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LUPUS UK Archives - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/tag/lupus-uk/23 Feb 2024: How COVID-19-related healthcare changes affected patients with systemic autoimmune rheumatic diseases, including lupus. ... Filed Under:Tagged With:September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often -
https://www.phpc.cam.ac.uk/pcu/tag/lupus-uk/feed/
https://www.phpc.cam.ac.uk/pcu/tag/lupus-uk/feed/19 Feb 2024: em(Patient, 40s)/h4 blockquotepAt the start of the pandemic we were very concerned that SARD (including lupus) patients would be at much greater risk of COVID-19 complications and increased ... 21380 Lupus patients – and those with related systemic -
Research News Archives - Page 16 of 43 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/news/research/page/16/24 Feb 2024: Lockdown and social distancing measures have meant that many people have little or no contact with others, which can […]. Filed Under:Tagged With:January 26, 2021. Patients with lupus – and related ... Patients with Lupus and related diseases […]. -
Research News Archives - Page 15 of 43 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/news/research/page/15/24 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body, -
Featured Archives - Page 16 of 45 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/featured/page/16/24 Feb 2024: Scenarios where […]. Filed Under:Tagged With:July 19, 2021. New research highlights the impact of current and past medical interactions – especially adverse experiences – on medication adherence amongst lupus patients and indicates ... People with -
Research News Archives - Page 18 of 43 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/news/research/page/18/24 Feb 2024: The new plain-language framework, the For Us (For Unit Safety) framework, was developed through a multi-site ethnographic study and […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and ... These arise from traumatic diagnostic -
Featured Archives - Page 21 of 45 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/featured/page/21/24 Feb 2024: How COVID-19-related healthcare changes affected patients with systemic autoimmune rheumatic diseases, including lupus. ... December 14, 2020. During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a -
public Archives - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/tag/public/23 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body, -
News Archives - Page 21 of 76 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/news/page/21/24 Feb 2024: Inconsistent’ shielding guidance increases fears for vulnerable lupus patients during the pandemic. ... Patients with Lupus and related diseases […]. Filed Under:Tagged With:January 7, 2021. -
COVID-19 Archives - Page 3 of 5 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/tag/covid-19/page/3/23 Feb 2024: Patients with Lupus and related diseases […]. Filed Under:Tagged With:January 4, 2021. ... During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a strong sense of being endangered from both the virus -
lupus Archives - Page 2 of 2 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/tag/lupus/page/2/23 Feb 2024: How lupus patients would like to be treated: study identifies physician behaviours that help build trust and medical security. ... September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often experience persisting -
https://www.phpc.cam.ac.uk/pcu/tag/public/feed/
https://www.phpc.cam.ac.uk/pcu/tag/public/feed/19 Feb 2024: public https://www.phpc.cam.ac.uk/pcu/?p=23264 Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with ... I’m very touched to think the group’s work is having the -
patient and public involvement Archives - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/tag/patient-and-public-involvement/23 Feb 2024: In addition to my work supporting students and researchers within the PCU, I am beginning to develop […]. Filed Under:Tagged With:March 8, 2021. Lupus patient experiences Lupus patients joined a ... research team at the University of Cambridge to study -
Group Blogs Archives - Page 14 of 51 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/14/24 Feb 2024: Primary Care Unit. Group Blogs. July 19, 2021. New research highlights the impact of current and past medical interactions – especially adverse experiences – on medication adherence amongst lupus patients and indicates the ... People with incurable -
Group Blogs Archives - Page 19 of 51 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/19/24 Feb 2024: How COVID-19-related healthcare changes affected patients with systemic autoimmune rheumatic diseases, including lupus. ... December 14, 2020. During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a -
PCU Updates Archives - Page 20 of 54 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/20/24 Feb 2024: During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a strong sense of being endangered from both the virus and the redeployment of medical resources. ... in practice and challenges in providing care -
PCU Updates Archives - Page 15 of 54 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/15/24 Feb 2024: Scenarios where […]. Filed Under:Tagged With:July 19, 2021. New research highlights the impact of current and past medical interactions – especially adverse experiences – on medication adherence amongst lupus patients and indicates ... People with -
Research News Archives - Page 12 of 43 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/news/research/page/12/24 Feb 2024: Scenarios where […]. Filed Under:Tagged With:July 19, 2021. New research highlights the impact of current and past medical interactions – especially adverse experiences – on medication adherence amongst lupus patients and indicates ... People with -
Research News Archives - Page 17 of 43 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/news/research/page/17/24 Feb 2024: During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a strong sense of being endangered from both the virus and the redeployment of medical resources. ... Fraction (HFpEF) – the cause of a half of -
Melanie Sloan Archives - Page 2 of 2 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/tag/melanie-sloan/page/2/23 Feb 2024: How COVID-19-related healthcare changes affected patients with systemic autoimmune rheumatic diseases, including lupus. ... Filed Under:Tagged With:September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often -
Behavioural Science Group Archives - Page 2 of 6 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/page/2/23 Feb 2024: Primary Care Unit. Behavioural Science Group. March 8, 2021. Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus ... Filed Under:Tagged With:September 21, 2020. -
News Archives - Page 19 of 76 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/news/page/19/24 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body, -
News Archives - Page 23 of 76 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/news/page/23/24 Feb 2024: The new plain-language framework, the For Us (For Unit Safety) framework, was developed through a multi-site ethnographic study and […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and ... These arise from traumatic diagnostic -
https://www.phpc.cam.ac.uk/pcu/tag/online-forum/feed/
https://www.phpc.cam.ac.uk/pcu/tag/online-forum/feed/19 Feb 2024: members, LUPUS UK, psychologists and leading rheumatologists, found ‘Invalidation’ was the key theme, including from society, clinicians and the patients themselves. ... The impact of patient–physician interactions on lupus patients’ -
Miranda Van Emmenis Archives - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/tag/miranda-van-emmenis/23 Feb 2024: The idea of the intervention is to help patients take their medication as prescribed and so help manage their blood pressure better. ... Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the -
Featured Archives - Page 20 of 45 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/featured/page/20/24 Feb 2024: Lockdown and social distancing measures have meant that many people have little or no contact with others, which can […]. Filed Under:Tagged With:January 26, 2021. Patients with lupus – and related ... Patients with Lupus and related diseases […]. -
Featured Archives - Page 23 of 45 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/featured/page/23/24 Feb 2024: How lupus patients would like to be treated: study identifies physician behaviours that help build trust and medical security. ... September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often experience persisting -
Featured Archives - Page 19 of 45 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/featured/page/19/24 Feb 2024: Primary Care Unit. Featured. March 8, 2021. Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related ... diseases. Lupus is a chronic auto-immune condition -
https://www.phpc.cam.ac.uk/pcu/tag/melanie-sloan/feed/
https://www.phpc.cam.ac.uk/pcu/tag/melanie-sloan/feed/19 Feb 2024: For example, three times as many lupus patients reported experiencing suicidal thoughts compared to the estimate by clinicians (47% versus 15%). ... highlights the impact of current and past medical interactions – especially adverse experiences – on -
GP News Archives - Page 4 of 21 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/gp-news/page/4/23 Feb 2024: It shows […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often experience persisting medical insecurity and negative healthcare-behaviours. ... These arise from traumatic -
The Listen Study - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/research/research-projects-list/other-projects/the-listen-study/23 Feb 2024: Primary Care Unit. The Listen Study. Title:. Listening: Involving SLE (Systemic Lupus Erythematosus) patients to empower and negotiate recognition. ... Collaborative:. Professor Stephen Sutton (University of Cambridge). Funding information. Funding -
News Archives - Page 16 of 76 - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/category/news/page/16/24 Feb 2024: Scenarios where […]. Filed Under:Tagged With:July 19, 2021. New research highlights the impact of current and past medical interactions – especially adverse experiences – on medication adherence amongst lupus patients and indicates ... People with -
https://www.phpc.cam.ac.uk/pcu/tag/sle/feed/
https://www.phpc.cam.ac.uk/pcu/tag/sle/feed/19 Feb 2024: members, LUPUS UK, psychologists and leading rheumatologists, found ‘Invalidation’ was the key theme, including from society, clinicians and the patients themselves. ... The impact of patient–physician interactions on lupus patients’ -
https://www.phpc.cam.ac.uk/pcu/search/lupus/feed/rss2/
https://www.phpc.cam.ac.uk/pcu/search/lupus/feed/rss2/19 Feb 2024: For example, three times as many lupus patients reported experiencing suicidal thoughts compared to the estimate by clinicians (47% versus 15%). ... highlights the impact of current and past medical interactions – especially adverse experiences – on -
Research reveals pandemic's impact on healthcare for people with…
https://www.phpc.cam.ac.uk/pcu/research-reveals-the-pandemics-impact-on-healthcare-for-people-with-chronic-disease/23 Feb 2024: The delays contributed to potentially avoidable deaths: ‘I don’t think they would have died if they’d come in earlier,’ said another consultant, discussing two lupus patients. ... The under-reporting of mental health symptoms was also described -
https://www.phpc.cam.ac.uk/pcu/tag/telephone/feed/
https://www.phpc.cam.ac.uk/pcu/tag/telephone/feed/19 Feb 2024: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%)./p pThis is the first telemedicine study to have combined data from rheumatology patients, ... telemedicine but new patients, those with worsening -
https://www.phpc.cam.ac.uk/pcu/tag/rheumatology/feed/
https://www.phpc.cam.ac.uk/pcu/tag/rheumatology/feed/19 Feb 2024: delays contributed to potentially avoidable deaths: ‘I don’t think they would have died if they’d come in earlier,’ said another consultant, discussing two lupus patients./p pSome patients reported ... The majority of patients were from the UK (96 -
https://www.phpc.cam.ac.uk/pcu/tag/telemedicine/feed/
https://www.phpc.cam.ac.uk/pcu/tag/telemedicine/feed/19 Feb 2024: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%)./p pThis is the first telemedicine study to have combined data from rheumatology patients, ... telemedicine but new patients, those with worsening -
https://www.phpc.cam.ac.uk/pcu/tag/autoimmune-disease/feed/
https://www.phpc.cam.ac.uk/pcu/tag/autoimmune-disease/feed/19 Feb 2024: For example, three times as many lupus patients reported experiencing suicidal thoughts compared to the estimate by clinicians (47% versus 15%). ... pThe Rt Hon the Lord Blunkett said: “It’s both surprising and deeply concerning that almost half of -
Experts call for urgent mental health support for people living with…
https://www.phpc.cam.ac.uk/pcu/experts-call-for-urgent-mental-health-support-for-people-living-with-long-term-autoimmune-diseases/23 Feb 2024: For example, three times as many lupus patients reported experiencing suicidal thoughts compared to the estimate by clinicians (47% versus 15%). ... The Rt Hon the Lord Blunkett said: “It’s both surprising and deeply concerning that almost half of -
https://www.phpc.cam.ac.uk/pcu/tag/miranda-van-emmenis/feed/
https://www.phpc.cam.ac.uk/pcu/tag/miranda-van-emmenis/feed/19 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... I’m very touched to think the group’s work is having the intended effect, of -
https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/feed/
https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/feed/19 Feb 2024: For example, three times as many lupus patients reported experiencing suicidal thoughts compared to the estimate by clinicians (47% versus 15%). ... highlights the impact of current and past medical interactions – especially adverse experiences – on -
https://www.phpc.cam.ac.uk/pcu/tag/ppi/feed/
https://www.phpc.cam.ac.uk/pcu/tag/ppi/feed/19 Feb 2024: between 2011 and 2017 found no substantial improvements in inequalities for primary care patients between 2011 and 2017. ... engagement with the study”, said Dr Valerie Sills/p pem“Involving patients and the public makes the research seem more real. -
https://www.phpc.cam.ac.uk/pcu/tag/virtual-ethnography/feed/
https://www.phpc.cam.ac.uk/pcu/tag/virtual-ethnography/feed/19 Feb 2024: members, LUPUS UK, psychologists and leading rheumatologists, found ‘Invalidation’ was the key theme, including from society, clinicians and the patients themselves. ... The impact of patient–physician interactions on lupus patients’ -
https://www.phpc.cam.ac.uk/pcu/feed/
https://www.phpc.cam.ac.uk/pcu/feed/19 Feb 2024: This is despite many lupus symptoms – such as headache, hallucinations and depression – being invisible and not testable, and so only captured through self-assessments./p pDoctors and patients gave many examples ... For example, brain scans, even in -
Doctors rank patients’ own assessment of their illness as least…
https://www.phpc.cam.ac.uk/pcu/doctors-rank-patients-own-assessment-of-their-illness-as-least-important-in-diagnosis/23 Feb 2024: For example, brain scans, even in patients with severe neuropsychiatric lupus, are often completely normal. ... Many of the symptoms patients told us about – such as increased nightmares, tingling all over, severe fatigue, or feeling “spaced out” -
https://www.phpc.cam.ac.uk/pcu/tag/patient-experience/feed/
https://www.phpc.cam.ac.uk/pcu/tag/patient-experience/feed/19 Feb 2024: For example, three times as many lupus patients reported experiencing suicidal thoughts compared to the estimate by clinicians (47% versus 15%). ... and past medical interactions – especially adverse experiences – on medication adherence amongst -
“Perfect for some but disastrous for others”: Patients and clinicians …
https://www.phpc.cam.ac.uk/pcu/perfect-for-some-but-disastrous-for-others-patients-and-clinicians-express-concerns-over-phone-and-video-consultations/23 Feb 2024: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%). ... patients, those with worsening symptoms or more complex conditions such as lupus need quickly accessible, face-to face appointments to manage their -
Publications - Behavioural Science Group - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/research/research-groups/bsg/publications/23 Feb 2024: COVID-19 and shielding: experiences of UK patients with lupus and related diseases. ... Is it me? The impact of patient-physician interactions on lupus patients' psychological well-being, cognition and health-care-seeking behaviour. -
https://www.phpc.cam.ac.uk/pcu/tag/remote-consulting/feed/
https://www.phpc.cam.ac.uk/pcu/tag/remote-consulting/feed/19 Feb 2024: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%)./p pThis is the first telemedicine study to have combined data from rheumatology patients, ... telemedicine but new patients, those with worsening
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