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  2. News Archives - Page 23 of 76 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/page/23/
    24 Feb 2024: But you don’t look sick’: A qualitative analysis of the LUPUS UK forum. ... These arise from traumatic diagnostic journeys and negative medical interactions, according to an in-depth study of patients’ experiences led by the University of Cambridge
  3. Melanie Sloan Archives - Page 2 of 2 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/melanie-sloan/page/2/
    23 Feb 2024: These arise from traumatic diagnostic journeys and negative medical interactions, according to an in-depth study of patients’ experiences led by the University of Cambridge and Lupus UK. ... People living with lupus report frequent lengthy time delays
  4. lupus Archives - Page 2 of 2 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/lupus/page/2/
    23 Feb 2024: These arise from traumatic diagnostic journeys and negative medical interactions, according to an in-depth study of patients’ experiences led by the University of Cambridge and Lupus UK. ... People living with lupus report frequent lengthy time delays
  5. https://www.phpc.cam.ac.uk/pcu/tag/lupus-uk/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/lupus-uk/feed/
    19 Feb 2024: ll448 Mon, 14 Dec 2020 16:24:36 0000 Behavioural Science Group Featured News PCU Updates Research News COVID-19 lupus LUPUS UK Melanie Sloan ... Group Featured News Research News lupus LUPUS UK Melanie Sloan online forum SLE virtual ethnography
  6. virtual ethnography Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/virtual-ethnography/
    23 Feb 2024: But you don’t look sick’: A qualitative analysis of the LUPUS UK forum. ... This in-depth analysis of the LUPUS UK forum, led by Melanie Sloan from the BSG and involving forum members, LUPUS UK, psychologists and leading rheumatologists, found
  7. https://www.phpc.cam.ac.uk/pcu/tag/online-forum/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/online-forum/feed/
    19 Feb 2024: lupus LUPUS UK Melanie Sloan online forum SLE https://www.phpc.cam.ac.uk/pcu/?p=20546 People living with lupus report frequent lengthy time delays between their first symptoms and ... their lupus diagnosis, in new research from the University of
  8. Group Blogs Archives - Page 20 of 51 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/20/
    24 Feb 2024: This in-depth analysis of the LUPUS UK forum, led by Melanie Sloan from the BSG and involving forum members, LUPUS UK, psychologists and leading rheumatologists, found ‘Invalidation’ was the key […]. ... These arise from traumatic diagnostic
  9. https://www.phpc.cam.ac.uk/pcu/tag/melanie-sloan/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/melanie-sloan/feed/
    19 Feb 2024: I spent several months on the LUPUS UK forum and then I invited five of the most expert, objective and compassionate forum members to join the PPI team. ... pcu/diagnostic-delays-for-people-with-lupus-described-in-new-study/"Lay summary/a./li li‘But
  10. Behavioural Science Group Archives - Page 2 of 6 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/page/2/
    23 Feb 2024: This in-depth analysis of the LUPUS UK forum, led by Melanie Sloan from the BSG and involving forum members, LUPUS UK, psychologists and leading rheumatologists, found ‘Invalidation’ was the key […]. ... These arise from traumatic diagnostic
  11. Research News Archives - Page 18 of 43 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/research/page/18/
    24 Feb 2024: But you don’t look sick’: A qualitative analysis of the LUPUS UK forum. ... These arise from traumatic diagnostic journeys and negative medical interactions, according to an in-depth study of patients’ experiences led by the University of Cambridge
  12. SLE Archives – Cambridge Enterprise

    https://www.enterprise.cam.ac.uk/tag/sle/feed/
    4 Jul 2024: cam.ac.uk/news/new-agreement-with-university-spin-out-predictimmune-allows-product-pipeline-to-include-systemic-lupus-erythematosus/ Catherine Aman Thu, 19 Sep 2019 07:00:54 0000 Cambridge Enterprise ... href="https://www.enterprise.cam.ac.uk/news/new-agr
  13. Featured Archives - Page 22 of 45 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/featured/page/22/
    24 Feb 2024: This in-depth analysis of the LUPUS UK forum, led by Melanie Sloan from the BSG and involving forum members, LUPUS UK, psychologists and leading rheumatologists, found ‘Invalidation’ was the key […]. ... up other forms of cancer, according to new
  14. Human antibody approved for treatment of lupus - MRC Laboratory of…

    https://www2.mrc-lmb.cam.ac.uk/wp-json/oembed/1.0/embed?url=https%3A%2F%2Fwww2.mrc-lmb.cam.ac.uk%2Fhuman-antibody-approved-for-treatment-of-lupus%2F&format=xml
    cam.ac.uk/human-antibody-approved-for-treatment-of-lupus/">Human antibody approved for treatment of lupus</a></blockquote><iframe sandbox="allow-scripts" security="restricted" ... ac.uk/human-antibody-approved-for-treatment-of-lupus/embed/#?secret=pLaLuVW
  15. New drug Benlysta in Lupus treatment - MRC Laboratory of Molecular…

    https://www2.mrc-lmb.cam.ac.uk/wp-json/oembed/1.0/embed?url=https%3A%2F%2Fwww2.mrc-lmb.cam.ac.uk%2Fnew-drug-benlysta-in-lupus-treatment%2F&format=xml
    1.0 MRC Laboratory of Molecular Biology https://www2.mrc-lmb.cam.ac.uk rich 600 338 <blockquote class="wp-embedded-content" data-secret="TpQfgYKY4v"><a ... cam.ac.uk/new-drug-benlysta-in-lupus-treatment/">New drug Benlysta in Lupus
  16. Human Antibodies developed for Treatment of Lupus and Anthrax - MRC…

    https://www2.mrc-lmb.cam.ac.uk/wp-json/oembed/1.0/embed?url=https%3A%2F%2Fwww2.mrc-lmb.cam.ac.uk%2Fhuman-antibodies-developed-for-treatment-of-lupus-and-anthrax%2F&format=xml
    cam.ac.uk/human-antibodies-developed-for-treatment-of-lupus-and-anthrax/">Human Antibodies developed for Treatment of Lupus and Anthrax</a></blockquote><iframe sandbox="allow-scripts" security="restricted" ... www2.mrc-lmb.cam.ac.uk/human-antibodies-devel
  17. https://www.phpc.cam.ac.uk/pcu/search/lupus/feed/rss2/

    https://www.phpc.cam.ac.uk/pcu/search/lupus/feed/rss2/
    19 Feb 2024: Now is the time for the Government to act to give them the support they desperately need.”/p pThe research was funded by The Lupus Trust and LUPUS UK/p ... I spent several months on the LUPUS UK forum and then I invited five of the most expert,
  18. https://www.phpc.cam.ac.uk/pcu/tag/public/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/public/feed/
    19 Feb 2024: I spent several months on the LUPUS UK forum and then I invited five of the most expert, objective and compassionate forum members to join the PPI team. ... pcu/diagnostic-delays-for-people-with-lupus-described-in-new-study/"Lay summary/a./li li‘But
  19. https://www.phpc.cam.ac.uk/pcu/tag/virtual-ethnography/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/virtual-ethnography/feed/
    19 Feb 2024: US hourly 1 https://wordpress.org/?v=6.4.3 ‘But you don’t look sick’: A qualitative analysis of the LUPUS UK forum ... members, LUPUS UK, psychologists and leading rheumatologists, found ‘Invalidation’ was the key theme, including from society,
  20. https://www2.mrc-lmb.cam.ac.uk/wp-json/wp/v2/posts/4345

    https://www2.mrc-lmb.cam.ac.uk/wp-json/wp/v2/posts/4345
  21. https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/feed/

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/feed/
    19 Feb 2024: Now is the time for the Government to act to give them the support they desperately need.”/p pThe research was funded by The Lupus Trust and LUPUS UK/p ... p– Melanie Sloan, lead author, Primary Care Unit, University of Cambridge/p/blockquote p /p
  22. Paul Kinnon Archives – Cambridge Enterprise

    https://www.enterprise.cam.ac.uk/tag/paul-kinnon/feed/
    4 Jul 2024: cam.ac.uk/news/new-agreement-with-university-spin-out-predictimmune-allows-product-pipeline-to-include-systemic-lupus-erythematosus/ Catherine Aman Thu, 19 Sep 2019 07:00:54 0000 Cambridge Enterprise ... href="https://www.enterprise.cam.ac.uk/news/new-agr
  23. ken smith Archives – Cambridge Enterprise

    https://www.enterprise.cam.ac.uk/tag/ken-smith/feed/
    4 Jul 2024: cam.ac.uk/news/new-agreement-with-university-spin-out-predictimmune-allows-product-pipeline-to-include-systemic-lupus-erythematosus/ Catherine Aman Thu, 19 Sep 2019 07:00:54 0000 Cambridge Enterprise ... href="https://www.enterprise.cam.ac.uk/news/new-agr
  24. News Archives - Page 21 of 76 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/page/21/
    24 Feb 2024: January 26, 2021. Patients with lupus – and related systemic autoimmune rheumatic diseases, (or SARDs) – have experienced the UK’s shielding guidance as inconsistent, and many who felt they should have shielded ... Patients with Lupus and related
  25. News Archives - Page 26 of 76 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/page/26/
    24 Feb 2024: May 19, 2020. Digital interventions are effective in helping patients in primary care take the medicines they have been prescribed, according to the first UK study of whether highly tailored text ... with lupus report frequent lengthy time delays between
  26. COVID-19 Archives - Page 3 of 5 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/covid-19/page/3/
    23 Feb 2024: Patients with Lupus and related diseases […]. Filed Under:Tagged With:January 4, 2021. ... During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a strong sense of being endangered from both the virus
  27. Featured Archives - Page 23 of 45 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/featured/page/23/
    24 Feb 2024: How lupus patients would like to be treated: study identifies physician behaviours that help build trust and medical security. ... These arise from traumatic diagnostic journeys and negative medical interactions, according to an in-depth study of
  28. Featured Archives - Page 26 of 45 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/featured/page/26/
    24 Feb 2024: with lupus report frequent lengthy time delays between their first symptoms and their lupus diagnosis, in new research from the University of Cambridge and LUPUS UK. ... At least a quarter of the UK population have more than one long-term disease, and
  29. GP News Archives - Page 4 of 21 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/gp-news/page/4/
    23 Feb 2024: It shows […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often experience persisting medical insecurity and negative healthcare-behaviours. ... These arise from traumatic
  30. GP News Archives - Page 6 of 21 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/gp-news/page/6/
    24 Feb 2024: May 19, 2020. Digital interventions are effective in helping patients in primary care take the medicines they have been prescribed, according to the first UK study of whether highly tailored text ... with lupus report frequent lengthy time delays between
  31. https://www.phpc.cam.ac.uk/pcu/tag/ppi/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/ppi/feed/
    19 Feb 2024: communities. Helpline: 0345 3 30 30 30/p pa href="https://www.stonewall.org.uk/help-and-advice"Stonewall/a.Information and support for LGBT communities and their allies. ... of PPI representatives recruited from the four CanTest UK University locations,
  32. https://www.phpc.cam.ac.uk/pcu/tag/miranda-van-emmenis/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/miranda-van-emmenis/feed/
    19 Feb 2024: I spent several months on the LUPUS UK forum and then I invited five of the most expert, objective and compassionate forum members to join the PPI team. ... pcu/diagnostic-delays-for-people-with-lupus-described-in-new-study/"Lay summary/a./li li‘But
  33. Group Blogs Archives - Page 23 of 51 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/23/
    24 Feb 2024: With:May 19, 2020. Digital interventions are effective in helping patients in primary care take the medicines they have been prescribed, according to the first UK study of whether highly tailored ... with lupus report frequent lengthy time delays between
  34. PCU Updates Archives - Page 25 of 54 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/25/
    24 Feb 2024: With:May 19, 2020. Digital interventions are effective in helping patients in primary care take the medicines they have been prescribed, according to the first UK study of whether highly tailored ... with lupus report frequent lengthy time delays between
  35. PCU Updates Archives - Page 22 of 54 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/22/
    24 Feb 2024: The new plain-language framework, the For Us (For Unit Safety) framework, was developed through a multi-site ethnographic study and […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and ... These arise from traumatic diagnostic
  36. Research News Archives - Page 21 of 43 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/research/page/21/
    24 Feb 2024: May 19, 2020. Digital interventions are effective in helping patients in primary care take the medicines they have been prescribed, according to the first UK study of whether highly tailored text ... with lupus report frequent lengthy time delays between
  37. Experts call for urgent mental health support for people living with…

    https://www.cam.ac.uk/research/news/experts-call-for-urgent-mental-health-support-for-people-living-with-long-term-autoimmune-diseases
    Thumbnail for Experts call for urgent mental health support for people living with long term autoimmune diseases | University of Cambridge 26 Jul 2023: For example, three times as many lupus patients reported experiencing suicidal thoughts compared to the estimate by clinicians (47% versus 15%). ... The research was funded by The Lupus Trust and LUPUS UK.
  38. Predictimmune Archives – Cambridge Enterprise

    https://www.enterprise.cam.ac.uk/tag/predictimmune/feed/
    4 Jul 2024: cam.ac.uk/news/new-agreement-with-university-spin-out-predictimmune-allows-product-pipeline-to-include-systemic-lupus-erythematosus/ Catherine Aman Thu, 19 Sep 2019 07:00:54 0000 Cambridge Enterprise ... href="https://www.enterprise.cam.ac.uk/news/new-agr
  39. Melanie Sloan Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/melanie-sloan/
    23 Feb 2024: People with incurable systemic auto-immune conditions, including lupus, often need lifelong medications to slow or stop the progression of the disease. ... Patients with lupus – and related systemic autoimmune rheumatic diseases, (or SARDs) – have
  40. Behavioural Science Group Archives - Page 3 of 6 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/page/3/
    23 Feb 2024: Primary Care Unit. Behavioural Science Group. May 14, 2020. People living with lupus report frequent lengthy time delays between their first symptoms and their lupus diagnosis, in new research from the ... University of Cambridge and LUPUS UK.
  41. Dr Melanie Sloan - Department of Public Health and Primary Care

    https://www.phpc.cam.ac.uk/people/pcu-group/researchers/melanie-sloan/
    23 Feb 2024: She is currently funded by LUPUS UK and The lupus trust on several research studies. ... COVID-19 and shielding: experiences of UK patients with lupus and related diseases.
  42. Department of Medicine Archives – Cambridge Enterprise

    https://www.enterprise.cam.ac.uk/tag/department-of-medicine/feed/
    4 Jul 2024: cam.ac.uk"Cambridge Enterprise/a./p https://www.enterprise.cam.ac.uk/news/new-agreement-with-university-spin-out-predictimmune-allows-product-pipeline-to-include-systemic-lupus-erythematosus/ Catherine Aman ... href="https://www.enterprise.cam.ac.uk/news/
  43. Concerns over medical consultations by phone and video – study |…

    https://www.cam.ac.uk/research/news/concerns-over-medical-consultations-by-phone-and-video-study
    Thumbnail for Concerns over medical consultations by phone and video – study | University of Cambridge 2 Nov 2021: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%). ... patients, those with worsening symptoms or more complex conditions such as lupus need quickly accessible, face-to face appointments to manage their
  44. PCU in the media - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/pcu-in-the-media/
    23 Feb 2024: Updated analysis of UK primary care workforce data reveals inequalities remain as wide as ever. ... The study was reported across print and broadcast media nationally and locally in the UK.
  45. Featured Archives - Page 20 of 45 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/featured/page/20/
    24 Feb 2024: Lockdown and social distancing measures have meant that many people have little or no contact with others, which can […]. Filed Under:Tagged With:January 26, 2021. Patients with lupus – and related ... Patients with Lupus and related diseases […].
  46. Featured Archives - Page 21 of 45 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/featured/page/21/
    24 Feb 2024: How COVID-19-related healthcare changes affected patients with systemic autoimmune rheumatic diseases, including lupus. ... December 14, 2020. During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a
  47. Diagnostic delays for people with lupus described in new study -…

    https://www.phpc.cam.ac.uk/pcu/diagnostic-delays-for-people-with-lupus-described-in-new-study/
    23 Feb 2024: This was a mixed methods study of LUPUS UK online forum members, with qualitative data analysed thematically and combined with descriptive and statistically analysed quantitative data. ... Paul Howard, Chief Executive of LUPUS UK. This research was
  48. https://www.phpc.cam.ac.uk/pcu/tag/autoimmune-disease/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/autoimmune-disease/feed/
    19 Feb 2024: Updates Research News autoimmune disease lupus Melanie Sloan Mental health patient experience https://www.phpc.cam.ac.uk/pcu/?p=29635 More than half of patients with auto-immune conditions experience ... Now is the time for the Government to act to give
  49. https://www.phpc.cam.ac.uk/pcu/tag/patient-experience/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/patient-experience/feed/
    19 Feb 2024: Now is the time for the Government to act to give them the support they desperately need.”/p pThe research was funded by The Lupus Trust and LUPUS UK/p ... p– Melanie Sloan, lead author, Primary Care Unit, University of Cambridge/p/blockquote p /p
  50. Relationships with clinicians and adverse medical experiences affect…

    https://www.phpc.cam.ac.uk/pcu/relationships-with-clinicians-and-adverse-medical-experiences-affect-medication-adherence-amongst-lupus-patients/
    23 Feb 2024: Professor David D’Cruz, Consultant Rheumatologist, Louise Coote Lupus Unit at St Thomas’ Hospital. ... This research was funded by LUPUS UK. Read the study: M Sloan, E Lever, C Gordon, R Harwood, S Georgopoulou, F Naughton, C Wincup, S Sutton, D
  51. Group Blogs Archives - Page 18 of 51 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/18/
    24 Feb 2024: January 26, 2021. Patients with lupus – and related systemic autoimmune rheumatic diseases, (or SARDs) – have experienced the UK’s shielding guidance as inconsistent, and many who felt they should have shielded ... Patients with Lupus and related

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