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  2. Behavioural Science Group Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/
    23 Feb 2024: a prototype intervention to support patients with high blood pressure to take medication. ... New research highlights the impact of current and past medical interactions – especially adverse experiences – on medication adherence amongst lupus
  3. Research News Archives - Page 15 of 43 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/research/page/15/
    24 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body,
  4. Research News Archives - Page 16 of 43 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/research/page/16/
    24 Feb 2024: Lockdown and social distancing measures have meant that many people have little or no contact with others, which can […]. Filed Under:Tagged With:January 26, 2021. Patients with lupus – and related ... Patients with Lupus and related diseases […].
  5. Research News Archives - Page 18 of 43 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/research/page/18/
    24 Feb 2024: The new plain-language framework, the For Us (For Unit Safety) framework, was developed through a multi-site ethnographic study and […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and ... These arise from traumatic diagnostic
  6. https://www.phpc.cam.ac.uk/pcu/tag/ppi/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/ppi/feed/
    19 Feb 2024: between 2011 and 2017 found no substantial improvements in inequalities for primary care patients between 2011 and 2017. ... engagement with the study”, said Dr Valerie Sills/p pem“Involving patients and the public makes the research seem more real.
  7. Featured Archives - Page 16 of 45 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/featured/page/16/
    24 Feb 2024: Scenarios where […]. Filed Under:Tagged With:July 19, 2021. New research highlights the impact of current and past medical interactions – especially adverse experiences – on medication adherence amongst lupus patients and indicates ... People with
  8. Featured Archives - Page 21 of 45 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/featured/page/21/
    24 Feb 2024: How COVID-19-related healthcare changes affected patients with systemic autoimmune rheumatic diseases, including lupus. ... December 14, 2020. During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a
  9. https://www.phpc.cam.ac.uk/pcu/tag/online-forum/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/online-forum/feed/
    19 Feb 2024: members, LUPUS UK, psychologists and leading rheumatologists, found ‘Invalidation’ was the key theme, including from society, clinicians and the patients themselves. ... The impact of patient–physician interactions on lupus patients
  10. patient and public involvement Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/patient-and-public-involvement/
    23 Feb 2024: In addition to my work supporting students and researchers within the PCU, I am beginning to develop […]. Filed Under:Tagged With:March 8, 2021. Lupus patient experiences Lupus patients joined a ... research team at the University of Cambridge to study
  11. https://www.phpc.cam.ac.uk/pcu/tag/miranda-van-emmenis/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/miranda-van-emmenis/feed/
    19 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... I’m very touched to think the group’s work is having the intended effect, of
  12. Group Blogs Archives - Page 14 of 51 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/14/
    24 Feb 2024: Primary Care Unit. Group Blogs. July 19, 2021. New research highlights the impact of current and past medical interactions – especially adverse experiences – on medication adherence amongst lupus patients and indicates the ... People with incurable
  13. Group Blogs Archives - Page 19 of 51 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/19/
    24 Feb 2024: How COVID-19-related healthcare changes affected patients with systemic autoimmune rheumatic diseases, including lupus. ... December 14, 2020. During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a
  14. PCU Updates Archives - Page 20 of 54 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/20/
    24 Feb 2024: During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a strong sense of being endangered from both the virus and the redeployment of medical resources. ... in practice and challenges in providing care
  15. https://www.phpc.cam.ac.uk/pcu/tag/rheumatology/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/rheumatology/feed/
    19 Feb 2024: delays contributed to potentially avoidable deaths: ‘I don’t think they would have died if they’d come in earlier,’ said another consultant, discussing two lupus patients./p pSome patients reported ... The majority of patients were from the UK (96
  16. PCU Updates Archives - Page 15 of 54 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/15/
    24 Feb 2024: Scenarios where […]. Filed Under:Tagged With:July 19, 2021. New research highlights the impact of current and past medical interactions – especially adverse experiences – on medication adherence amongst lupus patients and indicates ... People with
  17. Research News Archives - Page 12 of 43 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/research/page/12/
    24 Feb 2024: Scenarios where […]. Filed Under:Tagged With:July 19, 2021. New research highlights the impact of current and past medical interactions – especially adverse experiences – on medication adherence amongst lupus patients and indicates ... People with
  18. Research News Archives - Page 17 of 43 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/research/page/17/
    24 Feb 2024: During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a strong sense of being endangered from both the virus and the redeployment of medical resources. ... Fraction (HFpEF) – the cause of a half of
  19. Inflammatory Bowel Disease

    https://www.citiid.cam.ac.uk/inflammatory-bowel-disease/
    23 Feb 2024: Unfortunately, prognostic markers that can reliably identify these patients are not available in clinical practice. ... Patients following an aggressive disease course have less exhaustion than those with a quiescent course.
  20. Experts call for urgent mental health support for people living with…

    https://www.cam.ac.uk/research/news/experts-call-for-urgent-mental-health-support-for-people-living-with-long-term-autoimmune-diseases
    Thumbnail for Experts call for urgent mental health support for people living with long term autoimmune diseases | University of Cambridge 26 Jul 2023: For example, three times as many lupus patients reported experiencing suicidal thoughts compared to the estimate by clinicians (47% versus 15%). ... The Rt Hon the Lord Blunkett said: "It’s both surprising and deeply concerning that almost half of
  21. https://www.phpc.cam.ac.uk/pcu/tag/telephone/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/telephone/feed/
    19 Feb 2024: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%)./p pThis is the first telemedicine study to have combined data from rheumatology patients, ... telemedicine but new patients, those with worsening
  22. https://www.phpc.cam.ac.uk/pcu/tag/patient-experience/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/patient-experience/feed/
    19 Feb 2024: For example, three times as many lupus patients reported experiencing suicidal thoughts compared to the estimate by clinicians (47% versus 15%). ... and past medical interactions – especially adverse experiences – on medication adherence amongst
  23. https://www.phpc.cam.ac.uk/pcu/tag/autoimmune-disease/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/autoimmune-disease/feed/
    19 Feb 2024: For example, three times as many lupus patients reported experiencing suicidal thoughts compared to the estimate by clinicians (47% versus 15%). ... pThe Rt Hon the Lord Blunkett said: “It’s both surprising and deeply concerning that almost half of
  24. https://www.phpc.cam.ac.uk/pcu/tag/telemedicine/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/telemedicine/feed/
    19 Feb 2024: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%)./p pThis is the first telemedicine study to have combined data from rheumatology patients, ... telemedicine but new patients, those with worsening
  25. Dr Lisa Willcocks | Cambridge Immunology Network

    https://www.immunology.cam.ac.uk/Networkdirectory/willcocks
    23 Feb 2024: Search site. Cambridge Immunology Network. Dr Lisa Willcocks. The vasculitis and lupus clinic specialises in looking after patients with diseases caused by an overactive immune system (autoimmune diseases). ... Takayasu’s arteritis. Cryogobulinaemia.
  26. https://www.phpc.cam.ac.uk/pcu/tag/virtual-ethnography/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/virtual-ethnography/feed/
    19 Feb 2024: members, LUPUS UK, psychologists and leading rheumatologists, found ‘Invalidation’ was the key theme, including from society, clinicians and the patients themselves. ... The impact of patient–physician interactions on lupus patients
  27. https://www.phpc.cam.ac.uk/pcu/tag/patient-and-public-involvement/feed…

    https://www.phpc.cam.ac.uk/pcu/tag/patient-and-public-involvement/feed/
    19 Feb 2024: pcu/?p=23264 Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... I’m very touched to think the group’s work is having the intended
  28. 23 Feb 2024: A complex autoimmune disease, lupus affects approximately five million people worldwide, primarily women. ... Potential for Personalized Treatment. Dr. Smith's group has discovered that lupus patients who develop more severe disease have a distinctive
  29. Modelling of Disease - MRC Biostatistics Unit

    https://www.mrc-bsu.cam.ac.uk/blog/modelling-of-disease/
    23 Feb 2024: An international collaboration has led to comprehensive modelling of neuropsychiatric and renal manifestations in lupus patients which has led to a much better understanding of this feature of the disease. ... Information on patterns of neuropsychiatric
  30. https://www.phpc.cam.ac.uk/pcu/tag/covid-19/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/covid-19/feed/
    19 Feb 2024: delays contributed to potentially avoidable deaths: ‘I don’t think they would have died if they’d come in earlier,’ said another consultant, discussing two lupus patients./p pSome patients reported ... The majority of patients were from the UK (96
  31. https://www.phpc.cam.ac.uk/pcu/tag/remote-consulting/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/remote-consulting/feed/
    19 Feb 2024: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%)./p pThis is the first telemedicine study to have combined data from rheumatology patients, ... telemedicine but new patients, those with worsening
  32. Diagnostic delays for people with lupus described in new study -…

    https://www.phpc.cam.ac.uk/pcu/diagnostic-delays-for-people-with-lupus-described-in-new-study/
    23 Feb 2024: The research team was led by Melanie Sloan from the Primary Care Unit, University of Cambridge, and comprised of patients, behavioural scientists, LUPUS UK staff and eminent rheumatologists. ... Lupus and other systemic autoimmune diseases are
  33. Dr Alexandre Bignon | Cambridge Immunology Network

    https://www.immunology.cam.ac.uk/Networkdirectory/bignon
    23 Feb 2024: CXCR4 dysfunction in non-alcoholic steatohepatitis in mice and patients. Clin Sci (Lond). ... Expression of CXCL12 receptors in B cells from Mexican Mestizos patients with systemic Lupus erythematosus.
  34. Dr Luis F. Quintana | Cambridge Immunology Network

    https://www.immunology.cam.ac.uk/Networkdirectory/quintana
    23 Feb 2024: Search site. Cambridge Immunology Network. Dr Luis F. Quintana. Biomarker studies in ANCA-associated vasculitis, lupus and immune-mediated renal disease. ... We perform state-of-the-art proteomic analyses on plasma and urine samples of patients with
  35. https://www.phpc.cam.ac.uk/pcu/category/featured/feed/

    https://www.phpc.cam.ac.uk/pcu/category/featured/feed/
    19 Feb 2024: This is despite many lupus symptoms – such as headache, hallucinations and depression – being invisible and not testable, and so only captured through self-assessments./p pDoctors and patients gave many examples ... For example, brain scans, even in
  36. https://www.phpc.cam.ac.uk/pcu/tag/gp/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/gp/feed/
    19 Feb 2024: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%)./p pThis is the first telemedicine study to have combined data from rheumatology patients, ... telemedicine but new patients, those with worsening
  37. All Primary Care Unit Publications - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/research/all-pcu-publications/
    23 Feb 2024: Saunders C, Davies C, Sidhu M, Sussex J. Impact of vertical integration on patients' use of hospital services in England. ... Improving the diagnostic process for patients with possible bladder and kidney cancer: a mixed-methods study to identify
  38. Dr David Jayne | Cambridge Immunology Network

    https://www.immunology.cam.ac.uk/Networkdirectory/jayne
    23 Feb 2024: Rituximab as Maintenance Treatment for Systemic Lupus Erythematosus: A Multicenter Observational Study of 147 Patients. ... Efficacy of plasma exchange and immunoadsorption in systemic lupus erythematosus and antiphospholipidsyndrome: A systematic review.
  39. https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/feed/

    https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/feed/
    19 Feb 2024: This is despite many lupus symptoms – such as headache, hallucinations and depression – being invisible and not testable, and so only captured through self-assessments./p pDoctors and patients gave many examples ... For example, brain scans, even in
  40. Publications - Behavioural Science Group - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/research/research-groups/bsg/publications/
    23 Feb 2024: COVID-19 and shielding: experiences of UK patients with lupus and related diseases. ... Is it me? The impact of patient-physician interactions on lupus patients' psychological well-being, cognition and health-care-seeking behaviour.
  41. https://www.phpc.cam.ac.uk/pcu/tag/mental-health/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/mental-health/feed/
    19 Feb 2024: For example, three times as many lupus patients reported experiencing suicidal thoughts compared to the estimate by clinicians (47% versus 15%). ... pThe Rt Hon the Lord Blunkett said: “It’s both surprising and deeply concerning that almost half of
  42. £14m investment in new stratified medicine initiatives attracts…

    https://www.mrc-bsu.cam.ac.uk/blog/minister-announces-14m-investment-in-stratified-medicine/
    23 Feb 2024: The consortia funded in this round cover a spectrum of diseases from the rare condition Systemic Lupus Erythematosus to more common conditions affecting millions of patients. ... The MASTERPLANS team will work to identify factors that predict which
  43. https://www.phpc.cam.ac.uk/pcu/category/news/research/feed/

    https://www.phpc.cam.ac.uk/pcu/category/news/research/feed/
    19 Feb 2024: This is despite many lupus symptoms – such as headache, hallucinations and depression – being invisible and not testable, and so only captured through self-assessments./p pDoctors and patients gave many examples ... For example, brain scans, even in
  44. https://www.phpc.cam.ac.uk/pcu/feed/

    https://www.phpc.cam.ac.uk/pcu/feed/
    19 Feb 2024: This is despite many lupus symptoms – such as headache, hallucinations and depression – being invisible and not testable, and so only captured through self-assessments./p pDoctors and patients gave many examples ... For example, brain scans, even in
  45. https://www.phpc.cam.ac.uk/pcu/tag/health-services/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/health-services/feed/
    19 Feb 2024: delays contributed to potentially avoidable deaths: ‘I don’t think they would have died if they’d come in earlier,’ said another consultant, discussing two lupus patients./p pSome patients reported ... Consistent reassurance to patients that they
  46. https://www.phpc.cam.ac.uk/pcu/tag/healthcare-inequalities/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/healthcare-inequalities/feed/
    19 Feb 2024: delays contributed to potentially avoidable deaths: ‘I don’t think they would have died if they’d come in earlier,’ said another consultant, discussing two lupus patients./p pSome patients reported ... Consistent reassurance to patients that they
  47. https://www.phpc.cam.ac.uk/pcu/category/group-blogs/feed/

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/feed/
    19 Feb 2024: These are often presented to patients as being ‘just in case’ of future need. ... symptom profiles of patients dying from a range of conditions in the community.
  48. CRMH - Data Management - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/research/research-groups/crmh/research/crmh-data-mangement/
    23 Feb 2024: To compare lupus and related disease patients’ wellbeing, mental health and perception of medical care with patients with RA, fibromyalgia and healthy friend controls. ... Methods. Randomized eligible patients aged 70 and over take part in screening at
  49. https://www.phpc.cam.ac.uk/pcu/category/news/feed/

    https://www.phpc.cam.ac.uk/pcu/category/news/feed/
    19 Feb 2024: This is despite many lupus symptoms – such as headache, hallucinations and depression – being invisible and not testable, and so only captured through self-assessments./p pDoctors and patients gave many examples ... For example, brain scans, even in
  50. ‘But you don’t look sick’: A qualitative analysis of the LUPUS UK…

    https://www.phpc.cam.ac.uk/pcu/but-you-dont-look-sick-a-qualitative-analysis-of-the-lupus-uk-forum/
    23 Feb 2024: Some physicians, especially lupus specialists, were reported to take the holistic view and co-ordinate effective multi-disciplinary care for these patients, who often have complex multi-system disease. ... The impact of patient–physician interactions
  51. The Listen Study - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/research/research-projects-list/other-projects/the-listen-study/
    23 Feb 2024: Primary Care Unit. The Listen Study. Title:. Listening: Involving SLE (Systemic Lupus Erythematosus) patients to empower and negotiate recognition. ... Collaborative:. Professor Stephen Sutton (University of Cambridge). Funding information. Funding

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