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  2. GP News Archives - Page 4 of 21 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/gp-news/page/4/
    23 Feb 2024: It shows […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often experience persisting medical insecurity and negative healthcare-behaviours. ... These arise from traumatic
  3. GP News Archives - Page 6 of 21 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/gp-news/page/6/
    24 Feb 2024: May 19, 2020. Digital interventions are effective in helping patients in primary care take the medicines they have been prescribed, according to the first UK study of whether highly tailored text ... with lupus report frequent lengthy time delays between
  4. https://www.phpc.cam.ac.uk/pcu/tag/ppi/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/ppi/feed/
    19 Feb 2024: communities. Helpline: 0345 3 30 30 30/p pa href="https://www.stonewall.org.uk/help-and-advice"Stonewall/a.Information and support for LGBT communities and their allies. ... of PPI representatives recruited from the four CanTest UK University locations,
  5. https://www.phpc.cam.ac.uk/pcu/tag/miranda-van-emmenis/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/miranda-van-emmenis/feed/
    19 Feb 2024: I spent several months on the LUPUS UK forum and then I invited five of the most expert, objective and compassionate forum members to join the PPI team. ... pcu/diagnostic-delays-for-people-with-lupus-described-in-new-study/"Lay summary/a./li li‘But
  6. Group Blogs Archives - Page 23 of 51 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/23/
    24 Feb 2024: With:May 19, 2020. Digital interventions are effective in helping patients in primary care take the medicines they have been prescribed, according to the first UK study of whether highly tailored ... with lupus report frequent lengthy time delays between
  7. PCU Updates Archives - Page 25 of 54 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/25/
    24 Feb 2024: With:May 19, 2020. Digital interventions are effective in helping patients in primary care take the medicines they have been prescribed, according to the first UK study of whether highly tailored ... with lupus report frequent lengthy time delays between
  8. PCU Updates Archives - Page 22 of 54 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/22/
    24 Feb 2024: The new plain-language framework, the For Us (For Unit Safety) framework, was developed through a multi-site ethnographic study and […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and ... These arise from traumatic diagnostic
  9. Research News Archives - Page 21 of 43 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/research/page/21/
    24 Feb 2024: May 19, 2020. Digital interventions are effective in helping patients in primary care take the medicines they have been prescribed, according to the first UK study of whether highly tailored text ... with lupus report frequent lengthy time delays between
  10. Experts call for urgent mental health support for people living with…

    https://www.cam.ac.uk/research/news/experts-call-for-urgent-mental-health-support-for-people-living-with-long-term-autoimmune-diseases
    Thumbnail for Experts call for urgent mental health support for people living with long term autoimmune diseases | University of Cambridge 26 Jul 2023: For example, three times as many lupus patients reported experiencing suicidal thoughts compared to the estimate by clinicians (47% versus 15%). ... The research was funded by The Lupus Trust and LUPUS UK.
  11. Melanie Sloan Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/melanie-sloan/
    23 Feb 2024: People with incurable systemic auto-immune conditions, including lupus, often need lifelong medications to slow or stop the progression of the disease. ... Patients with lupus – and related systemic autoimmune rheumatic diseases, (or SARDs) – have
  12. Behavioural Science Group Archives - Page 3 of 6 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/page/3/
    23 Feb 2024: Primary Care Unit. Behavioural Science Group. May 14, 2020. People living with lupus report frequent lengthy time delays between their first symptoms and their lupus diagnosis, in new research from the ... University of Cambridge and LUPUS UK.
  13. Dr Melanie Sloan - Department of Public Health and Primary Care

    https://www.phpc.cam.ac.uk/people/pcu-group/researchers/melanie-sloan/
    23 Feb 2024: She is currently funded by LUPUS UK and The lupus trust on several research studies. ... COVID-19 and shielding: experiences of UK patients with lupus and related diseases.
  14. PCU in the media - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/pcu-in-the-media/
    23 Feb 2024: Updated analysis of UK primary care workforce data reveals inequalities remain as wide as ever. ... The study was reported across print and broadcast media nationally and locally in the UK.
  15. Featured Archives - Page 20 of 45 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/featured/page/20/
    24 Feb 2024: Lockdown and social distancing measures have meant that many people have little or no contact with others, which can […]. Filed Under:Tagged With:January 26, 2021. Patients with lupus – and related ... Patients with Lupus and related diseases […].
  16. Featured Archives - Page 21 of 45 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/featured/page/21/
    24 Feb 2024: How COVID-19-related healthcare changes affected patients with systemic autoimmune rheumatic diseases, including lupus. ... December 14, 2020. During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a
  17. Diagnostic delays for people with lupus described in new study -…

    https://www.phpc.cam.ac.uk/pcu/diagnostic-delays-for-people-with-lupus-described-in-new-study/
    23 Feb 2024: This was a mixed methods study of LUPUS UK online forum members, with qualitative data analysed thematically and combined with descriptive and statistically analysed quantitative data. ... Paul Howard, Chief Executive of LUPUS UK. This research was
  18. https://www.phpc.cam.ac.uk/pcu/tag/autoimmune-disease/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/autoimmune-disease/feed/
    19 Feb 2024: Updates Research News autoimmune disease lupus Melanie Sloan Mental health patient experience https://www.phpc.cam.ac.uk/pcu/?p=29635 More than half of patients with auto-immune conditions experience ... Now is the time for the Government to act to give
  19. https://www.phpc.cam.ac.uk/pcu/tag/patient-experience/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/patient-experience/feed/
    19 Feb 2024: Now is the time for the Government to act to give them the support they desperately need.”/p pThe research was funded by The Lupus Trust and LUPUS UK/p ... p– Melanie Sloan, lead author, Primary Care Unit, University of Cambridge/p/blockquote p /p
  20. Relationships with clinicians and adverse medical experiences affect…

    https://www.phpc.cam.ac.uk/pcu/relationships-with-clinicians-and-adverse-medical-experiences-affect-medication-adherence-amongst-lupus-patients/
    23 Feb 2024: Professor David D’Cruz, Consultant Rheumatologist, Louise Coote Lupus Unit at St Thomas’ Hospital. ... This research was funded by LUPUS UK. Read the study: M Sloan, E Lever, C Gordon, R Harwood, S Georgopoulou, F Naughton, C Wincup, S Sutton, D
  21. PCU Updates Archives - Page 19 of 54 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/19/
    24 Feb 2024: The figures, drawn from a systematic review of literature on the characteristics of hospice populations in the UK and other countries with similar healthcare models, show that certain groups have […]. Filed ... Patients with Lupus and related diseases [
  22. https://www.phpc.cam.ac.uk/pcu/tag/patient-and-public-involvement/feed…

    https://www.phpc.cam.ac.uk/pcu/tag/patient-and-public-involvement/feed/
    19 Feb 2024: I spent several months on the LUPUS UK forum and then I invited five of the most expert, objective and compassionate forum members to join the PPI team. ... pcu/diagnostic-delays-for-people-with-lupus-described-in-new-study/"Lay summary/a./li li‘But
  23. Group Blogs Archives - Page 18 of 51 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/18/
    24 Feb 2024: January 26, 2021. Patients with lupus – and related systemic autoimmune rheumatic diseases, (or SARDs) – have experienced the UK’s shielding guidance as inconsistent, and many who felt they should have shielded ... Patients with Lupus and related
  24. Group Blogs Archives - Page 19 of 51 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/19/
    24 Feb 2024: How COVID-19-related healthcare changes affected patients with systemic autoimmune rheumatic diseases, including lupus. ... December 14, 2020. During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a
  25. PCU Updates Archives - Page 20 of 54 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/20/
    24 Feb 2024: During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a strong sense of being endangered from both the virus and the redeployment of medical resources.
  26. Research News Archives - Page 16 of 43 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/research/page/16/
    24 Feb 2024: The figures, drawn from a systematic review of literature on the characteristics of hospice populations in the UK and other countries with similar healthcare models, show that certain groups have […]. Filed ... Patients with Lupus and related diseases [
  27. Research News Archives - Page 17 of 43 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/research/page/17/
    24 Feb 2024: During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a strong sense of being endangered from both the virus and the redeployment of medical resources.
  28. https://www.phpc.cam.ac.uk/pcu/tag/telephone/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/telephone/feed/
    19 Feb 2024: telephone Archives - Primary Care Unit https://www.phpc.cam.ac.uk/pcu/tag/telephone/ Department of Public Health & Primary Care Fri, 26 Nov 2021 12:24:45 0000 en-US hourly ... The majority of patients were from the UK (96%) and had inflammatory arthritis
  29. https://www.phpc.cam.ac.uk/pcu/tag/telemedicine/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/telemedicine/feed/
    19 Feb 2024: telemedicine Archives - Primary Care Unit https://www.phpc.cam.ac.uk/pcu/tag/telemedicine/ Department of Public Health & Primary Care Fri, 26 Nov 2021 12:24:45 0000 en-US hourly ... The majority of patients were from the UK (96%) and had inflammatory
  30. Professor David Jayne - Experimental Medicine and Immunotherapeutics…

    https://emit.medschl.cam.ac.uk/people/investigators/dr-david-jayne/
    23 Feb 2024: Professor of Clinical Autoimmunity, University of Cambridge. Director of the Vasculitis and Lupus Service, Addenbrooke’s Hospital. ... Long-term comparison of rituximab treatment for refractory systemic lupus erythematosus and vasculitis: Remission,
  31. https://www.phpc.cam.ac.uk/pcu/tag/rheumatology/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/rheumatology/feed/
    19 Feb 2024: on the telephone.’ (Patient with lupus)/p pClinicians also discussed concerns about inappropriate ‘unthinking’ management target-setting for telemedicine and additional stress from their lack of control over management decisions. ... The majority
  32. All Primary Care Unit Publications - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/research/all-pcu-publications/
    23 Feb 2024: Dennison RA, Thomas CV,A discrete choice experiment to understand public preferences and priorities for risk-stratified bowel cancer screening programmes in the UK. ... Estimating the Effectiveness of Kidney Cancer Screening Within Lung Cancer Screening
  33. https://www.phpc.cam.ac.uk/pcu/tag/remote-consulting/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/remote-consulting/feed/
    19 Feb 2024: UK medical students spend much of their training based in primary care centres undertaking consultations with patients under the watchful eye of a supervising doctor. ... The majority of patients were from the UK (96%) and had inflammatory arthritis (32%)
  34. Publications - Behavioural Science Group - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/research/research-groups/bsg/publications/
    23 Feb 2024: COVID-19 and shielding: experiences of UK patients with lupus and related diseases. ... But you don't look sick': a qualitative analysis of the LUPUS UK online forum.
  35. CRMH - Data Management - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/research/research-groups/crmh/research/crmh-data-mangement/
    23 Feb 2024: To compare lupus and related disease patients’ wellbeing, mental health and perception of medical care with patients with RA, fibromyalgia and healthy friend controls.
  36. https://www.phpc.cam.ac.uk/pcu/tag/mental-health/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/mental-health/feed/
    19 Feb 2024: Updates Research News autoimmune disease lupus Melanie Sloan Mental health patient experience https://www.phpc.cam.ac.uk/pcu/?p=29635 More than half of patients with auto-immune conditions experience ... Now is the time for the Government to act to give
  37. https://www.phpc.cam.ac.uk/pcu/tag/gp/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/gp/feed/
    19 Feb 2024: UK medical students spend much of their training based in primary care centres undertaking consultations with patients under the watchful eye of a supervising doctor. ... The majority of patients were from the UK (96%) and had inflammatory arthritis (32%)
  38. https://www.phpc.cam.ac.uk/pcu/category/featured/feed/

    https://www.phpc.cam.ac.uk/pcu/category/featured/feed/
    19 Feb 2024: all over, severe fatigue, or feeling “spaced out” before a lupus flare-up – cannot be seen or confirmed by investigations. ... class="alignleft wp-image-29885" src="https://www.phpc.cam.ac.uk/pcu/files/2023/08/comms.png" alt="" width="113"
  39. https://www.phpc.cam.ac.uk/pcu/category/group-blogs/feed/

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/feed/
    19 Feb 2024: uk/pcu/?p=30191 This blog was written by Dihini Pilimatalawwe, a final year undergraduate student at the University of Bath studying psychology. ... Anticipatory prescribing in community end-of-life care in the UK and Ireland during the COVID-19 pandemic:
  40. https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/feed/

    https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/feed/
    19 Feb 2024: all over, severe fatigue, or feeling “spaced out” before a lupus flare-up – cannot be seen or confirmed by investigations. ... class="alignleft wp-image-29885" src="https://www.phpc.cam.ac.uk/pcu/files/2023/08/comms.png" alt="" width="113"
  41. https://www.phpc.cam.ac.uk/pcu/category/news/research/feed/

    https://www.phpc.cam.ac.uk/pcu/category/news/research/feed/
    19 Feb 2024: all over, severe fatigue, or feeling “spaced out” before a lupus flare-up – cannot be seen or confirmed by investigations. ... class="alignleft wp-image-29885" src="https://www.phpc.cam.ac.uk/pcu/files/2023/08/comms.png" alt="" width="113"
  42. https://www.phpc.cam.ac.uk/pcu/tag/covid-19/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/covid-19/feed/
    19 Feb 2024: 1kvg2vc-0 hejnuW" p class="Paragraphstyled__ParagraphStyled-sc-176xsi4-0 jfWPBd"The study compares home deaths in the UK in 2020 to 2019. ... The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%)./p pThis is
  43. The Listen Study - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/research/research-projects-list/other-projects/the-listen-study/
    23 Feb 2024: Primary Care Unit. The Listen Study. Title:. Listening: Involving SLE (Systemic Lupus Erythematosus) patients to empower and negotiate recognition. ... Collaborative:. Professor Stephen Sutton (University of Cambridge). Funding information. Funding
  44. 'Inconsistent' shielding guidance increases fears for…

    https://www.phpc.cam.ac.uk/pcu/inconsistent-shielding-guidance-increases-fears-for-vulnerable-lupus-patients-during-the-pandemic/
    23 Feb 2024: January 26, 2021. Patients with lupus – and related systemic autoimmune rheumatic diseases, (or SARDs) – have experienced the UK’s shielding guidance as inconsistent, and many who felt they should have shielded ... The research integrates findings
  45. https://www.immunology.cam.ac.uk/taxonomy/term/17/feed

    https://www.immunology.cam.ac.uk/taxonomy/term/17/feed
    23 Feb 2024: Cambridge Immunology Network - Clinicians https://www.immunology.cam.ac.uk/Networkdirectory/clinicians en Professor Ravindra Gupta https://www.immunology.cam.ac.uk/staff/professor-ravindra-gupta <div class="field ... in both the UK and at the<a
  46. How lupus patients would like to be treated: study identifies…

    https://www.phpc.cam.ac.uk/pcu/how-lupus-patients-would-like-to-be-treated-study-identifies-physician-behaviours-that-help-build-trust-and-medical-security/
    23 Feb 2024: These arise from traumatic diagnostic journeys and negative medical interactions, according to an in-depth study of patients’ experiences led by the University of Cambridge and Lupus UK. ... Caroline Gordon, Emeritus Professor of Rheumatology,
  47. RCP-Sunway-Cambridge seminars | Office for Translational Research

    https://otr.medschl.cam.ac.uk/project-management/cambridge-sunway-collaboration/rcp-sunway-cambridge-seminars
    23 Feb 2024: Cirrhosis: Diagnosis and Management. Dr Victoria Snowdon. Consultant Hepatologist, Cambridge University Hospitals, UK. ... Lupus Nephritis: Challenging Cases. Dr Mumtaz Patel. Consultant Nephrologist, Manchester University Teaching Hospitals, UK.
  48. Experts call for urgent mental health support for people living with…

    https://www.phpc.cam.ac.uk/pcu/experts-call-for-urgent-mental-health-support-for-people-living-with-long-term-autoimmune-diseases/
    23 Feb 2024: For example, three times as many lupus patients reported experiencing suicidal thoughts compared to the estimate by clinicians (47% versus 15%). ... The research was funded by The Lupus Trust and LUPUS UK.
  49. “Perfect for some but disastrous for others”: Patients and clinicians …

    https://www.phpc.cam.ac.uk/pcu/perfect-for-some-but-disastrous-for-others-patients-and-clinicians-express-concerns-over-phone-and-video-consultations/
    23 Feb 2024: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%). ... patients, those with worsening symptoms or more complex conditions such as lupus need quickly accessible, face-to face appointments to manage their

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