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  2. Behavioural Science Group Archives - Page 2 of 6 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/page/2/
    23 Feb 2024: Primary Care Unit. Behavioural Science Group. March 8, 2021. Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus ... Patients with Lupus and related diseases […].
  3. Patient and public involvement (PPI) - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/work-with-us/ppi/
    23 Feb 2024: Primary Care Unit. Patient and public involvement (PPI). Patient and Public Involvement Page Contents: Intro / 1. ... Introduction. This page is a resource page on Patient and Public Involvement (PPI).
  4. https://www.phpc.cam.ac.uk/pcu/tag/remote-consulting/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/remote-consulting/feed/
    19 Feb 2024: p“emWaiting for a call back after 4 voicemails…feel sad and scared knowing that when I really need medical help I have no-one/em,” said one young lupus ... discussed by this female lupus patient:/p p“emI am very glad that telemedicine has become
  5. Liz Hook

    https://www.homerton.cam.ac.uk/people/liz-hook
    Thumbnail for Liz Hook PMID: 23172560. Auto-immune cholangiopathy in a juvenile patient with systemic lupus erythematosus.
  6. https://www.phpc.cam.ac.uk/pcu/tag/covid-19/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/covid-19/feed/
    19 Feb 2024: p“emWaiting for a call back after 4 voicemails…feel sad and scared knowing that when I really need medical help I have no-one/em,” said one young lupus ... discussed by this female lupus patient:/p p“emI am very glad that telemedicine has become
  7. https://www.phpc.cam.ac.uk/pcu/tag/patient-and-public-involvement/feed…

    https://www.phpc.cam.ac.uk/pcu/tag/patient-and-public-involvement/feed/
    19 Feb 2024: strength of the wolf is the pack: how a study of lupus patient experiences involved patients https://www.phpc.cam.ac.uk/pcu/lupus-patient-experiences/ ll448 Mon, 08 Mar 2021 ... pcu/?p=23264 Lupus patient experiences Lupus patients joined a research team
  8. https://www.phpc.cam.ac.uk/pcu/tag/gp/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/gp/feed/
    19 Feb 2024: p“emWaiting for a call back after 4 voicemails…feel sad and scared knowing that when I really need medical help I have no-one/em,” said one young lupus ... discussed by this female lupus patient:/p p“emI am very glad that telemedicine has become
  9. https://www.phpc.cam.ac.uk/pcu/tag/autoimmune-disease/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/autoimmune-disease/feed/
    19 Feb 2024: Updates Research News autoimmune disease lupus Melanie Sloan Mental health patient experience https://www.phpc.cam.ac.uk/pcu/?p=29635 More than half of patients with auto-immune conditions experience ... psychiatric symptoms amongst 1,853 patients with
  10. ‘But you don’t look sick’: A qualitative analysis of the LUPUS UK…

    https://www.phpc.cam.ac.uk/pcu/but-you-dont-look-sick-a-qualitative-analysis-of-the-lupus-uk-forum/
    23 Feb 2024: The paper encapsulates the shared experiences of people living with lupus and importantly identifies issues faced by many and provides recommendations for improved patient care and wellbeing. ... We’re pleased to see the value of online patient
  11. All Primary Care Unit Publications - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/research/all-pcu-publications/
    23 Feb 2024: Patient experience of follow-up after surgery for kidney cancer: a focus group study. ... Implementing patient-centred outcome measures in palliative care clinical practice for adults (IMPCOM): Protocol for an update systematic review of facilitators and
  12. https://www.phpc.cam.ac.uk/pcu/tag/patient-experience/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/patient-experience/feed/
    19 Feb 2024: Updates Research News autoimmune disease lupus Melanie Sloan Mental health patient experience https://www.phpc.cam.ac.uk/pcu/?p=29635 More than half of patients with auto-immune conditions experience ... guestAccessKey=090b9218-6d9f-4919-88e7-dfaec1b1d0d6
  13. https://www.phpc.cam.ac.uk/pcu/tag/health-services/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/health-services/feed/
    19 Feb 2024: A patient with lupus explained:‘I would never try and report it or ask them for help again…they just ignored me… you stop asking…it makes me feel worried for ... on the telephone.’ (Patient with lupus)/p pClinicians also discussed concerns
  14. https://www.phpc.cam.ac.uk/pcu/tag/healthcare-inequalities/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/healthcare-inequalities/feed/
    19 Feb 2024: A patient with lupus explained:‘I would never try and report it or ask them for help again…they just ignored me… you stop asking…it makes me feel worried for ... on the telephone.’ (Patient with lupus)/p pClinicians also discussed concerns
  15. CRMH - Data Management - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/research/research-groups/crmh/research/crmh-data-mangement/
    23 Feb 2024: To investigate key factors in effects of the disease and patient-physician interactions pre and post diagnosis on patient behaviour, mental health/ wellbeing and disease acceptance. ... To compare lupus and related disease patients’ wellbeing, mental
  16. Publications - Behavioural Science Group - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/research/research-groups/bsg/publications/
    23 Feb 2024: Medication decision-making and adherence in lupus: Patient-physician discordance and the impact of previous 'Adverse Medical Experiences'. ... Is it me? The impact of patient-physician interactions on lupus patients' psychological well-being, cognition
  17. https://www.phpc.cam.ac.uk/pcu/category/featured/feed/

    https://www.phpc.cam.ac.uk/pcu/category/featured/feed/
    19 Feb 2024: The results showed many areas where patient reports were under-valued./p pThe doctors were asked to rank 13 types of evidence used to diagnose neuropsychiatric lupus, a type of lupus ... This included blood tests, observations by family or friends, and
  18. https://www.phpc.cam.ac.uk/pcu/tag/mental-health/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/mental-health/feed/
    19 Feb 2024: Updates Research News autoimmune disease lupus Melanie Sloan Mental health patient experience https://www.phpc.cam.ac.uk/pcu/?p=29635 More than half of patients with auto-immune conditions experience ... psychiatric symptoms amongst 1,853 patients with
  19. https://www.phpc.cam.ac.uk/pcu/category/group-blogs/feed/

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/feed/
    19 Feb 2024: 76 to £229.82, with a median of £43.17 per patient, higher than was previously thought. ... For example, it might be possible to reduce the number of vials of anti-emetics issued if nausea and vomiting is not anticipated for the individual patient.
  20. https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/feed/

    https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/feed/
    19 Feb 2024: The results showed many areas where patient reports were under-valued./p pThe doctors were asked to rank 13 types of evidence used to diagnose neuropsychiatric lupus, a type of lupus ... This included blood tests, observations by family or friends, and
  21. Research reveals pandemic's impact on healthcare for people with…

    https://www.phpc.cam.ac.uk/pcu/research-reveals-the-pandemics-impact-on-healthcare-for-people-with-chronic-disease/
    23 Feb 2024: A patient with lupus explained: ‘I would never try and report it or ask them for help again…they just ignored me… you stop asking…it makes me feel worried for ... on the telephone.’ (Patient with lupus).

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