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  2. Featured Archives - Page 22 of 45 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/featured/page/22/
    24 Feb 2024: This in-depth analysis of the LUPUS UK forum, led by Melanie Sloan from the BSG and involving forum members, LUPUS UK, psychologists and leading rheumatologists, found ‘Invalidation’ was the key […]. ... up other forms of cancer, according to new
  3. https://www.phpc.cam.ac.uk/pcu/search/lupus/feed/rss2/

    https://www.phpc.cam.ac.uk/pcu/search/lupus/feed/rss2/
    19 Feb 2024: Now is the time for the Government to act to give them the support they desperately need.”/p pThe research was funded by The Lupus Trust and LUPUS UK/p ... I spent several months on the LUPUS UK forum and then I invited five of the most expert,
  4. https://www.phpc.cam.ac.uk/pcu/tag/public/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/public/feed/
    19 Feb 2024: I spent several months on the LUPUS UK forum and then I invited five of the most expert, objective and compassionate forum members to join the PPI team. ... pcu/diagnostic-delays-for-people-with-lupus-described-in-new-study/"Lay summary/a./li li‘But
  5. https://www.phpc.cam.ac.uk/pcu/tag/virtual-ethnography/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/virtual-ethnography/feed/
    19 Feb 2024: US hourly 1 https://wordpress.org/?v=6.4.3 ‘But you don’t look sick’: A qualitative analysis of the LUPUS UK forum ... members, LUPUS UK, psychologists and leading rheumatologists, found ‘Invalidation’ was the key theme, including from society,
  6. https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/feed/

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/feed/
    19 Feb 2024: Now is the time for the Government to act to give them the support they desperately need.”/p pThe research was funded by The Lupus Trust and LUPUS UK/p ... p– Melanie Sloan, lead author, Primary Care Unit, University of Cambridge/p/blockquote p /p
  7. News Archives - Page 21 of 76 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/page/21/
    24 Feb 2024: January 26, 2021. Patients with lupus – and related systemic autoimmune rheumatic diseases, (or SARDs) – have experienced the UK’s shielding guidance as inconsistent, and many who felt they should have shielded ... Patients with Lupus and related
  8. News Archives - Page 26 of 76 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/page/26/
    24 Feb 2024: May 19, 2020. Digital interventions are effective in helping patients in primary care take the medicines they have been prescribed, according to the first UK study of whether highly tailored text ... with lupus report frequent lengthy time delays between
  9. COVID-19 Archives - Page 3 of 5 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/covid-19/page/3/
    23 Feb 2024: Patients with Lupus and related diseases […]. Filed Under:Tagged With:January 4, 2021. ... During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a strong sense of being endangered from both the virus
  10. Featured Archives - Page 23 of 45 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/featured/page/23/
    24 Feb 2024: How lupus patients would like to be treated: study identifies physician behaviours that help build trust and medical security. ... These arise from traumatic diagnostic journeys and negative medical interactions, according to an in-depth study of
  11. Featured Archives - Page 26 of 45 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/featured/page/26/
    24 Feb 2024: with lupus report frequent lengthy time delays between their first symptoms and their lupus diagnosis, in new research from the University of Cambridge and LUPUS UK. ... At least a quarter of the UK population have more than one long-term disease, and
  12. GP News Archives - Page 4 of 21 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/gp-news/page/4/
    23 Feb 2024: It shows […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often experience persisting medical insecurity and negative healthcare-behaviours. ... These arise from traumatic
  13. GP News Archives - Page 6 of 21 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/gp-news/page/6/
    24 Feb 2024: May 19, 2020. Digital interventions are effective in helping patients in primary care take the medicines they have been prescribed, according to the first UK study of whether highly tailored text ... with lupus report frequent lengthy time delays between
  14. https://www.phpc.cam.ac.uk/pcu/tag/ppi/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/ppi/feed/
    19 Feb 2024: communities. Helpline: 0345 3 30 30 30/p pa href="https://www.stonewall.org.uk/help-and-advice"Stonewall/a.Information and support for LGBT communities and their allies. ... of PPI representatives recruited from the four CanTest UK University locations,
  15. https://www.phpc.cam.ac.uk/pcu/tag/miranda-van-emmenis/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/miranda-van-emmenis/feed/
    19 Feb 2024: I spent several months on the LUPUS UK forum and then I invited five of the most expert, objective and compassionate forum members to join the PPI team. ... pcu/diagnostic-delays-for-people-with-lupus-described-in-new-study/"Lay summary/a./li li‘But
  16. Group Blogs Archives - Page 23 of 51 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/23/
    24 Feb 2024: With:May 19, 2020. Digital interventions are effective in helping patients in primary care take the medicines they have been prescribed, according to the first UK study of whether highly tailored ... with lupus report frequent lengthy time delays between
  17. PCU Updates Archives - Page 22 of 54 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/22/
    24 Feb 2024: The new plain-language framework, the For Us (For Unit Safety) framework, was developed through a multi-site ethnographic study and […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and ... These arise from traumatic diagnostic
  18. PCU Updates Archives - Page 25 of 54 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/25/
    24 Feb 2024: With:May 19, 2020. Digital interventions are effective in helping patients in primary care take the medicines they have been prescribed, according to the first UK study of whether highly tailored ... with lupus report frequent lengthy time delays between
  19. Research News Archives - Page 21 of 43 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/research/page/21/
    24 Feb 2024: May 19, 2020. Digital interventions are effective in helping patients in primary care take the medicines they have been prescribed, according to the first UK study of whether highly tailored text ... with lupus report frequent lengthy time delays between
  20. Experts call for urgent mental health support for people living with…

    https://www.cam.ac.uk/research/news/experts-call-for-urgent-mental-health-support-for-people-living-with-long-term-autoimmune-diseases
    Thumbnail for Experts call for urgent mental health support for people living with long term autoimmune diseases | University of Cambridge 26 Jul 2023: For example, three times as many lupus patients reported experiencing suicidal thoughts compared to the estimate by clinicians (47% versus 15%). ... The research was funded by The Lupus Trust and LUPUS UK.
  21. Melanie Sloan Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/melanie-sloan/
    23 Feb 2024: People with incurable systemic auto-immune conditions, including lupus, often need lifelong medications to slow or stop the progression of the disease. ... Patients with lupus – and related systemic autoimmune rheumatic diseases, (or SARDs) – have
  22. Behavioural Science Group Archives - Page 3 of 6 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/page/3/
    23 Feb 2024: Primary Care Unit. Behavioural Science Group. May 14, 2020. People living with lupus report frequent lengthy time delays between their first symptoms and their lupus diagnosis, in new research from the ... University of Cambridge and LUPUS UK.
  23. Dr Melanie Sloan - Department of Public Health and Primary Care

    https://www.phpc.cam.ac.uk/people/pcu-group/researchers/melanie-sloan/
    23 Feb 2024: She is currently funded by LUPUS UK and The lupus trust on several research studies. ... COVID-19 and shielding: experiences of UK patients with lupus and related diseases.
  24. PCU in the media - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/pcu-in-the-media/
    23 Feb 2024: Updated analysis of UK primary care workforce data reveals inequalities remain as wide as ever. ... The study was reported across print and broadcast media nationally and locally in the UK.
  25. Featured Archives - Page 20 of 45 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/featured/page/20/
    24 Feb 2024: Lockdown and social distancing measures have meant that many people have little or no contact with others, which can […]. Filed Under:Tagged With:January 26, 2021. Patients with lupus – and related ... Patients with Lupus and related diseases […].
  26. Featured Archives - Page 21 of 45 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/featured/page/21/
    24 Feb 2024: How COVID-19-related healthcare changes affected patients with systemic autoimmune rheumatic diseases, including lupus. ... December 14, 2020. During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a
  27. Diagnostic delays for people with lupus described in new study -…

    https://www.phpc.cam.ac.uk/pcu/diagnostic-delays-for-people-with-lupus-described-in-new-study/
    23 Feb 2024: This was a mixed methods study of LUPUS UK online forum members, with qualitative data analysed thematically and combined with descriptive and statistically analysed quantitative data. ... Paul Howard, Chief Executive of LUPUS UK. This research was
  28. https://www.phpc.cam.ac.uk/pcu/tag/autoimmune-disease/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/autoimmune-disease/feed/
    19 Feb 2024: Updates Research News autoimmune disease lupus Melanie Sloan Mental health patient experience https://www.phpc.cam.ac.uk/pcu/?p=29635 More than half of patients with auto-immune conditions experience ... Now is the time for the Government to act to give
  29. https://www.phpc.cam.ac.uk/pcu/tag/patient-experience/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/patient-experience/feed/
    19 Feb 2024: Now is the time for the Government to act to give them the support they desperately need.”/p pThe research was funded by The Lupus Trust and LUPUS UK/p ... p– Melanie Sloan, lead author, Primary Care Unit, University of Cambridge/p/blockquote p /p
  30. Relationships with clinicians and adverse medical experiences affect…

    https://www.phpc.cam.ac.uk/pcu/relationships-with-clinicians-and-adverse-medical-experiences-affect-medication-adherence-amongst-lupus-patients/
    23 Feb 2024: Professor David D’Cruz, Consultant Rheumatologist, Louise Coote Lupus Unit at St Thomas’ Hospital. ... This research was funded by LUPUS UK. Read the study: M Sloan, E Lever, C Gordon, R Harwood, S Georgopoulou, F Naughton, C Wincup, S Sutton, D
  31. Group Blogs Archives - Page 18 of 51 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/18/
    24 Feb 2024: January 26, 2021. Patients with lupus – and related systemic autoimmune rheumatic diseases, (or SARDs) – have experienced the UK’s shielding guidance as inconsistent, and many who felt they should have shielded ... Patients with Lupus and related
  32. Group Blogs Archives - Page 19 of 51 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/19/
    24 Feb 2024: How COVID-19-related healthcare changes affected patients with systemic autoimmune rheumatic diseases, including lupus. ... December 14, 2020. During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a
  33. PCU Updates Archives - Page 19 of 54 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/19/
    24 Feb 2024: The figures, drawn from a systematic review of literature on the characteristics of hospice populations in the UK and other countries with similar healthcare models, show that certain groups have […]. Filed ... Patients with Lupus and related diseases [
  34. PCU Updates Archives - Page 20 of 54 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/20/
    24 Feb 2024: During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a strong sense of being endangered from both the virus and the redeployment of medical resources.
  35. https://www.phpc.cam.ac.uk/pcu/tag/patient-and-public-involvement/feed…

    https://www.phpc.cam.ac.uk/pcu/tag/patient-and-public-involvement/feed/
    19 Feb 2024: I spent several months on the LUPUS UK forum and then I invited five of the most expert, objective and compassionate forum members to join the PPI team. ... pcu/diagnostic-delays-for-people-with-lupus-described-in-new-study/"Lay summary/a./li li‘But
  36. Research News Archives - Page 16 of 43 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/research/page/16/
    24 Feb 2024: The figures, drawn from a systematic review of literature on the characteristics of hospice populations in the UK and other countries with similar healthcare models, show that certain groups have […]. Filed ... Patients with Lupus and related diseases [
  37. Research News Archives - Page 17 of 43 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/research/page/17/
    24 Feb 2024: During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a strong sense of being endangered from both the virus and the redeployment of medical resources.
  38. https://www.phpc.cam.ac.uk/pcu/tag/telephone/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/telephone/feed/
    19 Feb 2024: telephone Archives - Primary Care Unit https://www.phpc.cam.ac.uk/pcu/tag/telephone/ Department of Public Health & Primary Care Fri, 26 Nov 2021 12:24:45 0000 en-US hourly ... The majority of patients were from the UK (96%) and had inflammatory arthritis
  39. https://www.phpc.cam.ac.uk/pcu/tag/telemedicine/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/telemedicine/feed/
    19 Feb 2024: telemedicine Archives - Primary Care Unit https://www.phpc.cam.ac.uk/pcu/tag/telemedicine/ Department of Public Health & Primary Care Fri, 26 Nov 2021 12:24:45 0000 en-US hourly ... The majority of patients were from the UK (96%) and had inflammatory
  40. Professor David Jayne - Experimental Medicine and Immunotherapeutics…

    https://emit.medschl.cam.ac.uk/people/investigators/dr-david-jayne/
    23 Feb 2024: Professor of Clinical Autoimmunity, University of Cambridge. Director of the Vasculitis and Lupus Service, Addenbrooke’s Hospital. ... Long-term comparison of rituximab treatment for refractory systemic lupus erythematosus and vasculitis: Remission,
  41. https://www.phpc.cam.ac.uk/pcu/tag/rheumatology/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/rheumatology/feed/
    19 Feb 2024: on the telephone.’ (Patient with lupus)/p pClinicians also discussed concerns about inappropriate ‘unthinking’ management target-setting for telemedicine and additional stress from their lack of control over management decisions. ... The majority
  42. All Primary Care Unit Publications - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/research/all-pcu-publications/
    23 Feb 2024: Dennison RA, Thomas CV,A discrete choice experiment to understand public preferences and priorities for risk-stratified bowel cancer screening programmes in the UK. ... Estimating the Effectiveness of Kidney Cancer Screening Within Lung Cancer Screening
  43. https://www.phpc.cam.ac.uk/pcu/tag/remote-consulting/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/remote-consulting/feed/
    19 Feb 2024: UK medical students spend much of their training based in primary care centres undertaking consultations with patients under the watchful eye of a supervising doctor. ... The majority of patients were from the UK (96%) and had inflammatory arthritis (32%)
  44. CRMH - Data Management - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/research/research-groups/crmh/research/crmh-data-mangement/
    23 Feb 2024: To compare lupus and related disease patients’ wellbeing, mental health and perception of medical care with patients with RA, fibromyalgia and healthy friend controls.
  45. Publications - Behavioural Science Group - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/research/research-groups/bsg/publications/
    23 Feb 2024: COVID-19 and shielding: experiences of UK patients with lupus and related diseases. ... But you don't look sick': a qualitative analysis of the LUPUS UK online forum.
  46. https://www.phpc.cam.ac.uk/pcu/tag/mental-health/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/mental-health/feed/
    19 Feb 2024: Updates Research News autoimmune disease lupus Melanie Sloan Mental health patient experience https://www.phpc.cam.ac.uk/pcu/?p=29635 More than half of patients with auto-immune conditions experience ... Now is the time for the Government to act to give
  47. https://www.phpc.cam.ac.uk/pcu/tag/gp/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/gp/feed/
    19 Feb 2024: UK medical students spend much of their training based in primary care centres undertaking consultations with patients under the watchful eye of a supervising doctor. ... The majority of patients were from the UK (96%) and had inflammatory arthritis (32%)
  48. https://www.phpc.cam.ac.uk/pcu/category/featured/feed/

    https://www.phpc.cam.ac.uk/pcu/category/featured/feed/
    19 Feb 2024: all over, severe fatigue, or feeling “spaced out” before a lupus flare-up – cannot be seen or confirmed by investigations. ... class="alignleft wp-image-29885" src="https://www.phpc.cam.ac.uk/pcu/files/2023/08/comms.png" alt="" width="113"
  49. https://www.phpc.cam.ac.uk/pcu/category/group-blogs/feed/

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/feed/
    19 Feb 2024: uk/pcu/?p=30191 This blog was written by Dihini Pilimatalawwe, a final year undergraduate student at the University of Bath studying psychology. ... Anticipatory prescribing in community end-of-life care in the UK and Ireland during the COVID-19 pandemic:
  50. https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/feed/

    https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/feed/
    19 Feb 2024: all over, severe fatigue, or feeling “spaced out” before a lupus flare-up – cannot be seen or confirmed by investigations. ... class="alignleft wp-image-29885" src="https://www.phpc.cam.ac.uk/pcu/files/2023/08/comms.png" alt="" width="113"
  51. https://www.phpc.cam.ac.uk/pcu/category/news/research/feed/

    https://www.phpc.cam.ac.uk/pcu/category/news/research/feed/
    19 Feb 2024: all over, severe fatigue, or feeling “spaced out” before a lupus flare-up – cannot be seen or confirmed by investigations. ... class="alignleft wp-image-29885" src="https://www.phpc.cam.ac.uk/pcu/files/2023/08/comms.png" alt="" width="113"

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