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https://www.phpc.cam.ac.uk/pcu/tag/virtual-ethnography/feed/
https://www.phpc.cam.ac.uk/pcu/tag/virtual-ethnography/feed/19 Feb 2024: The paper encapsulates the shared experiences of people living with lupus and importantly identifies issues faced by many and provides recommendations for improved patient care and wellbeing. ... We’re pleased to see the value of online patient -
https://www.phpc.cam.ac.uk/pcu/tag/sle/feed/
https://www.phpc.cam.ac.uk/pcu/tag/sle/feed/19 Feb 2024: The paper encapsulates the shared experiences of people living with lupus and importantly identifies issues faced by many and provides recommendations for improved patient care and wellbeing. ... We’re pleased to see the value of online patient -
https://www.phpc.cam.ac.uk/pcu/tag/online-forum/feed/
https://www.phpc.cam.ac.uk/pcu/tag/online-forum/feed/19 Feb 2024: The paper encapsulates the shared experiences of people living with lupus and importantly identifies issues faced by many and provides recommendations for improved patient care and wellbeing. ... We’re pleased to see the value of online patient -
https://www.phpc.cam.ac.uk/pcu/tag/rheumatology/feed/
https://www.phpc.cam.ac.uk/pcu/tag/rheumatology/feed/19 Feb 2024: A patient with lupus explained:‘I would never try and report it or ask them for help again…they just ignored me… you stop asking…it makes me feel worried for ... on the telephone.’ (Patient with lupus)/p pClinicians also discussed concerns -
Liz Hook
https://www.homerton.cam.ac.uk/people/liz-hookPMID: 23172560. Auto-immune cholangiopathy in a juvenile patient with systemic lupus erythematosus. ... Hyperkeratotic papules in a child with Down syndrome. Diagnosis: acquired reactive perforating collagenosis in Down syndrome. -
PCU in the media - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/pcu-in-the-media/23 Feb 2024: Patient experience: The LISTEN study explores the experiences of patients with lupus and related conditions, led by Melanie Sloan in the Behavioural Science Group. ... Lupus researchers Coco Barrerre, expert patient and Dr Chris Wincup, rheumatologist, -
‘But you don’t look sick’: A qualitative analysis of the LUPUS UK…
https://www.phpc.cam.ac.uk/pcu/but-you-dont-look-sick-a-qualitative-analysis-of-the-lupus-uk-forum/23 Feb 2024: The paper encapsulates the shared experiences of people living with lupus and importantly identifies issues faced by many and provides recommendations for improved patient care and wellbeing. ... We’re pleased to see the value of online patient -
https://www.phpc.cam.ac.uk/pcu/tag/melanie-sloan/feed/
https://www.phpc.cam.ac.uk/pcu/tag/melanie-sloan/feed/19 Feb 2024: A patient with lupus explained:‘I would never try and report it or ask them for help again…they just ignored me… you stop asking…it makes me feel worried for ... on the telephone.’ (Patient with lupus)/p pClinicians also discussed concerns -
https://www.phpc.cam.ac.uk/pcu/tag/lupus-uk/feed/
https://www.phpc.cam.ac.uk/pcu/tag/lupus-uk/feed/19 Feb 2024: The paper encapsulates the shared experiences of people living with lupus and importantly identifies issues faced by many and provides recommendations for improved patient care and wellbeing. ... We’re pleased to see the value of online patient -
Patient and public involvement (PPI) - Primary Care Unit
https://www.phpc.cam.ac.uk/pcu/work-with-us/ppi/23 Feb 2024: Stinson & Kimberly N. Begley. “Guidance on authorship with and acknowledgement of patient partners in patient-oriented research“. ... March 8, 2021. Lupus patients joined a research team at the University of Cambridge to study the experiences of
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