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  2. The strength of the wolf is the pack: how a study of lupus patient…

    https://www.phpc.cam.ac.uk/pcu/lupus-patient-experiences/
    23 Feb 2024: March 8, 2021. Lupus patient experiences. Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Is it me? The impact of patient-physician interactions on lupus
  3. “I feel like I’m Alice in Wonderland”: nightmares and ‘daymares’…

    https://www.cam.ac.uk/research/news/autoimmune-disease-symptoms-nightmares-daymares-hallucinations
    Thumbnail for “I feel like I’m Alice in Wonderland”: nightmares and ‘daymares’ could be early warning signs of autoimmune disease | University of Cambridge 20 May 2024: When the researchers interviewed the patients, however, they found that three in five lupus patients and one in three with other rheumatology-related conditions reported increasingly disrupted dreaming sleep – usually vivid ... Senior study author
  4. 'Inconsistent' shielding guidance increases fears for…

    https://www.phpc.cam.ac.uk/pcu/inconsistent-shielding-guidance-increases-fears-for-vulnerable-lupus-patients-during-the-pandemic/
    23 Feb 2024: Site Search. ‘Inconsistent’ shielding guidance increases fears for vulnerable lupus patients during the pandemic. ... Primary Care Unit. Behavioural Science Group. ‘Inconsistent’ shielding guidance increases fears for vulnerable lupus patients
  5. Relationships with clinicians and adverse medical experiences affect…

    https://www.phpc.cam.ac.uk/pcu/relationships-with-clinicians-and-adverse-medical-experiences-affect-medication-adherence-amongst-lupus-patients/
    23 Feb 2024: Site Search. Relationships with clinicians and adverse medical experiences affect medication adherence amongst lupus patients. ... Primary Care Unit. Behavioural Science Group. Relationships with clinicians and adverse medical experiences affect
  6. lupus Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/lupus/
    23 Feb 2024: experiences – on medication adherence amongst lupus patients and indicates the clinician behaviours that help. ... Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with
  7. How lupus patients would like to be treated: study identifies…

    https://www.phpc.cam.ac.uk/pcu/how-lupus-patients-would-like-to-be-treated-study-identifies-physician-behaviours-that-help-build-trust-and-medical-security/
    23 Feb 2024: Site Search. How lupus patients would like to be treated: study identifies physician behaviours that help build trust and medical security. ... September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often
  8. Melanie Sloan Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/melanie-sloan/
    23 Feb 2024: New research highlights the impact of current and past medical interactions – especially adverse experiences – on medication adherence amongst lupus patients and indicates the clinician behaviours that help. ... Lupus patient experiences Lupus
  9. LUPUS UK Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/lupus-uk/
    23 Feb 2024: How COVID-19-related healthcare changes affected patients with systemic autoimmune rheumatic diseases, including lupus. ... Filed Under:Tagged With:September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often
  10. PPI Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/ppi/
    23 Feb 2024: In addition to my work supporting students and researchers within the PCU, I am beginning to develop […]. Filed Under:Tagged With:March 8, 2021. Lupus patient experiences Lupus patients joined a ... research team at the University of Cambridge to study
  11. https://www.phpc.cam.ac.uk/pcu/tag/lupus-uk/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/lupus-uk/feed/
    19 Feb 2024: em(Patient, 40s)/h4 blockquotepAt the start of the pandemic we were very concerned that SARD (including lupus) patients would be at much greater risk of COVID-19 complications and increased ... 21380 Lupus patients – and those with related systemic
  12. Melanie Sloan Archives - Page 2 of 2 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/melanie-sloan/page/2/
    23 Feb 2024: How COVID-19-related healthcare changes affected patients with systemic autoimmune rheumatic diseases, including lupus. ... Filed Under:Tagged With:September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often
  13. Research in Medicine | Faculty of Biology

    https://www.biology.cam.ac.uk/aggregator/sources/1
    30 Jun 2024: Current anti-inflammatory drugs used for this purpose suppress the body’s whole immune system, making patients more vulnerable to infection.
  14. Latest Research in Cambridge | Faculty of Biology

    https://www.biology.cam.ac.uk/aggregator/sources/2
    30 Jun 2024: Current anti-inflammatory drugs used for this purpose suppress the body’s whole immune system, making patients more vulnerable to infection.
  15. How COVID-19-related healthcare changes affected patients with…

    https://www.phpc.cam.ac.uk/pcu/the-system-abandoned-its-existing-patients-to-make-room-for-new-ones-due-to-covid-19-how-covid-19-related-healthcare-changes-affected-patients-with-systemic-autoimmune-rheumatic-diseases-includi/
    Site Search. How COVID-19-related healthcare changes affected patients with systemic autoimmune rheumatic diseases, including lupus. ... Patient, 40s). At the start of the pandemic we were very concerned that SARD (including lupus) patients would be at
  16. public Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/public/
    23 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body,
  17. https://www.phpc.cam.ac.uk/pcu/tag/lupus/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/lupus/feed/
    19 Feb 2024: For example, three times as many lupus patients reported experiencing suicidal thoughts compared to the estimate by clinicians (47% versus 15%). ... New research highlights the impact of current and past medical interactions – especially adverse
  18. News Archives - Page 21 of 76 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/page/21/
    24 Feb 2024: Inconsistent’ shielding guidance increases fears for vulnerable lupus patients during the pandemic. ... Patients with Lupus and related diseases […]. Filed Under:Tagged With:January 7, 2021.
  19. https://www2.mrc-lmb.cam.ac.uk/wp-json/wp/v2/posts/4345

    https://www2.mrc-lmb.cam.ac.uk/wp-json/wp/v2/posts/4345
  20. COVID-19 Archives - Page 3 of 5 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/covid-19/page/3/
    23 Feb 2024: Patients with Lupus and related diseases […]. Filed Under:Tagged With:January 4, 2021. ... During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a strong sense of being endangered from both the virus
  21. PCU in the media - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/pcu-in-the-media/
    23 Feb 2024: Lupus patients’ experiences in Wales: read this BBC article. ... Lupus researchers Coco Barrerre, expert patient and Dr Chris Wincup, rheumatologist, explain to on BBC Radio Cambridgeshire on 4 March 2021:online article about the experiences of lupus
  22. Roser Vento-Tormo receives Chan Zuckerberg Initiative support for…

    https://www.trophoblast.cam.ac.uk/news/roser-vento-tormo-receives-chan-zuckerberg-initiative-support-for-covid-19-study
    29 Jun 2024: Patients will include people with autoimmune diseases, such as systemic lupus erythematosus, rheumatoid arthritis, psoriasis, and multiple sclerosis, as well as immunodeficient patients, to help understand the immune response and progression
  23. Behavioural Science Group Archives - Page 2 of 6 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/page/2/
    23 Feb 2024: Primary Care Unit. Behavioural Science Group. March 8, 2021. Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus ... Filed Under:Tagged With:September 21, 2020.
  24. Human Antibodies developed for Treatment of Lupus and Anthrax - MRC…

    https://www2.mrc-lmb.cam.ac.uk/human-antibodies-developed-for-treatment-of-lupus-and-anthrax/
    Thumbnail for Human Antibodies developed for Treatment of Lupus and Anthrax - MRC Laboratory of Molecular Biology 31 Jul 2009: If approved, belimumab would become the first new drug treatment for lupus in 50 years. ... In a 52-week Phase 3 clinical study announced on July 20, 2009, patients with active systemic lupus erythematosus taking belimumab showed statistically
  25. Doctors rank patients’ own assessment of their illness as least…

    https://www.phpc.cam.ac.uk/pcu/doctors-rank-patients-own-assessment-of-their-illness-as-least-important-in-diagnosis/
    23 Feb 2024: For example, brain scans, even in patients with severe neuropsychiatric lupus, are often completely normal. ... Many of the symptoms patients told us about – such as increased nightmares, tingling all over, severe fatigue, or feeling “spaced out”
  26. “Perfect for some but disastrous for others”: Patients and clinicians …

    https://www.phpc.cam.ac.uk/pcu/perfect-for-some-but-disastrous-for-others-patients-and-clinicians-express-concerns-over-phone-and-video-consultations/
    23 Feb 2024: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%). ... patients, those with worsening symptoms or more complex conditions such as lupus need quickly accessible, face-to face appointments to manage their
  27. Experts call for urgent mental health support for people living with…

    https://neuroscience.cam.ac.uk/experts-call-for-urgent-mental-health-support-for-people-living-with-long-term-autoimmune-diseases/
    For example, three times as many lupus patients reported experiencing suicidal thoughts compared to the estimate by clinicians (47% versus 15%). ... The Rt Hon the Lord Blunkett said: “It’s both surprising and deeply concerning that almost half of
  28. News - Page 22 of 89 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/news-about-research-and-activities-at-the-primary-care-unit-research-news-medical-education-news-applied-clinical-research-news-primary-care-research-news/page/22/
    Lockdown and social distancing measures have meant that many people have little or no contact with others, which can […]. Filed Under:Tagged With:January 26, 2021. Patients with lupus – and related ... Patients with Lupus and related diseases […].
  29. News - Page 20 of 89 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/news-about-research-and-activities-at-the-primary-care-unit-research-news-medical-education-news-applied-clinical-research-news-primary-care-research-news/page/20/
    Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body,
  30. News - Page 25 of 89 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/news-about-research-and-activities-at-the-primary-care-unit-research-news-medical-education-news-applied-clinical-research-news-primary-care-research-news/page/25/
    The new plain-language framework, the For Us (For Unit Safety) framework, was developed through a multi-site ethnographic study and […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and ... These arise from traumatic diagnostic
  31. lupus Archives - Page 2 of 2 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/lupus/page/2/
    23 Feb 2024: How lupus patients would like to be treated: study identifies physician behaviours that help build trust and medical security. ... September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often experience persisting
  32. https://www.phpc.cam.ac.uk/pcu/tag/melanie-sloan/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/melanie-sloan/feed/
    19 Feb 2024: For example, three times as many lupus patients reported experiencing suicidal thoughts compared to the estimate by clinicians (47% versus 15%). ... highlights the impact of current and past medical interactions – especially adverse experiences – on
  33. https://www.phpc.cam.ac.uk/pcu/search/lupus/feed/rss2/

    https://www.phpc.cam.ac.uk/pcu/search/lupus/feed/rss2/
    19 Feb 2024: For example, three times as many lupus patients reported experiencing suicidal thoughts compared to the estimate by clinicians (47% versus 15%). ... highlights the impact of current and past medical interactions – especially adverse experiences – on
  34. Patient and public involvement (PPI) - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/work-with-us/ppi/
    23 Feb 2024: 4. Remote PPI . Tried and tested ways to engage remotely with patients and the public. ... March 8, 2021. Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases.
  35. https://www.phpc.cam.ac.uk/pcu/tag/public/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/public/feed/
    19 Feb 2024: public https://www.phpc.cam.ac.uk/pcu/?p=23264 Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with ... I’m very touched to think the group’s work is having the
  36. News Archives - Page 19 of 76 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/page/19/
    24 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body,
  37. News Archives - Page 23 of 76 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/page/23/
    24 Feb 2024: The new plain-language framework, the For Us (For Unit Safety) framework, was developed through a multi-site ethnographic study and […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and ... These arise from traumatic diagnostic
  38. https://www.phpc.cam.ac.uk/pcu/tag/sle/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/sle/feed/
    19 Feb 2024: members, LUPUS UK, psychologists and leading rheumatologists, found ‘Invalidation’ was the key theme, including from society, clinicians and the patients themselves. ... The impact of patient–physician interactions on lupus patients
  39. Featured Archives - Page 20 of 45 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/featured/page/20/
    24 Feb 2024: Lockdown and social distancing measures have meant that many people have little or no contact with others, which can […]. Filed Under:Tagged With:January 26, 2021. Patients with lupus – and related ... Patients with Lupus and related diseases […].
  40. SLE Archives – Cambridge Enterprise

    https://www.enterprise.cam.ac.uk/tag/sle/feed/
    26 Jun 2024: of Medicine at the University of Cambridge is further translated into benefits for patients with these additional chronic, debilitating diseases./p pSLE is a form of the autoimmune disease lupus, in ... Whilst lupus can be controlled through lifestyle
  41. Miranda Van Emmenis Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/miranda-van-emmenis/
    23 Feb 2024: The idea of the intervention is to help patients take their medication as prescribed and so help manage their blood pressure better. ... Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the
  42. Featured Archives - Page 19 of 45 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/featured/page/19/
    24 Feb 2024: Primary Care Unit. Featured. March 8, 2021. Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related ... diseases. Lupus is a chronic auto-immune condition
  43. Featured Archives - Page 23 of 45 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/featured/page/23/
    24 Feb 2024: How lupus patients would like to be treated: study identifies physician behaviours that help build trust and medical security. ... September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often experience persisting
  44. Concerns over medical consultations by phone and video – study |…

    https://www.cam.ac.uk/research/news/concerns-over-medical-consultations-by-phone-and-video-study
    Thumbnail for Concerns over medical consultations by phone and video – study | University of Cambridge 2 Nov 2021: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%). ... patients, those with worsening symptoms or more complex conditions such as lupus need quickly accessible, face-to face appointments to manage their
  45. GP News Archives - Page 4 of 21 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/gp-news/page/4/
    23 Feb 2024: It shows […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often experience persisting medical insecurity and negative healthcare-behaviours. ... These arise from traumatic
  46. patient experience Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/patient-experience/
    23 Feb 2024: the […]. Filed Under:Tagged With:July 19, 2021. New research highlights the impact of current and past medical interactions – especially adverse experiences – on medication adherence amongst lupus patients and indicates the ... People with
  47. Dr Melanie Sloan - Department of Public Health and Primary Care

    https://www.phpc.cam.ac.uk/people/pcu-group/researchers/melanie-sloan/
    23 Feb 2024: COVID-19 and shielding: experiences of UK patients with lupus and related diseases. ... Is it me? The impact of patient-physician interactions on lupus patients’ psychological well-being, cognition and health-care-seeking behaviour.
  48. https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/feed/

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/feed/
    19 Feb 2024: For example, three times as many lupus patients reported experiencing suicidal thoughts compared to the estimate by clinicians (47% versus 15%). ... highlights the impact of current and past medical interactions – especially adverse experiences – on
  49. Group Blogs Archives - Page 18 of 51 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/18/
    24 Feb 2024: Inconsistent’ shielding guidance increases fears for vulnerable lupus patients during the pandemic. ... Patients with Lupus and related diseases […]. Filed Under:Tagged With:January 18, 2021.
  50. PCU Updates Archives - Page 19 of 54 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/19/
    24 Feb 2024: Lockdown and social distancing measures have meant that many people have little or no contact with others, which can […]. Filed Under:Tagged With:January 26, 2021. Patients with lupus – and related ... Patients with Lupus and related diseases […].
  51. Group Blogs Archives - Page 16 of 51 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/16/
    24 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body,

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