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  2. Behavioural Science Group Archives - Page 2 of 6 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/page/2/
    23 Feb 2024: Primary Care Unit. Behavioural Science Group. March 8, 2021. Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus ... Patients with Lupus and related diseases […].
  3. patient and public involvement Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/patient-and-public-involvement/
    23 Feb 2024: In addition to my work supporting students and researchers within the PCU, I am beginning to develop […]. Filed Under:Tagged With:March 8, 2021. Lupus patient experiences Lupus patients joined a ... research team at the University of Cambridge to study
  4. https://www.phpc.cam.ac.uk/pcu/tag/rheumatology/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/rheumatology/feed/
    19 Feb 2024: p“emWaiting for a call back after 4 voicemails…feel sad and scared knowing that when I really need medical help I have no-one/em,” said one young lupus ... discussed by this female lupus patient:/p p“emI am very glad that telemedicine has become
  5. https://www.phpc.cam.ac.uk/pcu/tag/lupus/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/lupus/feed/
    19 Feb 2024: guestAccessKey=090b9218-6d9f-4919-88e7-dfaec1b1d0d6"Medication decision-making and adherence in lupus: Patient-physician discordance and the impact of previous ‘Adverse Medical Experiences/a/em’ 13 July 2021 in Rheumatology. ... s/photos/take-my-medic
  6. https://www.phpc.cam.ac.uk/pcu/tag/online-forum/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/online-forum/feed/
    19 Feb 2024: The paper encapsulates the shared experiences of people living with lupus and importantly identifies issues faced by many and provides recommendations for improved patient care and wellbeing. ... We’re pleased to see the value of online patient
  7. Research reveals pandemic's impact on healthcare for people with…

    https://www.phpc.cam.ac.uk/pcu/research-reveals-the-pandemics-impact-on-healthcare-for-people-with-chronic-disease/
    23 Feb 2024: A patient with lupus explained: ‘I would never try and report it or ask them for help again…they just ignored me… you stop asking…it makes me feel worried for ... on the telephone.’ (Patient with lupus).
  8. https://www.phpc.cam.ac.uk/pcu/tag/melanie-sloan/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/melanie-sloan/feed/
    19 Feb 2024: p“emWaiting for a call back after 4 voicemails…feel sad and scared knowing that when I really need medical help I have no-one/em,” said one young lupus ... discussed by this female lupus patient:/p p“emI am very glad that telemedicine has become
  9. https://www.phpc.cam.ac.uk/pcu/tag/lupus-uk/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/lupus-uk/feed/
    19 Feb 2024: The paper encapsulates the shared experiences of people living with lupus and importantly identifies issues faced by many and provides recommendations for improved patient care and wellbeing. ... We’re pleased to see the value of online patient
  10. https://www.phpc.cam.ac.uk/pcu/tag/miranda-van-emmenis/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/miranda-van-emmenis/feed/
    19 Feb 2024: wolf is the pack: how a study of lupus patient experiences involved patients https://www.phpc.cam.ac.uk/pcu/lupus-patient-experiences/ ll448 Mon, 08 Mar 2021 15:32:45 ... Lupus patient experiences Lupus patients joined a research team at the University
  11. https://www.phpc.cam.ac.uk/pcu/search/lupus/feed/rss2/

    https://www.phpc.cam.ac.uk/pcu/search/lupus/feed/rss2/
    19 Feb 2024: p“emWaiting for a call back after 4 voicemails…feel sad and scared knowing that when I really need medical help I have no-one/em,” said one young lupus ... discussed by this female lupus patient:/p p“emI am very glad that telemedicine has become
  12. “Perfect for some but disastrous for others”: Patients and clinicians …

    https://www.phpc.cam.ac.uk/pcu/perfect-for-some-but-disastrous-for-others-patients-and-clinicians-express-concerns-over-phone-and-video-consultations/
    23 Feb 2024: Waiting for a call back after 4 voicemails…feel sad and scared knowing that when I really need medical help I have no-one,” said one young lupus patient. ... discussed by this female lupus patient:.
  13. https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/feed/

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/feed/
    19 Feb 2024: p“emWaiting for a call back after 4 voicemails…feel sad and scared knowing that when I really need medical help I have no-one/em,” said one young lupus ... discussed by this female lupus patient:/p p“emI am very glad that telemedicine has become
  14. Doctors rank patients’ own assessment of their illness as least…

    https://www.phpc.cam.ac.uk/pcu/doctors-rank-patients-own-assessment-of-their-illness-as-least-important-in-diagnosis/
    23 Feb 2024: The results showed many areas where patient reports were under-valued. The doctors were asked to rank 13 types of evidence used to diagnose neuropsychiatric lupus, a type of lupus that ... Neuropsychiatric lupus explained. ‘Objective’ doesn’t
  15. https://www.phpc.cam.ac.uk/pcu/tag/remote-consulting/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/remote-consulting/feed/
    19 Feb 2024: p“emWaiting for a call back after 4 voicemails…feel sad and scared knowing that when I really need medical help I have no-one/em,” said one young lupus ... discussed by this female lupus patient:/p p“emI am very glad that telemedicine has become
  16. https://www.phpc.cam.ac.uk/pcu/tag/ppi/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/ppi/feed/
    19 Feb 2024: problems among sexual minority adults, using data from the nationally representative English General Practice Patient Survey. ... In particular, PPI helped make the research more acceptable and accessible to the target patient group.
  17. https://www.phpc.cam.ac.uk/pcu/tag/autoimmune-disease/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/autoimmune-disease/feed/
    19 Feb 2024: Updates Research News autoimmune disease lupus Melanie Sloan Mental health patient experience https://www.phpc.cam.ac.uk/pcu/?p=29635 More than half of patients with auto-immune conditions experience ... psychiatric symptoms amongst 1,853 patients with
  18. ‘But you don’t look sick’: A qualitative analysis of the LUPUS UK…

    https://www.phpc.cam.ac.uk/pcu/but-you-dont-look-sick-a-qualitative-analysis-of-the-lupus-uk-forum/
    23 Feb 2024: The paper encapsulates the shared experiences of people living with lupus and importantly identifies issues faced by many and provides recommendations for improved patient care and wellbeing. ... We’re pleased to see the value of online patient
  19. https://www.phpc.cam.ac.uk/pcu/tag/gp/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/gp/feed/
    19 Feb 2024: p“emWaiting for a call back after 4 voicemails…feel sad and scared knowing that when I really need medical help I have no-one/em,” said one young lupus ... discussed by this female lupus patient:/p p“emI am very glad that telemedicine has become
  20. https://www.phpc.cam.ac.uk/pcu/tag/covid-19/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/covid-19/feed/
    19 Feb 2024: p“emWaiting for a call back after 4 voicemails…feel sad and scared knowing that when I really need medical help I have no-one/em,” said one young lupus ... discussed by this female lupus patient:/p p“emI am very glad that telemedicine has become
  21. All Primary Care Unit Publications - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/research/all-pcu-publications/
    23 Feb 2024: Patient experience of follow-up after surgery for kidney cancer: a focus group study. ... Implementing patient-centred outcome measures in palliative care clinical practice for adults (IMPCOM): Protocol for an update systematic review of facilitators and

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