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  2. The strength of the wolf is the pack: how a study of lupus patient…

    https://www.phpc.cam.ac.uk/pcu/lupus-patient-experiences/
    23 Feb 2024: Site Search. The strength of the wolf is the pack: how a study of lupus patient experiences involved patients. ... Primary Care Unit. Behavioural Science Group. The strength of the wolf is the pack: how a study of lupus patient experiences involved
  3. Dr Melanie Sloan - Department of Public Health and Primary Care

    https://www.phpc.cam.ac.uk/people/pcu-group/researchers/melanie-sloan/
    23 Feb 2024: The impact of the COVID-19 pandemic on the medical care and health-care behaviour of patients with lupus and other systemic autoimmune diseases: a mixed methods longitudinal study. ... Medically explained symptoms: a mixed methods study of diagnostic,
  4. lupus Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/lupus/
    23 Feb 2024: People with incurable systemic auto-immune conditions, including lupus, often need lifelong medications to slow or stop the progression of the disease. ... Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to
  5. Melanie Sloan Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/melanie-sloan/
    23 Feb 2024: The feeling of […]. Filed Under:Tagged With:November 2, 2021. A research study of rheumatology patients and clinicians has found that while the majority found phone or video consultations more convenient ... Lupus patient experiences Lupus patients
  6. PCU in the media - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/pcu-in-the-media/
    23 Feb 2024: Patient experience: The LISTEN study explores the experiences of patients with lupus and related conditions, led by Melanie Sloan in the Behavioural Science Group. ... Media work done in February and March 2021 has helped to raise awareness of lupus and
  7. Patient and public involvement (PPI) - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/work-with-us/ppi/
    23 Feb 2024: Best practice for communication: sharing regular updates and study outputs with members of the public. ... March 8, 2021. Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related
  8. PPI Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/ppi/
    23 Feb 2024: research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body, affecting people’s lives deeply, yet can take years
  9. public Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/public/
    23 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body,
  10. https://www.phpc.cam.ac.uk/pcu/tag/sle/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/sle/feed/
    19 Feb 2024: research was part of a wider study funded by LUPUS UK./p p /p pemstrongRead the study/strong/em/p pM Sloan, M Bosley, M Blane, L Holloway, C Barrere, D ... This was a mixed methods study of LUPUS UK online forum members, with qualitative data analysed
  11. https://www.phpc.cam.ac.uk/pcu/tag/online-forum/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/online-forum/feed/
    19 Feb 2024: research was part of a wider study funded by LUPUS UK./p p /p pemstrongRead the study/strong/em/p pM Sloan, M Bosley, M Blane, L Holloway, C Barrere, D ... This was a mixed methods study of LUPUS UK online forum members, with qualitative data analysed
  12. lupus Archives - Page 2 of 2 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/lupus/page/2/
    23 Feb 2024: How lupus patients would like to be treated: study identifies physician behaviours that help build trust and medical security. ... These arise from traumatic diagnostic journeys and negative medical interactions, according to an in-depth study of
  13. Group Blogs Archives - Page 16 of 51 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/16/
    24 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body,
  14. PCU Updates Archives - Page 18 of 54 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/18/
    24 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... The first major study of the pandemic-related changes in bereavement care has found
  15. News Archives - Page 19 of 76 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/page/19/
    24 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body,
  16. Miranda Van Emmenis Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/miranda-van-emmenis/
    23 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body,
  17. Featured Archives - Page 19 of 45 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/featured/page/19/
    24 Feb 2024: Primary Care Unit. Featured. March 8, 2021. Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related ... The first major study of the pandemic-related
  18. LUPUS UK Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/lupus-uk/
    23 Feb 2024: These arise from traumatic diagnostic journeys and negative medical interactions, according to an in-depth study of patients’ experiences led by the University of Cambridge and Lupus UK. ... People living with lupus report frequent lengthy time delays
  19. https://www.phpc.cam.ac.uk/pcu/tag/lupus-uk/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/lupus-uk/feed/
    19 Feb 2024: These arise from traumatic diagnostic journeys and negative medical interactions, according to an in-depth study of patients’ experiences led by the University of Cambridge and Lupus UK. ... This was a mixed methods study of LUPUS UK online forum
  20. Research News Archives - Page 15 of 43 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/research/page/15/
    24 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body,
  21. Doctors rank patients’ own assessment of their illness as least…

    https://www.phpc.cam.ac.uk/pcu/doctors-rank-patients-own-assessment-of-their-illness-as-least-important-in-diagnosis/
    23 Feb 2024: Our study, led by Cambridge University and Kings’ College London, is focused on lupus, one of the most challenging autoimmune diseases to diagnose, to manage and to live with. ... Neuropsychiatric lupus explained. ‘Objective’ doesn’t necessarily
  22. patient and public involvement Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/patient-and-public-involvement/
    23 Feb 2024: research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body, affecting people’s lives deeply, yet can take years
  23. Behavioural Science Group Archives - Page 2 of 6 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/page/2/
    23 Feb 2024: Primary Care Unit. Behavioural Science Group. March 8, 2021. Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus ... These arise from traumatic diagnostic journeys
  24. https://www.phpc.cam.ac.uk/pcu/tag/lupus/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/lupus/feed/
    19 Feb 2024: s/photos/take-my-medicine?utm_source=unsplash&utm_medium=referral&utm_content=creditCopyText"Unsplash/a/p The strength of the wolf is the pack: how a study of lupus patient ... help-build-trust-and-medical-security/"Lay summary/a./li liMedically
  25. News Archives - Page 23 of 76 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/page/23/
    24 Feb 2024: The new plain-language framework, the For Us (For Unit Safety) framework, was developed through a multi-site ethnographic study and […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and ... These arise from traumatic diagnostic
  26. https://www.phpc.cam.ac.uk/pcu/tag/virtual-ethnography/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/virtual-ethnography/feed/
    19 Feb 2024: but-you-dont-look-sick-a-qualitative-analysis-of-the-lupus-uk-forum/ ll448 Mon, 02 Nov 2020 14:37:03 0000 Behavioural Science Group Featured News Research News lupus LUPUS ... research was part of a wider study funded by LUPUS UK./p p /p pemstrongRead
  27. Featured Archives - Page 23 of 45 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/featured/page/23/
    24 Feb 2024: How lupus patients would like to be treated: study identifies physician behaviours that help build trust and medical security. ... These arise from traumatic diagnostic journeys and negative medical interactions, according to an in-depth study of
  28. GP News Archives - Page 4 of 21 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/gp-news/page/4/
    23 Feb 2024: This study was led by Dr Garth Funston at the […]. Filed Under:Tagged With:October 13, 2020. Research by the University of Cambridge shows how medical students can engage in remote ... These arise from traumatic diagnostic journeys and negative medical
  29. Melanie Sloan Archives - Page 2 of 2 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/melanie-sloan/page/2/
    23 Feb 2024: These arise from traumatic diagnostic journeys and negative medical interactions, according to an in-depth study of patients’ experiences led by the University of Cambridge and Lupus UK. ... People living with lupus report frequent lengthy time delays
  30. https://www.phpc.cam.ac.uk/pcu/tag/public/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/public/feed/
    19 Feb 2024: com/search/lights/"Pexels/a/p The strength of the wolf is the pack: how a study of lupus patient experiences involved patients ... help-build-trust-and-medical-security/"Lay summary/a./li liMedically explained symptoms: a mixed method study of diagnostic,
  31. Group Blogs Archives - Page 20 of 51 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/20/
    24 Feb 2024: at the end of their lives, according to a study from the University of Cambridge, funded by Marie Curie and published in the British Journal of General Practice. ... These arise from traumatic diagnostic journeys and negative medical interactions,
  32. PCU Updates Archives - Page 22 of 54 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/22/
    24 Feb 2024: The new plain-language framework, the For Us (For Unit Safety) framework, was developed through a multi-site ethnographic study and […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and ... These arise from traumatic diagnostic
  33. https://www.phpc.cam.ac.uk/pcu/feed/

    https://www.phpc.cam.ac.uk/pcu/feed/
    19 Feb 2024: 10.1093/rheumatology/kead685"study/a, led by Cambridge University and Kings’ College London, is focused on lupus, one of the most challenging autoimmune diseases to diagnose, to manage and to ... A retrospective observational study of prescribed,
  34. Research News Archives - Page 18 of 43 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/research/page/18/
    24 Feb 2024: The new plain-language framework, the For Us (For Unit Safety) framework, was developed through a multi-site ethnographic study and […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and ... These arise from traumatic diagnostic
  35. https://www.phpc.cam.ac.uk/pcu/tag/melanie-sloan/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/melanie-sloan/feed/
    19 Feb 2024: s/photos/take-my-medicine?utm_source=unsplash&utm_medium=referral&utm_content=creditCopyText"Unsplash/a/p The strength of the wolf is the pack: how a study of lupus patient ... help-build-trust-and-medical-security/"Lay summary/a./li liMedically
  36. https://www.phpc.cam.ac.uk/pcu/tag/miranda-van-emmenis/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/miranda-van-emmenis/feed/
    19 Feb 2024: wolf is the pack: how a study of lupus patient experiences involved patients https://www.phpc.cam.ac.uk/pcu/lupus-patient-experiences/ ll448 Mon, 08 Mar 2021 15:32:45 ... help-build-trust-and-medical-security/"Lay summary/a./li liMedically explained
  37. https://www.phpc.cam.ac.uk/pcu/search/lupus/feed/rss2/

    https://www.phpc.cam.ac.uk/pcu/search/lupus/feed/rss2/
    19 Feb 2024: s/photos/take-my-medicine?utm_source=unsplash&utm_medium=referral&utm_content=creditCopyText"Unsplash/a/p The strength of the wolf is the pack: how a study of lupus patient ... of Cambridge to study the experiences of patients with lupus and related
  38. https://www.phpc.cam.ac.uk/pcu/category/news/feed/

    https://www.phpc.cam.ac.uk/pcu/category/news/feed/
    19 Feb 2024: 10.1093/rheumatology/kead685"study/a, led by Cambridge University and Kings’ College London, is focused on lupus, one of the most challenging autoimmune diseases to diagnose, to manage and to ... A retrospective observational study of prescribed,
  39. Diagnostic delays for people with lupus described in new study -…

    https://www.phpc.cam.ac.uk/pcu/diagnostic-delays-for-people-with-lupus-described-in-new-study/
    23 Feb 2024: Primary Care Unit. Behavioural Science Group. Diagnostic delays for people with lupus described in new study. ... This was a mixed methods study of LUPUS UK online forum members, with qualitative data analysed thematically and combined with descriptive
  40. https://www.phpc.cam.ac.uk/pcu/tag/ppi/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/ppi/feed/
    19 Feb 2024: Public involvement is the process of working with the public as part of our research, not as participants in a research study./h3 h3a ... This study compared data analysesfrom the Longitudinal Study of Young People in England andthe General Practice
  41. https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/feed/

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/feed/
    19 Feb 2024: The majority of patients were from the UK (96%) and had inflammatory arthritis (32%) or lupus (32%)./p pThis is the first telemedicine study to have combined data from rheumatology patients, ... p– Melanie Sloan, lead author, Primary Care Unit,
  42. Publications - Behavioural Science Group - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/research/research-groups/bsg/publications/
    23 Feb 2024: Medically explained symptoms: a mixed methods study of diagnostic, symptom and support experiences of patients with lupus and related systemic autoimmune diseases. ... Applying the behaviour change technique (BCT) taxonomy v1: a study of coder training.
  43. All Primary Care Unit Publications - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/research/all-pcu-publications/
    23 Feb 2024: Qualitative interview study of atrial fibrillation screening nonparticipation. Health Expectations 14/0; :23. ... Ethnic disparities in COVID-19 outcomes: a multinational cohort study of 20 million individuals from England and Canada.
  44. ‘But you don’t look sick’: A qualitative analysis of the LUPUS UK…

    https://www.phpc.cam.ac.uk/pcu/but-you-dont-look-sick-a-qualitative-analysis-of-the-lupus-uk-forum/
    23 Feb 2024: This research study, in conjunction with the two research papers previously published this year (Medically explained symptoms: A mixed methods study of diagnostic, symptom and support experiences of patients with lupus ... Paul Howard, Chief Executive of
  45. https://www.phpc.cam.ac.uk/pcu/tag/patient-and-public-involvement/feed…

    https://www.phpc.cam.ac.uk/pcu/tag/patient-and-public-involvement/feed/
    19 Feb 2024: strength of the wolf is the pack: how a study of lupus patient experiences involved patients https://www.phpc.cam.ac.uk/pcu/lupus-patient-experiences/ ll448 Mon, 08 Mar 2021 ... help-build-trust-and-medical-security/"Lay summary/a./li liMedically
  46. https://www.phpc.cam.ac.uk/pcu/category/featured/feed/

    https://www.phpc.cam.ac.uk/pcu/category/featured/feed/
    19 Feb 2024: 10.1093/rheumatology/kead685"study/a, led by Cambridge University and Kings’ College London, is focused on lupus, one of the most challenging autoimmune diseases to diagnose, to manage and to ... A retrospective observational study of prescribed,
  47. https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/feed/

    https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/feed/
    19 Feb 2024: 10.1093/rheumatology/kead685"study/a, led by Cambridge University and Kings’ College London, is focused on lupus, one of the most challenging autoimmune diseases to diagnose, to manage and to ... A retrospective observational study of prescribed,
  48. https://www.phpc.cam.ac.uk/pcu/category/news/research/feed/

    https://www.phpc.cam.ac.uk/pcu/category/news/research/feed/
    19 Feb 2024: 10.1093/rheumatology/kead685"study/a, led by Cambridge University and Kings’ College London, is focused on lupus, one of the most challenging autoimmune diseases to diagnose, to manage and to ... A retrospective observational study of prescribed,
  49. Relationships with clinicians and adverse medical experiences affect…

    https://www.phpc.cam.ac.uk/pcu/relationships-with-clinicians-and-adverse-medical-experiences-affect-medication-adherence-amongst-lupus-patients/
    23 Feb 2024: female, 20s). This study has shown how important it is to really listen to our lupus patients, to get to know them, to be quickly there for them when they are ... This research was funded by LUPUS UK. Read the study: M Sloan, E Lever, C Gordon, R Harwood,
  50. How lupus patients would like to be treated: study identifies…

    https://www.phpc.cam.ac.uk/pcu/how-lupus-patients-would-like-to-be-treated-study-identifies-physician-behaviours-that-help-build-trust-and-medical-security/
    23 Feb 2024: These arise from traumatic diagnostic journeys and negative medical interactions, according to an in-depth study of patients’ experiences led by the University of Cambridge and Lupus UK. ... which were previously published here: Medically explained
  51. How COVID-19-related healthcare changes affected patients with…

    https://www.phpc.cam.ac.uk/pcu/the-system-abandoned-its-existing-patients-to-make-room-for-new-ones-due-to-covid-19-how-covid-19-related-healthcare-changes-affected-patients-with-systemic-autoimmune-rheumatic-diseases-includi/
    This research was part of the wider LISTEN (Listening: Involving SLE patients To Empower and Negotiate recognition) study funded by LUPUS UK. ... 19 pandemic on the medical care and healthcare-behaviour of patients with lupus and other systemic

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