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https://www.phpc.cam.ac.uk/pcu/tag/lupus-uk/feed/
https://www.phpc.cam.ac.uk/pcu/tag/lupus-uk/feed/19 Feb 2024: symptom and support experiences of patients with lupus and related systemic autoimmune diseases/a and a href="https://academic.oup.com/rheumap/article/4/2/rkaa037/5875068?searchresult=1" target="_blank" ... methods study of diagnostic, symptom and -
PCU Updates Archives - Page 15 of 54 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/15/24 Feb 2024: Scenarios where […]. Filed Under:Tagged With:July 19, 2021. New research highlights the impact of current and past medical interactions – especially adverse experiences – on medication adherence amongst lupus patients and indicates ... People with -
Research News Archives - Page 12 of 43 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/news/research/page/12/24 Feb 2024: Scenarios where […]. Filed Under:Tagged With:July 19, 2021. New research highlights the impact of current and past medical interactions – especially adverse experiences – on medication adherence amongst lupus patients and indicates ... People with -
Research News Archives - Page 16 of 43 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/news/research/page/16/24 Feb 2024: Lockdown and social distancing measures have meant that many people have little or no contact with others, which can […]. Filed Under:Tagged With:January 26, 2021. Patients with lupus – and related ... Patients with Lupus and related diseases […]. -
Research News Archives - Page 17 of 43 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/news/research/page/17/24 Feb 2024: During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a strong sense of being endangered from both the virus and the redeployment of medical resources. ... Fraction (HFpEF) – the cause of a half of -
News Archives - Page 19 of 76 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/news/page/19/24 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body, -
News Archives - Page 23 of 76 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/news/page/23/24 Feb 2024: The new plain-language framework, the For Us (For Unit Safety) framework, was developed through a multi-site ethnographic study and […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and ... These arise from traumatic diagnostic -
LUPUS UK Archives - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/tag/lupus-uk/23 Feb 2024: How COVID-19-related healthcare changes affected patients with systemic autoimmune rheumatic diseases, including lupus. ... Filed Under:Tagged With:September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often -
News Archives - Page 21 of 76 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/news/page/21/24 Feb 2024: January 26, 2021. Patients with lupus – and related systemic autoimmune rheumatic diseases, (or SARDs) – have experienced the UK’s shielding guidance as inconsistent, and many who felt they should have shielded ... Patients with Lupus and related -
COVID-19 Archives - Page 3 of 5 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/tag/covid-19/page/3/23 Feb 2024: Lockdown and social distancing measures have meant that many people have little or no contact with others, which can […]. Filed Under:Tagged With:January 26, 2021. Patients with lupus – and related ... Patients with Lupus and related diseases […]. -
The strength of the wolf is the pack: how a study of lupus patient…
https://www.phpc.cam.ac.uk/pcu/lupus-patient-experiences/23 Feb 2024: 2020)Medically explained symptoms: a mixed method study of diagnostic, symptom and support experiences of patients with lupus and related systemic autoimmune diseases (2020). ... The impact of Covid 19 and the U.K.’s shielding guidance on patients with -
https://www.phpc.cam.ac.uk/pcu/tag/melanie-sloan/feed/
https://www.phpc.cam.ac.uk/pcu/tag/melanie-sloan/feed/19 Feb 2024: the University of Cambridge to study the experiences of patients with lupus and related diseases. ... of Cambridge to study the experiences of patients with lupus and related diseases. -
Behavioural Science Group Archives - Page 2 of 6 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/page/2/23 Feb 2024: Primary Care Unit. Behavioural Science Group. March 8, 2021. Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus ... Patients with Lupus and related diseases […]. -
PPI Archives - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/tag/ppi/23 Feb 2024: In addition to my work supporting students and researchers within the PCU, I am beginning to develop […]. Filed Under:Tagged With:March 8, 2021. Lupus patient experiences Lupus patients joined a ... research team at the University of Cambridge to study -
Melanie Sloan Archives - Page 2 of 2 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/tag/melanie-sloan/page/2/23 Feb 2024: How COVID-19-related healthcare changes affected patients with systemic autoimmune rheumatic diseases, including lupus. ... Filed Under:Tagged With:September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often -
public Archives - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/tag/public/23 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body, -
https://www.phpc.cam.ac.uk/pcu/tag/sle/feed/
https://www.phpc.cam.ac.uk/pcu/tag/sle/feed/19 Feb 2024: symptom and support experiences of patients with lupus and related systemic autoimmune diseases/a and a href="https://academic.oup.com/rheumap/article/4/2/rkaa037/5875068?searchresult=1" target="_blank" ... patients with lupus and related systemic -
Miranda Van Emmenis Archives - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/tag/miranda-van-emmenis/23 Feb 2024: Primary Care Unit. Tag: Miranda Van Emmenis. March 1, 2022. “Could the app be tailor-made?” Patients and healthcare providers give feedback on a prototype intervention to support patients with high ... Lupus patient experiences Lupus patients joined -
News Archives - Page 16 of 76 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/news/page/16/24 Feb 2024: Scenarios where […]. Filed Under:Tagged With:July 19, 2021. New research highlights the impact of current and past medical interactions – especially adverse experiences – on medication adherence amongst lupus patients and indicates ... People with -
Featured Archives - Page 20 of 45 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/featured/page/20/24 Feb 2024: Lockdown and social distancing measures have meant that many people have little or no contact with others, which can […]. Filed Under:Tagged With:January 26, 2021. Patients with lupus – and related ... Patients with Lupus and related diseases […]. -
Featured Archives - Page 21 of 45 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/featured/page/21/24 Feb 2024: How COVID-19-related healthcare changes affected patients with systemic autoimmune rheumatic diseases, including lupus. ... December 14, 2020. During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a -
Featured Archives - Page 16 of 45 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/featured/page/16/24 Feb 2024: Scenarios where […]. Filed Under:Tagged With:July 19, 2021. New research highlights the impact of current and past medical interactions – especially adverse experiences – on medication adherence amongst lupus patients and indicates ... People with -
https://www.phpc.cam.ac.uk/pcu/search/lupus/feed/rss2/
https://www.phpc.cam.ac.uk/pcu/search/lupus/feed/rss2/19 Feb 2024: the University of Cambridge to study the experiences of patients with lupus and related diseases. ... of Cambridge to study the experiences of patients with lupus and related diseases. -
Featured Archives - Page 19 of 45 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/featured/page/19/24 Feb 2024: Primary Care Unit. Featured. March 8, 2021. Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related ... diseases. Lupus is a chronic auto-immune condition -
Featured Archives - Page 23 of 45 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/featured/page/23/24 Feb 2024: How lupus patients would like to be treated: study identifies physician behaviours that help build trust and medical security. ... September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often experience persisting -
GP News Archives - Page 4 of 21 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/gp-news/page/4/23 Feb 2024: It shows […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often experience persisting medical insecurity and negative healthcare-behaviours. ... These arise from traumatic -
https://www.phpc.cam.ac.uk/pcu/tag/lupus/feed/
https://www.phpc.cam.ac.uk/pcu/tag/lupus/feed/19 Feb 2024: the University of Cambridge to study the experiences of patients with lupus and related diseases. ... of Cambridge to study the experiences of patients with lupus and related diseases. -
lupus Archives - Page 2 of 2 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/tag/lupus/page/2/23 Feb 2024: How lupus patients would like to be treated: study identifies physician behaviours that help build trust and medical security. ... September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often experience persisting -
PCU Updates Archives - Page 19 of 54 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/19/24 Feb 2024: Lockdown and social distancing measures have meant that many people have little or no contact with others, which can […]. Filed Under:Tagged With:January 26, 2021. Patients with lupus – and related ... Patients with Lupus and related diseases […]. -
Group Blogs Archives - Page 14 of 51 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/14/24 Feb 2024: Primary Care Unit. Group Blogs. July 19, 2021. New research highlights the impact of current and past medical interactions – especially adverse experiences – on medication adherence amongst lupus patients and indicates the ... People with incurable -
https://www.phpc.cam.ac.uk/pcu/tag/public/feed/
https://www.phpc.cam.ac.uk/pcu/tag/public/feed/19 Feb 2024: of Cambridge to study the experiences of patients with lupus and related diseases. ... help-build-trust-and-medical-security/"Lay summary/a./li liMedically explained symptoms: a mixed method study of diagnostic, symptom and support experiences of -
Group Blogs Archives - Page 16 of 51 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/16/24 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body, -
PCU Updates Archives - Page 18 of 54 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/18/24 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body, -
Group Blogs Archives - Page 20 of 51 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/20/24 Feb 2024: It shows […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often experience persisting medical insecurity and negative healthcare-behaviours. ... These arise from traumatic -
PCU Updates Archives - Page 22 of 54 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/22/24 Feb 2024: The new plain-language framework, the For Us (For Unit Safety) framework, was developed through a multi-site ethnographic study and […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and ... These arise from traumatic diagnostic -
Experts call for urgent mental health support for people living with…
https://www.phpc.cam.ac.uk/pcu/experts-call-for-urgent-mental-health-support-for-people-living-with-long-term-autoimmune-diseases/23 Feb 2024: The team surveyed neurological and psychiatric symptoms amongst 1,853 patients with systemic auto-immune rheumatic diseases (SARDs) such as lupus and rheumatoid arthritis. ... For example, three times as many lupus patients reported experiencing suicidal -
Group Blogs Archives - Page 18 of 51 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/18/24 Feb 2024: January 26, 2021. Patients with lupus – and related systemic autoimmune rheumatic diseases, (or SARDs) – have experienced the UK’s shielding guidance as inconsistent, and many who felt they should have shielded ... Patients with Lupus and related -
Research News Archives - Page 15 of 43 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/news/research/page/15/24 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body, -
Group Blogs Archives - Page 19 of 51 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/19/24 Feb 2024: How COVID-19-related healthcare changes affected patients with systemic autoimmune rheumatic diseases, including lupus. ... December 14, 2020. During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a -
PCU Updates Archives - Page 20 of 54 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/20/24 Feb 2024: During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a strong sense of being endangered from both the virus and the redeployment of medical resources. ... in practice and challenges in providing care -
https://www.phpc.cam.ac.uk/pcu/tag/autoimmune-disease/feed/
https://www.phpc.cam.ac.uk/pcu/tag/autoimmune-disease/feed/19 Feb 2024: Updates Research News autoimmune disease lupus Melanie Sloan Mental health patient experience https://www.phpc.cam.ac.uk/pcu/?p=29635 More than half of patients with auto-immune conditions experience ... psychiatric symptoms amongst 1,853 patients with -
Research News Archives - Page 18 of 43 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/news/research/page/18/24 Feb 2024: The new plain-language framework, the For Us (For Unit Safety) framework, was developed through a multi-site ethnographic study and […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and ... These arise from traumatic diagnostic -
Research reveals pandemic's impact on healthcare for people with…
https://www.phpc.cam.ac.uk/pcu/research-reveals-the-pandemics-impact-on-healthcare-for-people-with-chronic-disease/23 Feb 2024: The delays contributed to potentially avoidable deaths: ‘I don’t think they would have died if they’d come in earlier,’ said another consultant, discussing two lupus patients. ... We found clear evidence of the pandemic’s impact on the physical -
Doctors rank patients’ own assessment of their illness as least…
https://www.phpc.cam.ac.uk/pcu/doctors-rank-patients-own-assessment-of-their-illness-as-least-important-in-diagnosis/23 Feb 2024: For example, brain scans, even in patients with severe neuropsychiatric lupus, are often completely normal. ... Many of the symptoms patients told us about – such as increased nightmares, tingling all over, severe fatigue, or feeling “spaced out” -
https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/feed/
https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/feed/19 Feb 2024: News PCU Updates Research News autoimmune disease lupus Melanie Sloan Mental health patient experience https://www.phpc.cam.ac.uk/pcu/?p=29635 More than half of patients with auto-immune ... psychiatric symptoms amongst 1,853 patients with systemic -
https://www.phpc.cam.ac.uk/pcu/feed/
https://www.phpc.cam.ac.uk/pcu/feed/19 Feb 2024: This is despite many lupus symptoms – such as headache, hallucinations and depression – being invisible and not testable, and so only captured through self-assessments./p pDoctors and patients gave many examples ... For example, brain scans, even in -
https://www.phpc.cam.ac.uk/pcu/tag/online-forum/feed/
https://www.phpc.cam.ac.uk/pcu/tag/online-forum/feed/19 Feb 2024: symptom and support experiences of patients with lupus and related systemic autoimmune diseases/a and a href="https://academic.oup.com/rheumap/article/4/2/rkaa037/5875068?searchresult=1" target="_blank" ... patients with lupus and related systemic -
patient and public involvement Archives - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/tag/patient-and-public-involvement/23 Feb 2024: In addition to my work supporting students and researchers within the PCU, I am beginning to develop […]. Filed Under:Tagged With:March 8, 2021. Lupus patient experiences Lupus patients joined a ... research team at the University of Cambridge to study -
https://www.phpc.cam.ac.uk/pcu/tag/rheumatology/feed/
https://www.phpc.cam.ac.uk/pcu/tag/rheumatology/feed/19 Feb 2024: delays contributed to potentially avoidable deaths: ‘I don’t think they would have died if they’d come in earlier,’ said another consultant, discussing two lupus patients./p pSome patients reported ... telemedicine but new patients, those with -
https://www.phpc.cam.ac.uk/pcu/tag/telephone/feed/
https://www.phpc.cam.ac.uk/pcu/tag/telephone/feed/19 Feb 2024: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%)./p pThis is the first telemedicine study to have combined data from rheumatology patients, ... telemedicine but new patients, those with worsening
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