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  2. LUPUS UK Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/lupus-uk/
    23 Feb 2024: This in-depth analysis of the LUPUS UK forum, led by Melanie Sloan from the BSG and involving forum members, LUPUS UK, psychologists and leading rheumatologists, found ‘Invalidation’ was the key […]. ... These arise from traumatic diagnostic
  3. Melanie Sloan Archives - Page 2 of 2 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/melanie-sloan/page/2/
    23 Feb 2024: This in-depth analysis of the LUPUS UK forum, led by Melanie Sloan from the BSG and involving forum members, LUPUS UK, psychologists and leading rheumatologists, found ‘Invalidation’ was the key […]. ... These arise from traumatic diagnostic
  4. SLE Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/sle/
    23 Feb 2024: But you don’t look sick’: A qualitative analysis of the LUPUS UK forum. ... This in-depth analysis of the LUPUS UK forum, led by Melanie Sloan from the BSG and involving forum members, LUPUS UK, psychologists and leading rheumatologists, found
  5. lupus Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/lupus/
    23 Feb 2024: Patients with lupus – and related systemic autoimmune rheumatic diseases, (or SARDs) – have experienced the UK’s shielding guidance as inconsistent, and many who felt they should have shielded were not advised ... This in-depth analysis of the
  6. online forum Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/online-forum/
    23 Feb 2024: But you don’t look sick’: A qualitative analysis of the LUPUS UK forum. ... This in-depth analysis of the LUPUS UK forum, led by Melanie Sloan from the BSG and involving forum members, LUPUS UK, psychologists and leading rheumatologists, found
  7. https://www.phpc.cam.ac.uk/pcu/tag/lupus/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/lupus/feed/
    19 Feb 2024: News autoimmune disease lupus Melanie Sloan Mental health patient experience https://www.phpc.cam.ac.uk/pcu/?p=29635 More than half of patients with auto-immune conditions experience mental health ... News COVID-19 lupus LUPUS UK Melanie Sloan https://www
  8. https://www.phpc.cam.ac.uk/pcu/tag/sle/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/sle/feed/
    19 Feb 2024: lupus LUPUS UK Melanie Sloan online forum SLE https://www.phpc.cam.ac.uk/pcu/?p=20546 People living with lupus report frequent lengthy time delays between their first symptoms and ... by Melanie Sloan from the Primary Care Unit, University of Cambridge,
  9. Behavioural Science Group Archives - Page 2 of 6 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/page/2/
    23 Feb 2024: This in-depth analysis of the LUPUS UK forum, led by Melanie Sloan from the BSG and involving forum members, LUPUS UK, psychologists and leading rheumatologists, found ‘Invalidation’ was the key […]. ... These arise from traumatic diagnostic
  10. News Archives - Page 23 of 76 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/page/23/
    24 Feb 2024: But you don’t look sick’: A qualitative analysis of the LUPUS UK forum. ... This in-depth analysis of the LUPUS UK forum, led by Melanie Sloan from the BSG and involving forum members, LUPUS UK, psychologists and leading rheumatologists, found
  11. https://www.phpc.cam.ac.uk/pcu/tag/lupus-uk/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/lupus-uk/feed/
    19 Feb 2024: ll448 Mon, 14 Dec 2020 16:24:36 0000 Behavioural Science Group Featured News PCU Updates Research News COVID-19 lupus LUPUS UK Melanie Sloan ... Group Featured News Research News lupus LUPUS UK Melanie Sloan online forum SLE virtual ethnography
  12. https://www.phpc.cam.ac.uk/pcu/tag/online-forum/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/online-forum/feed/
    19 Feb 2024: lupus LUPUS UK Melanie Sloan online forum SLE https://www.phpc.cam.ac.uk/pcu/?p=20546 People living with lupus report frequent lengthy time delays between their first symptoms and ... by Melanie Sloan from the Primary Care Unit, University of Cambridge,
  13. Group Blogs Archives - Page 20 of 51 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/20/
    24 Feb 2024: This in-depth analysis of the LUPUS UK forum, led by Melanie Sloan from the BSG and involving forum members, LUPUS UK, psychologists and leading rheumatologists, found ‘Invalidation’ was the key […]. ... These arise from traumatic diagnostic
  14. Research News Archives - Page 18 of 43 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/research/page/18/
    24 Feb 2024: But you don’t look sick’: A qualitative analysis of the LUPUS UK forum. ... This in-depth analysis of the LUPUS UK forum, led by Melanie Sloan from the BSG and involving forum members, LUPUS UK, psychologists and leading rheumatologists, found
  15. https://www.phpc.cam.ac.uk/pcu/tag/melanie-sloan/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/melanie-sloan/feed/
    19 Feb 2024: Updates Research News autoimmune disease lupus Melanie Sloan Mental health patient experience https://www.phpc.cam.ac.uk/pcu/?p=29635 More than half of patients with auto-immune conditions experience ... Jul 2021 10:05:38 0000 Behavioural Science Group
  16. lupus Archives - Page 2 of 2 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/lupus/page/2/
    23 Feb 2024: These arise from traumatic diagnostic journeys and negative medical interactions, according to an in-depth study of patients’ experiences led by the University of Cambridge and Lupus UK. ... People living with lupus report frequent lengthy time delays
  17. virtual ethnography Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/virtual-ethnography/
    23 Feb 2024: But you don’t look sick’: A qualitative analysis of the LUPUS UK forum. ... This in-depth analysis of the LUPUS UK forum, led by Melanie Sloan from the BSG and involving forum members, LUPUS UK, psychologists and leading rheumatologists, found
  18. https://www.phpc.cam.ac.uk/pcu/tag/virtual-ethnography/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/virtual-ethnography/feed/
    19 Feb 2024: This in-depth analysis of the LUPUS UK forum, led by Melanie Sloan from the BSG and involving forum members, LUPUS UK, psychologists and leading rheumatologists, found ‘Invalidation’ was the key […] ... can improve medical knowledge and
  19. Featured Archives - Page 22 of 45 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/featured/page/22/
    24 Feb 2024: This in-depth analysis of the LUPUS UK forum, led by Melanie Sloan from the BSG and involving forum members, LUPUS UK, psychologists and leading rheumatologists, found ‘Invalidation’ was the key […]. ... up other forms of cancer, according to new
  20. https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/feed/

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/feed/
    19 Feb 2024: News PCU Updates Research News autoimmune disease lupus Melanie Sloan Mental health patient experience https://www.phpc.cam.ac.uk/pcu/?p=29635 More than half of patients with auto-immune ... Jul 2021 10:05:38 0000 Behavioural Science Group Featured News
  21. https://www.phpc.cam.ac.uk/pcu/search/lupus/feed/rss2/

    https://www.phpc.cam.ac.uk/pcu/search/lupus/feed/rss2/
    19 Feb 2024: Jul 2021 10:05:38 0000 Behavioural Science Group Featured News PCU Updates Research News lupus Melanie Sloan patient experience https://www.phpc.cam.ac.uk/pcu/?p=24288 New research ... lupus Melanie Sloan Miranda Van Emmenis patient and public
  22. Diagnostic delays for people with lupus described in new study -…

    https://www.phpc.cam.ac.uk/pcu/diagnostic-delays-for-people-with-lupus-described-in-new-study/
    23 Feb 2024: The research team was led by Melanie Sloan from the Primary Care Unit, University of Cambridge, and comprised of patients, behavioural scientists, LUPUS UK staff and eminent rheumatologists. ... Melanie Sloan, research associate, Behavioural Science Group
  23. News Archives - Page 21 of 76 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/page/21/
    24 Feb 2024: January 26, 2021. Patients with lupus – and related systemic autoimmune rheumatic diseases, (or SARDs) – have experienced the UK’s shielding guidance as inconsistent, and many who felt they should have shielded ... Patients with Lupus and related
  24. News Archives - Page 26 of 76 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/page/26/
    24 Feb 2024: May 19, 2020. Digital interventions are effective in helping patients in primary care take the medicines they have been prescribed, according to the first UK study of whether highly tailored text ... with lupus report frequent lengthy time delays between
  25. COVID-19 Archives - Page 3 of 5 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/covid-19/page/3/
    23 Feb 2024: Patients with Lupus and related diseases […]. Filed Under:Tagged With:January 4, 2021. ... During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a strong sense of being endangered from both the virus
  26. Featured Archives - Page 21 of 45 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/featured/page/21/
    24 Feb 2024: How COVID-19-related healthcare changes affected patients with systemic autoimmune rheumatic diseases, including lupus. ... December 14, 2020. During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a
  27. Featured Archives - Page 23 of 45 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/featured/page/23/
    24 Feb 2024: How lupus patients would like to be treated: study identifies physician behaviours that help build trust and medical security. ... These arise from traumatic diagnostic journeys and negative medical interactions, according to an in-depth study of
  28. Featured Archives - Page 26 of 45 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/featured/page/26/
    24 Feb 2024: with lupus report frequent lengthy time delays between their first symptoms and their lupus diagnosis, in new research from the University of Cambridge and LUPUS UK. ... At least a quarter of the UK population have more than one long-term disease, and
  29. GP News Archives - Page 4 of 21 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/gp-news/page/4/
    23 Feb 2024: It shows […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often experience persisting medical insecurity and negative healthcare-behaviours. ... These arise from traumatic
  30. GP News Archives - Page 6 of 21 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/gp-news/page/6/
    24 Feb 2024: May 19, 2020. Digital interventions are effective in helping patients in primary care take the medicines they have been prescribed, according to the first UK study of whether highly tailored text ... with lupus report frequent lengthy time delays between
  31. Group Blogs Archives - Page 19 of 51 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/19/
    24 Feb 2024: How COVID-19-related healthcare changes affected patients with systemic autoimmune rheumatic diseases, including lupus. ... December 14, 2020. During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a
  32. PCU Updates Archives - Page 20 of 54 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/20/
    24 Feb 2024: During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a strong sense of being endangered from both the virus and the redeployment of medical resources.
  33. Group Blogs Archives - Page 23 of 51 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/23/
    24 Feb 2024: With:May 19, 2020. Digital interventions are effective in helping patients in primary care take the medicines they have been prescribed, according to the first UK study of whether highly tailored ... with lupus report frequent lengthy time delays between
  34. PCU Updates Archives - Page 25 of 54 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/25/
    24 Feb 2024: With:May 19, 2020. Digital interventions are effective in helping patients in primary care take the medicines they have been prescribed, according to the first UK study of whether highly tailored ... with lupus report frequent lengthy time delays between
  35. PCU Updates Archives - Page 22 of 54 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/22/
    24 Feb 2024: The new plain-language framework, the For Us (For Unit Safety) framework, was developed through a multi-site ethnographic study and […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and ... These arise from traumatic diagnostic
  36. Research News Archives - Page 17 of 43 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/research/page/17/
    24 Feb 2024: During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a strong sense of being endangered from both the virus and the redeployment of medical resources.
  37. Research News Archives - Page 21 of 43 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/research/page/21/
    24 Feb 2024: May 19, 2020. Digital interventions are effective in helping patients in primary care take the medicines they have been prescribed, according to the first UK study of whether highly tailored text ... with lupus report frequent lengthy time delays between
  38. Behavioural Science Group Archives - Page 3 of 6 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/page/3/
    23 Feb 2024: Primary Care Unit. Behavioural Science Group. May 14, 2020. People living with lupus report frequent lengthy time delays between their first symptoms and their lupus diagnosis, in new research from the ... University of Cambridge and LUPUS UK.
  39. The strength of the wolf is the pack: how a study of lupus patient…

    https://www.phpc.cam.ac.uk/pcu/lupus-patient-experiences/
    23 Feb 2024: Mo, patient representative, and Melanie Sloan, lead researcher, from the Primary Care Unit in Cambridge, explained to Miranda Van Emmenis how the team worked to learn about lupus patient experiences. ... For more information about the LISTEN study please
  40. ‘But you don’t look sick’: A qualitative analysis of the LUPUS UK

    https://www.phpc.cam.ac.uk/pcu/but-you-dont-look-sick-a-qualitative-analysis-of-the-lupus-uk-forum/
    23 Feb 2024: Site Search. ‘But you don’t look sick’: A qualitative analysis of the LUPUS UK forum. ... This in-depth analysis of the LUPUS UK forum, led by Melanie Sloan from the BSG and involving forum members, LUPUS UK, psychologists and leading
  41. https://www.phpc.cam.ac.uk/pcu/tag/public/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/public/feed/
    19 Feb 2024: The team used mixed methods including surveys, qualitative interviews with patients and healthcare providers, and ethnographic analyses of LUPUS UK forum posts./h4 h4Mo, patient representative, and Melanie Sloan, lead researcher, ... href="https://www.php
  42. https://www.phpc.cam.ac.uk/pcu/tag/autoimmune-disease/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/autoimmune-disease/feed/
    19 Feb 2024: Updates Research News autoimmune disease lupus Melanie Sloan Mental health patient experience https://www.phpc.cam.ac.uk/pcu/?p=29635 More than half of patients with auto-immune conditions experience ... It is awful living like this…. All just feels
  43. https://www.phpc.cam.ac.uk/pcu/tag/miranda-van-emmenis/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/miranda-van-emmenis/feed/
    19 Feb 2024: 0000 Behavioural Science Group Featured News PCU Updates Research News lupus Melanie Sloan Miranda Van Emmenis patient and public involvement PPI public https://www.phpc.cam.ac.uk/pcu/?p=23264 ... The team used mixed methods including surveys,
  44. How lupus patients would like to be treated: study identifies…

    https://www.phpc.cam.ac.uk/pcu/how-lupus-patients-would-like-to-be-treated-study-identifies-physician-behaviours-that-help-build-trust-and-medical-security/
    23 Feb 2024: The research was funded by LUPUS UK and led by Melanie Sloan from the Primary Care Unit (Cambridge), and two of the most eminent UK specialists, Caroline Gordon (Birmingham) and David ... Caroline Gordon, Emeritus Professor of Rheumatology, University of
  45. https://www.phpc.cam.ac.uk/pcu/tag/patient-experience/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/patient-experience/feed/
    19 Feb 2024: Updates Research News autoimmune disease lupus Melanie Sloan Mental health patient experience https://www.phpc.cam.ac.uk/pcu/?p=29635 More than half of patients with auto-immune conditions experience ... 0000 Behavioural Science Group Featured News PCU
  46. https://www.phpc.cam.ac.uk/pcu/tag/ppi/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/ppi/feed/
    19 Feb 2024: communities. Helpline: 0345 3 30 30 30/p pa href="https://www.stonewall.org.uk/help-and-advice"Stonewall/a.Information and support for LGBT communities and their allies. ... of PPI representatives recruited from the four CanTest UK University locations,
  47. https://www.phpc.cam.ac.uk/pcu/tag/patient-and-public-involvement/feed…

    https://www.phpc.cam.ac.uk/pcu/tag/patient-and-public-involvement/feed/
    19 Feb 2024: 15:32:45 0000 Behavioural Science Group Featured News PCU Updates Research News lupus Melanie Sloan Miranda Van Emmenis patient and public involvement PPI public ... The team used mixed methods including surveys, qualitative interviews with patients and
  48. Relationships with clinicians and adverse medical experiences affect…

    https://www.phpc.cam.ac.uk/pcu/relationships-with-clinicians-and-adverse-medical-experiences-affect-medication-adherence-amongst-lupus-patients/
    23 Feb 2024: medications. The study was led by Melanie Sloan, researcher at the Primary Care Unit, University of Cambridge, with a research team that included rheumatologists, behavioural scientists and patients. ... This research was funded by LUPUS UK. Read the
  49. https://www.phpc.cam.ac.uk/pcu/tag/mental-health/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/mental-health/feed/
    19 Feb 2024: Updates Research News autoimmune disease lupus Melanie Sloan Mental health patient experience https://www.phpc.cam.ac.uk/pcu/?p=29635 More than half of patients with auto-immune conditions experience ... It is awful living like this…. All just feels
  50. https://www.phpc.cam.ac.uk/pcu/category/featured/feed/

    https://www.phpc.cam.ac.uk/pcu/category/featured/feed/
    19 Feb 2024: pcu/?p=30297 Ground Picture/Shutterstock Melanie Sloan, University of Cambridge and Rupert Harwood, Swansea University Medical paternalism, where “doctors know best” and patient views and opinions are considered to be ... ac.uk/people/pcu-group/resear
  51. https://www.phpc.cam.ac.uk/pcu/category/group-blogs/feed/

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/feed/
    19 Feb 2024: uk/pcu/?p=30191 This blog was written by Dihini Pilimatalawwe, a final year undergraduate student at the University of Bath studying psychology. ... Anticipatory prescribing in community end-of-life care in the UK and Ireland during the COVID-19 pandemic:

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