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  2. Research reveals pandemic's impact on healthcare for people with

    https://www.phpc.cam.ac.uk/pcu/research-reveals-the-pandemics-impact-on-healthcare-for-people-with-chronic-disease/
    23 Feb 2024: The delays contributed to potentially avoidable deaths: ‘I don’t think they would have died if they’d come in earlier,’ said another consultant, discussing two lupus patients. ... We found clear evidence of the pandemic’s impact on the physical
  3. Research News Archives - Page 18 of 43 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/research/page/18/
    24 Feb 2024: The new plain-language framework, the For Us (For Unit Safety) framework, was developed through a multi-site ethnographic study and […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and ... These arise from traumatic diagnostic
  4. https://www.phpc.cam.ac.uk/pcu/tag/autoimmune-disease/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/autoimmune-disease/feed/
    19 Feb 2024: Updates Research News autoimmune disease lupus Melanie Sloan Mental health patient experience https://www.phpc.cam.ac.uk/pcu/?p=29635 More than half of patients with auto-immune conditions experience ... psychiatric symptoms amongst 1,853 patients with
  5. Doctors rank patients’ own assessment of their illness as least…

    https://www.phpc.cam.ac.uk/pcu/doctors-rank-patients-own-assessment-of-their-illness-as-least-important-in-diagnosis/
    23 Feb 2024: For example, brain scans, even in patients with severe neuropsychiatric lupus, are often completely normal. ... Many of the symptoms patients told us about – such as increased nightmares, tingling all over, severe fatigue, or feeling “spaced out”
  6. https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/feed/

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/feed/
    19 Feb 2024: News PCU Updates Research News autoimmune disease lupus Melanie Sloan Mental health patient experience https://www.phpc.cam.ac.uk/pcu/?p=29635 More than half of patients with auto-immune ... psychiatric symptoms amongst 1,853 patients with systemic
  7. https://www.phpc.cam.ac.uk/pcu/tag/online-forum/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/online-forum/feed/
    19 Feb 2024: symptom and support experiences of patients with lupus and related systemic autoimmune diseases/a and a href="https://academic.oup.com/rheumap/article/4/2/rkaa037/5875068?searchresult=1" target="_blank" ... patients with lupus and related systemic
  8. patient and public involvement Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/patient-and-public-involvement/
    23 Feb 2024: In addition to my work supporting students and researchers within the PCU, I am beginning to develop […]. Filed Under:Tagged With:March 8, 2021. Lupus patient experiences Lupus patients joined a ... research team at the University of Cambridge to study
  9. https://www.phpc.cam.ac.uk/pcu/tag/rheumatology/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/rheumatology/feed/
    19 Feb 2024: delays contributed to potentially avoidable deaths: ‘I don’t think they would have died if they’d come in earlier,’ said another consultant, discussing two lupus patients./p pSome patients reported ... telemedicine but new patients, those with
  10. https://www.phpc.cam.ac.uk/pcu/tag/telephone/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/telephone/feed/
    19 Feb 2024: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%)./p pThis is the first telemedicine study to have combined data from rheumatology patients, ... telemedicine but new patients, those with worsening
  11. https://www.phpc.cam.ac.uk/pcu/tag/telemedicine/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/telemedicine/feed/
    19 Feb 2024: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%)./p pThis is the first telemedicine study to have combined data from rheumatology patients, ... telemedicine but new patients, those with worsening
  12. https://www.phpc.cam.ac.uk/pcu/tag/miranda-van-emmenis/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/miranda-van-emmenis/feed/
    19 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... of Cambridge to study the experiences of patients with lupus and related diseases.
  13. https://www.phpc.cam.ac.uk/pcu/tag/patient-experience/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/patient-experience/feed/
    19 Feb 2024: Updates Research News autoimmune disease lupus Melanie Sloan Mental health patient experience https://www.phpc.cam.ac.uk/pcu/?p=29635 More than half of patients with auto-immune conditions experience ... psychiatric symptoms amongst 1,853 patients with
  14. https://www.phpc.cam.ac.uk/pcu/tag/virtual-ethnography/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/virtual-ethnography/feed/
    19 Feb 2024: symptom and support experiences of patients with lupus and related systemic autoimmune diseases/a and a href="https://academic.oup.com/rheumap/article/4/2/rkaa037/5875068?searchresult=1" target="_blank" ... The impact of patient–physician interactions
  15. https://www.phpc.cam.ac.uk/pcu/tag/ppi/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/ppi/feed/
    19 Feb 2024: more about the telephone triage project here: a ... ac.uk/pcu/telephone-triage-in-primary-care-does-not-disadvantage-patients-with-multimorbidity//a/h3 h3We are working on another analysis of the GP Patient Survey, looking at healthcare experiences
  16. https://www.phpc.cam.ac.uk/pcu/category/news/feed/

    https://www.phpc.cam.ac.uk/pcu/category/news/feed/
    19 Feb 2024: This is despite many lupus symptoms – such as headache, hallucinations and depression – being invisible and not testable, and so only captured through self-assessments./p pDoctors and patients gave many examples ... For example, brain scans, even in
  17. Publications - Behavioural Science Group - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/research/research-groups/bsg/publications/
    23 Feb 2024: COVID-19 and shielding: experiences of UK patients with lupus and related diseases. ... Medically explained symptoms: a mixed methods study of diagnostic, symptom and support experiences of patients with lupus and related systemic autoimmune diseases.
  18. “Perfect for some but disastrous for others”: Patients and clinicians …

    https://www.phpc.cam.ac.uk/pcu/perfect-for-some-but-disastrous-for-others-patients-and-clinicians-express-concerns-over-phone-and-video-consultations/
    23 Feb 2024: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%). ... patients, those with worsening symptoms or more complex conditions such as lupus need quickly accessible, face-to face appointments to manage their
  19. All Primary Care Unit Publications - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/research/all-pcu-publications/
    23 Feb 2024: Mortality rates and proximal causes of death in patients with Lewy body dementia versus Alzheimer's disease: A longitudinal study using secondary care mental health records. ... Improving the diagnostic process for patients with possible bladder and
  20. https://www.phpc.cam.ac.uk/pcu/tag/remote-consulting/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/remote-consulting/feed/
    19 Feb 2024: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%)./p pThis is the first telemedicine study to have combined data from rheumatology patients, ... telemedicine but new patients, those with worsening
  21. https://www.phpc.cam.ac.uk/pcu/category/featured/feed/

    https://www.phpc.cam.ac.uk/pcu/category/featured/feed/
    19 Feb 2024: This is despite many lupus symptoms – such as headache, hallucinations and depression – being invisible and not testable, and so only captured through self-assessments./p pDoctors and patients gave many examples ... For example, brain scans, even in
  22. https://www.phpc.cam.ac.uk/pcu/tag/gp/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/gp/feed/
    19 Feb 2024: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%)./p pThis is the first telemedicine study to have combined data from rheumatology patients, ... telemedicine but new patients, those with worsening
  23. https://www.phpc.cam.ac.uk/pcu/tag/covid-19/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/covid-19/feed/
    19 Feb 2024: delays contributed to potentially avoidable deaths: ‘I don’t think they would have died if they’d come in earlier,’ said another consultant, discussing two lupus patients./p pSome patients reported ... telemedicine but new patients, those with
  24. https://www.phpc.cam.ac.uk/pcu/tag/patient-and-public-involvement/feed…

    https://www.phpc.cam.ac.uk/pcu/tag/patient-and-public-involvement/feed/
    19 Feb 2024: pcu/?p=23264 Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... of Cambridge to study the experiences of patients with lupus and related
  25. https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/feed/

    https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/feed/
    19 Feb 2024: This is despite many lupus symptoms – such as headache, hallucinations and depression – being invisible and not testable, and so only captured through self-assessments./p pDoctors and patients gave many examples ... For example, brain scans, even in
  26. https://www.phpc.cam.ac.uk/pcu/tag/mental-health/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/mental-health/feed/
    19 Feb 2024: Updates Research News autoimmune disease lupus Melanie Sloan Mental health patient experience https://www.phpc.cam.ac.uk/pcu/?p=29635 More than half of patients with auto-immune conditions experience ... psychiatric symptoms amongst 1,853 patients with
  27. https://www.phpc.cam.ac.uk/pcu/category/news/research/feed/

    https://www.phpc.cam.ac.uk/pcu/category/news/research/feed/
    19 Feb 2024: This is despite many lupus symptoms – such as headache, hallucinations and depression – being invisible and not testable, and so only captured through self-assessments./p pDoctors and patients gave many examples ... For example, brain scans, even in
  28. Diagnostic delays for people with lupus described in new study -…

    https://www.phpc.cam.ac.uk/pcu/diagnostic-delays-for-people-with-lupus-described-in-new-study/
    23 Feb 2024: Lupus and other systemic autoimmune diseases are notoriously challenging for both patients and physicians in terms of diagnostic difficulties and management of these diseases. ... and support experiences of patients with lupus and related systemic
  29. https://www.phpc.cam.ac.uk/pcu/tag/health-services/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/health-services/feed/
    19 Feb 2024: delays contributed to potentially avoidable deaths: ‘I don’t think they would have died if they’d come in earlier,’ said another consultant, discussing two lupus patients./p pSome patients reported ... evidence of the pandemic’s impact on the
  30. 'Inconsistent' shielding guidance increases fears for…

    https://www.phpc.cam.ac.uk/pcu/inconsistent-shielding-guidance-increases-fears-for-vulnerable-lupus-patients-during-the-pandemic/
    23 Feb 2024: Patients with Lupus and related diseases suffer from complex multi-system disease, often with unpredictable flares and frequent use of immunosuppression medication. ... This important research has highlighted the unmet needs of patients with lupus and
  31. https://www.phpc.cam.ac.uk/pcu/category/group-blogs/feed/

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/feed/
    19 Feb 2024: However, the timing of such prescriptions is challenging, given the prognostic uncertainty for patients, especially those with non-cancer conditions such as dementia, multimorbidity and frailty in old age,where a ... Discussion with patients and family
  32. https://www.phpc.cam.ac.uk/pcu/tag/healthcare-inequalities/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/healthcare-inequalities/feed/
    19 Feb 2024: delays contributed to potentially avoidable deaths: ‘I don’t think they would have died if they’d come in earlier,’ said another consultant, discussing two lupus patients./p pSome patients reported ... evidence of the pandemic’s impact on the
  33. ‘But you don’t look sick’: A qualitative analysis of the LUPUS UK…

    https://www.phpc.cam.ac.uk/pcu/but-you-dont-look-sick-a-qualitative-analysis-of-the-lupus-uk-forum/
    23 Feb 2024: This research study, in conjunction with the two research papers previously published this year (Medically explained symptoms: A mixed methods study of diagnostic, symptom and support experiences of patients with lupus ... The impact of
  34. How lupus patients would like to be treated: study identifies…

    https://www.phpc.cam.ac.uk/pcu/how-lupus-patients-would-like-to-be-treated-study-identifies-physician-behaviours-that-help-build-trust-and-medical-security/
    23 Feb 2024: September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often experience persisting medical insecurity and negative healthcare-behaviours. ... which were previously published here: Medically explained symptoms: a

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