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https://www.phpc.cam.ac.uk/pcu/tag/public/feed/
https://www.phpc.cam.ac.uk/pcu/tag/public/feed/19 Feb 2024: of Cambridge to study the experiences of patients with lupus and related diseases. ... help-build-trust-and-medical-security/"Lay summary/a./li liMedically explained symptoms: a mixed method study of diagnostic, symptom and support experiences of -
Group Blogs Archives - Page 16 of 51 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/16/24 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body, -
PCU Updates Archives - Page 18 of 54 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/18/24 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body, -
Group Blogs Archives - Page 20 of 51 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/20/24 Feb 2024: It shows […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often experience persisting medical insecurity and negative healthcare-behaviours. ... These arise from traumatic -
PCU Updates Archives - Page 22 of 54 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/22/24 Feb 2024: The new plain-language framework, the For Us (For Unit Safety) framework, was developed through a multi-site ethnographic study and […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and ... These arise from traumatic diagnostic -
Experts call for urgent mental health support for people living with…
https://www.phpc.cam.ac.uk/pcu/experts-call-for-urgent-mental-health-support-for-people-living-with-long-term-autoimmune-diseases/23 Feb 2024: The team surveyed neurological and psychiatric symptoms amongst 1,853 patients with systemic auto-immune rheumatic diseases (SARDs) such as lupus and rheumatoid arthritis. ... For example, three times as many lupus patients reported experiencing suicidal -
Group Blogs Archives - Page 18 of 51 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/18/24 Feb 2024: January 26, 2021. Patients with lupus – and related systemic autoimmune rheumatic diseases, (or SARDs) – have experienced the UK’s shielding guidance as inconsistent, and many who felt they should have shielded ... Patients with Lupus and related -
Research News Archives - Page 15 of 43 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/news/research/page/15/24 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body, -
Group Blogs Archives - Page 19 of 51 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/19/24 Feb 2024: How COVID-19-related healthcare changes affected patients with systemic autoimmune rheumatic diseases, including lupus. ... December 14, 2020. During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a -
PCU Updates Archives - Page 20 of 54 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/20/24 Feb 2024: During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a strong sense of being endangered from both the virus and the redeployment of medical resources. ... in practice and challenges in providing care -
https://www.phpc.cam.ac.uk/pcu/tag/autoimmune-disease/feed/
https://www.phpc.cam.ac.uk/pcu/tag/autoimmune-disease/feed/19 Feb 2024: Updates Research News autoimmune disease lupus Melanie Sloan Mental health patient experience https://www.phpc.cam.ac.uk/pcu/?p=29635 More than half of patients with auto-immune conditions experience ... psychiatric symptoms amongst 1,853 patients with -
Research News Archives - Page 18 of 43 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/news/research/page/18/24 Feb 2024: The new plain-language framework, the For Us (For Unit Safety) framework, was developed through a multi-site ethnographic study and […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and ... These arise from traumatic diagnostic -
Research reveals pandemic's impact on healthcare for people with…
https://www.phpc.cam.ac.uk/pcu/research-reveals-the-pandemics-impact-on-healthcare-for-people-with-chronic-disease/23 Feb 2024: The delays contributed to potentially avoidable deaths: ‘I don’t think they would have died if they’d come in earlier,’ said another consultant, discussing two lupus patients. ... We found clear evidence of the pandemic’s impact on the physical -
Doctors rank patients’ own assessment of their illness as least…
https://www.phpc.cam.ac.uk/pcu/doctors-rank-patients-own-assessment-of-their-illness-as-least-important-in-diagnosis/23 Feb 2024: For example, brain scans, even in patients with severe neuropsychiatric lupus, are often completely normal. ... Many of the symptoms patients told us about – such as increased nightmares, tingling all over, severe fatigue, or feeling “spaced out” -
https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/feed/
https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/feed/19 Feb 2024: News PCU Updates Research News autoimmune disease lupus Melanie Sloan Mental health patient experience https://www.phpc.cam.ac.uk/pcu/?p=29635 More than half of patients with auto-immune ... psychiatric symptoms amongst 1,853 patients with systemic -
https://www.phpc.cam.ac.uk/pcu/tag/online-forum/feed/
https://www.phpc.cam.ac.uk/pcu/tag/online-forum/feed/19 Feb 2024: symptom and support experiences of patients with lupus and related systemic autoimmune diseases/a and a href="https://academic.oup.com/rheumap/article/4/2/rkaa037/5875068?searchresult=1" target="_blank" ... patients with lupus and related systemic -
https://www.phpc.cam.ac.uk/pcu/feed/
https://www.phpc.cam.ac.uk/pcu/feed/19 Feb 2024: This is despite many lupus symptoms – such as headache, hallucinations and depression – being invisible and not testable, and so only captured through self-assessments./p pDoctors and patients gave many examples ... For example, brain scans, even in -
patient and public involvement Archives - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/tag/patient-and-public-involvement/23 Feb 2024: In addition to my work supporting students and researchers within the PCU, I am beginning to develop […]. Filed Under:Tagged With:March 8, 2021. Lupus patient experiences Lupus patients joined a ... research team at the University of Cambridge to study -
https://www.phpc.cam.ac.uk/pcu/tag/telephone/feed/
https://www.phpc.cam.ac.uk/pcu/tag/telephone/feed/19 Feb 2024: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%)./p pThis is the first telemedicine study to have combined data from rheumatology patients, ... telemedicine but new patients, those with worsening -
https://www.phpc.cam.ac.uk/pcu/tag/rheumatology/feed/
https://www.phpc.cam.ac.uk/pcu/tag/rheumatology/feed/19 Feb 2024: delays contributed to potentially avoidable deaths: ‘I don’t think they would have died if they’d come in earlier,’ said another consultant, discussing two lupus patients./p pSome patients reported ... telemedicine but new patients, those with
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