timing of such prescriptions is challenging, given the prognostic uncertainty for patients, especially those with non-cancer conditions such as dementia, multimorbidity and frailty in old age,where a ... Discussion with patients and family
  41. https://www.phpc.cam.ac.uk/pcu/tag/health-services/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/health-services/feed/
    19 Feb 2024: delays contributed to potentially avoidable deaths: ‘I don’t think they would have died if they’d come in earlier,’ said another consultant, discussing two lupus patients./p pSome patients reported ... evidence of the pandemic’s impact on the
  42. https://www.phpc.cam.ac.uk/pcu/category/news/feed/

    https://www.phpc.cam.ac.uk/pcu/category/news/feed/
    19 Feb 2024: This is despite many lupus symptoms – such as headache, hallucinations and depression – being invisible and not testable, and so only captured through self-assessments./p pDoctors and patients gave many examples ... For example, brain scans, even in
  43. https://www.phpc.cam.ac.uk/pcu/tag/healthcare-inequalities/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/healthcare-inequalities/feed/
    19 Feb 2024: delays contributed to potentially avoidable deaths: ‘I don’t think they would have died if they’d come in earlier,’ said another consultant, discussing two lupus patients./p pSome patients reported ... evidence of the pandemic’s impact on the
  44. Diagnostic delays for people with lupus described in new study -…

    https://www.phpc.cam.ac.uk/pcu/diagnostic-delays-for-people-with-lupus-described-in-new-study/
    23 Feb 2024: Lupus and other systemic autoimmune diseases are notoriously challenging for both patients and physicians in terms of diagnostic difficulties and management of these diseases. ... and support experiences of patients with lupus and related systemic
  45. ‘But you don’t look sick’: A qualitative analysis of the LUPUS UK…

    https://www.phpc.cam.ac.uk/pcu/but-you-dont-look-sick-a-qualitative-analysis-of-the-lupus-uk-forum/
    23 Feb 2024: This research study, in conjunction with the two research papers previously published this year (Medically explained symptoms: A mixed methods study of diagnostic, symptom and support experiences of patients with lupus ... The impact of
  46. How lupus patients would like to be treated: study identifies…

    https://www.phpc.cam.ac.uk/pcu/how-lupus-patients-would-like-to-be-treated-study-identifies-physician-behaviours-that-help-build-trust-and-medical-security/
    23 Feb 2024: September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often experience persisting medical insecurity and negative healthcare-behaviours. ... which were previously published here: Medically explained symptoms: a
  47. Experts call for urgent mental health support for people living with

    https://www.phpc.cam.ac.uk/pcu/experts-call-for-urgent-mental-health-support-for-people-living-with-long-term-autoimmune-diseases/
    23 Feb 2024: The team surveyed neurological and psychiatric symptoms amongst 1,853 patients with systemic auto-immune rheumatic diseases (SARDs) such as lupus and rheumatoid arthritis. ... For example, three times as many lupus patients reported experiencing suicidal
  48. Research reveals pandemic's impact on healthcare for people with

    https://www.phpc.cam.ac.uk/pcu/research-reveals-the-pandemics-impact-on-healthcare-for-people-with-chronic-disease/
    23 Feb 2024: The delays contributed to potentially avoidable deaths: ‘I don’t think they would have died if they’d come in earlier,’ said another consultant, discussing two lupus patients. ... We found clear evidence of the pandemic’s impact on the physical
  49. Doctors rank patients’ own assessment of their illness as least…

    https://www.phpc.cam.ac.uk/pcu/doctors-rank-patients-own-assessment-of-their-illness-as-least-important-in-diagnosis/
    23 Feb 2024: For example, brain scans, even in patients with severe neuropsychiatric lupus, are often completely normal. ... Many of the symptoms patients told us about – such as increased nightmares, tingling all over, severe fatigue, or feeling “spaced out”
  50. “Perfect for some but disastrous for others”: Patients and clinicians …

    https://www.phpc.cam.ac.uk/pcu/perfect-for-some-but-disastrous-for-others-patients-and-clinicians-express-concerns-over-phone-and-video-consultations/
    23 Feb 2024: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%). ... patients, those with worsening symptoms or more complex conditions such as lupus need quickly accessible, face-to face appointments to manage their

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