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23 Feb 2024: Primary Care Unit. The Listen Study. Title:. Listening: Involving SLE (Systemic Lupus Erythematosus) patients to empower and negotiate recognition. ... Collaborative:. Professor Stephen Sutton (University of Cambridge). Funding information. Funding

24 Feb 2024: Scenarios where […]. Filed Under:Tagged With:July 19, 2021. New research highlights the impact of current and past medical interactions – especially adverse experiences – on medication adherence amongst lupus patients and indicates ... People with

19 Feb 2024: members, LUPUS UK, psychologists and leading rheumatologists, found ‘Invalidation’ was the key theme, including from society, clinicians and the patients themselves. ... The impact of patient–physician interactions on lupus patients’

23 Feb 2024: The delays contributed to potentially avoidable deaths: ‘I don’t think they would have died if they’d come in earlier,’ said another consultant, discussing two lupus patients. ... The under-reporting of mental health symptoms was also described

19 Feb 2024: For example, three times as many lupus patients reported experiencing suicidal thoughts compared to the estimate by clinicians (47% versus 15%). ... highlights the impact of current and past medical interactions – especially adverse experiences – on

19 Feb 2024: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%)./p pThis is the first telemedicine study to have combined data from rheumatology patients, ... telemedicine but new patients, those with worsening

19 Feb 2024: delays contributed to potentially avoidable deaths: ‘I don’t think they would have died if they’d come in earlier,’ said another consultant, discussing two lupus patients./p pSome patients reported ... The majority of patients were from the UK (96

19 Feb 2024: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%)./p pThis is the first telemedicine study to have combined data from rheumatology patients, ... telemedicine but new patients, those with worsening

19 Feb 2024: For example, three times as many lupus patients reported experiencing suicidal thoughts compared to the estimate by clinicians (47% versus 15%). ... pThe Rt Hon the Lord Blunkett said: “It’s both surprising and deeply concerning that almost half of

23 Feb 2024: For example, three times as many lupus patients reported experiencing suicidal thoughts compared to the estimate by clinicians (47% versus 15%). ... The Rt Hon the Lord Blunkett said: “It’s both surprising and deeply concerning that almost half of

19 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... I’m very touched to think the group’s work is having the intended effect, of

19 Feb 2024: For example, three times as many lupus patients reported experiencing suicidal thoughts compared to the estimate by clinicians (47% versus 15%). ... highlights the impact of current and past medical interactions – especially adverse experiences – on

19 Feb 2024: between 2011 and 2017 found no substantial improvements in inequalities for primary care patients between 2011 and 2017. ... engagement with the study”, said Dr Valerie Sills/p pem“Involving patients and the public makes the research seem more real.

19 Feb 2024: members, LUPUS UK, psychologists and leading rheumatologists, found ‘Invalidation’ was the key theme, including from society, clinicians and the patients themselves. ... The impact of patient–physician interactions on lupus patients’

19 Feb 2024: This is despite many lupus symptoms – such as headache, hallucinations and depression – being invisible and not testable, and so only captured through self-assessments./p pDoctors and patients gave many examples ... For example, brain scans, even in

23 Feb 2024: For example, brain scans, even in patients with severe neuropsychiatric lupus, are often completely normal. ... Many of the symptoms patients told us about – such as increased nightmares, tingling all over, severe fatigue, or feeling “spaced out”

19 Feb 2024: For example, three times as many lupus patients reported experiencing suicidal thoughts compared to the estimate by clinicians (47% versus 15%). ... and past medical interactions – especially adverse experiences – on medication adherence amongst

23 Feb 2024: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%). ... patients, those with worsening symptoms or more complex conditions such as lupus need quickly accessible, face-to face appointments to manage their

23 Feb 2024: COVID-19 and shielding: experiences of UK patients with lupus and related diseases. ... Is it me? The impact of patient-physician interactions on lupus patients' psychological well-being, cognition and health-care-seeking behaviour.

19 Feb 2024: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%)./p pThis is the first telemedicine study to have combined data from rheumatology patients, ... telemedicine but new patients, those with worsening

23 Feb 2024: The research team was led by Melanie Sloan from the Primary Care Unit, University of Cambridge, and comprised of patients, behavioural scientists, LUPUS UK staff and eminent rheumatologists. ... Lupus and other systemic autoimmune diseases are

19 Feb 2024: This is despite many lupus symptoms – such as headache, hallucinations and depression – being invisible and not testable, and so only captured through self-assessments./p pDoctors and patients gave many examples ... For example, brain scans, even in

19 Feb 2024: pcu/?p=23264 Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... I’m very touched to think the group’s work is having the intended

19 Feb 2024: delays contributed to potentially avoidable deaths: ‘I don’t think they would have died if they’d come in earlier,’ said another consultant, discussing two lupus patients./p pSome patients reported ... The majority of patients were from the UK (96

23 Feb 2024: Saunders C, Davies C, Sidhu M, Sussex J. Impact of vertical integration on patients' use of hospital services in England. ... Improving the diagnostic process for patients with possible bladder and kidney cancer: a mixed-methods study to identify

19 Feb 2024: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%)./p pThis is the first telemedicine study to have combined data from rheumatology patients, ... telemedicine but new patients, those with worsening

19 Feb 2024: This is despite many lupus symptoms – such as headache, hallucinations and depression – being invisible and not testable, and so only captured through self-assessments./p pDoctors and patients gave many examples ... For example, brain scans, even in

19 Feb 2024: delays contributed to potentially avoidable deaths: ‘I don’t think they would have died if they’d come in earlier,’ said another consultant, discussing two lupus patients./p pSome patients reported ... Consistent reassurance to patients that they

19 Feb 2024: For example, three times as many lupus patients reported experiencing suicidal thoughts compared to the estimate by clinicians (47% versus 15%). ... pThe Rt Hon the Lord Blunkett said: “It’s both surprising and deeply concerning that almost half of

19 Feb 2024: delays contributed to potentially avoidable deaths: ‘I don’t think they would have died if they’d come in earlier,’ said another consultant, discussing two lupus patients./p pSome patients reported ... Consistent reassurance to patients that they

19 Feb 2024: This is despite many lupus symptoms – such as headache, hallucinations and depression – being invisible and not testable, and so only captured through self-assessments./p pDoctors and patients gave many examples ... For example, brain scans, even in

19 Feb 2024: This is despite many lupus symptoms – such as headache, hallucinations and depression – being invisible and not testable, and so only captured through self-assessments./p pDoctors and patients gave many examples ... For example, brain scans, even in

19 Feb 2024: These are often presented to patients as being ‘just in case’ of future need. ... symptom profiles of patients dying from a range of conditions in the community.

23 Feb 2024: Some physicians, especially lupus specialists, were reported to take the holistic view and co-ordinate effective multi-disciplinary care for these patients, who often have complex multi-system disease. ... The impact of patient–physician interactions