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21 - 61 of 61 search results for `lupus patient`

  1. Fully-matching results

  2. https://www.phpc.cam.ac.uk/pcu/tag/telemedicine/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/telemedicine/feed/
    19 Feb 2024: p“emWaiting for a call back after 4 voicemails…feel sad and scared knowing that when I really need medical help I have no-one/em,” said one young lupus ... discussed by this female lupus patient:/p p“emI am very glad that telemedicine has become

  3. https://www.phpc.cam.ac.uk/pcu/tag/online-forum/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/online-forum/feed/
    19 Feb 2024: The paper encapsulates the shared experiences of people living with lupus and importantly identifies issues faced by many and provides recommendations for improved patient care and wellbeing. ... We’re pleased to see the value of online patient

  4. https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/feed/

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/feed/
    19 Feb 2024: p“emWaiting for a call back after 4 voicemails…feel sad and scared knowing that when I really need medical help I have no-one/em,” said one young lupus ... discussed by this female lupus patient:/p p“emI am very glad that telemedicine has become

  5. https://www.phpc.cam.ac.uk/pcu/tag/miranda-van-emmenis/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/miranda-van-emmenis/feed/
    19 Feb 2024: wolf is the pack: how a study of lupus patient experiences involved patients https://www.phpc.cam.ac.uk/pcu/lupus-patient-experiences/ ll448 Mon, 08 Mar 2021 15:32:45 ... Lupus patient experiences Lupus patients joined a research team at the University

  6. https://www.phpc.cam.ac.uk/pcu/tag/virtual-ethnography/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/virtual-ethnography/feed/
    19 Feb 2024: The paper encapsulates the shared experiences of people living with lupus and importantly identifies issues faced by many and provides recommendations for improved patient care and wellbeing. ... We’re pleased to see the value of online patient

  7. Group Blogs Archives - Page 16 of 51 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/16/
    24 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body,

  8. PCU Updates Archives - Page 18 of 54 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/18/
    24 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body,

  9. https://www.phpc.cam.ac.uk/pcu/tag/ppi/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/ppi/feed/
    19 Feb 2024: problems among sexual minority adults, using data from the nationally representative English General Practice Patient Survey. ... In particular, PPI helped make the research more acceptable and accessible to the target patient group.

  10. Research News Archives - Page 15 of 43 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/research/page/15/
    24 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body,

  11. patient and public involvement Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/patient-and-public-involvement/
    23 Feb 2024: In addition to my work supporting students and researchers within the PCU, I am beginning to develop […]. Filed Under:Tagged With:March 8, 2021. Lupus patient experiences Lupus patients joined a ... research team at the University of Cambridge to study

  12. Behavioural Science Group Archives - Page 2 of 6 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/page/2/
    23 Feb 2024: Primary Care Unit. Behavioural Science Group. March 8, 2021. Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus ... Patients with Lupus and related diseases […].

  13. Patient and public involvement (PPI) - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/work-with-us/ppi/
    23 Feb 2024: Primary Care Unit. Patient and public involvement (PPI). Patient and Public Involvement Page Contents: Intro / 1. ... Introduction. This page is a resource page on Patient and Public Involvement (PPI).

  14. https://www.phpc.cam.ac.uk/pcu/tag/remote-consulting/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/remote-consulting/feed/
    19 Feb 2024: p“emWaiting for a call back after 4 voicemails…feel sad and scared knowing that when I really need medical help I have no-one/em,” said one young lupus ... discussed by this female lupus patient:/p p“emI am very glad that telemedicine has become

  15. https://www.phpc.cam.ac.uk/pcu/tag/covid-19/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/covid-19/feed/
    19 Feb 2024: p“emWaiting for a call back after 4 voicemails…feel sad and scared knowing that when I really need medical help I have no-one/em,” said one young lupus ... discussed by this female lupus patient:/p p“emI am very glad that telemedicine has become

  16. Liz Hook

    https://www.homerton.cam.ac.uk/people/liz-hook
    Thumbnail for Liz Hook PMID: 23172560. Auto-immune cholangiopathy in a juvenile patient with systemic lupus erythematosus.

  17. https://www.phpc.cam.ac.uk/pcu/tag/patient-and-public-involvement/feed…

    https://www.phpc.cam.ac.uk/pcu/tag/patient-and-public-involvement/feed/
    19 Feb 2024: strength of the wolf is the pack: how a study of lupus patient experiences involved patients https://www.phpc.cam.ac.uk/pcu/lupus-patient-experiences/ ll448 Mon, 08 Mar 2021 ... pcu/?p=23264 Lupus patient experiences Lupus patients joined a research team

  18. https://www.phpc.cam.ac.uk/pcu/tag/gp/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/gp/feed/
    19 Feb 2024: p“emWaiting for a call back after 4 voicemails…feel sad and scared knowing that when I really need medical help I have no-one/em,” said one young lupus ... discussed by this female lupus patient:/p p“emI am very glad that telemedicine has become

  19. https://www.phpc.cam.ac.uk/pcu/tag/autoimmune-disease/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/autoimmune-disease/feed/
    19 Feb 2024: Updates Research News autoimmune disease lupus Melanie Sloan Mental health patient experience https://www.phpc.cam.ac.uk/pcu/?p=29635 More than half of patients with auto-immune conditions experience ... psychiatric symptoms amongst 1,853 patients with

  20. All Primary Care Unit Publications - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/research/all-pcu-publications/
    23 Feb 2024: Patient experience of follow-up after surgery for kidney cancer: a focus group study. ... Implementing patient-centred outcome measures in palliative care clinical practice for adults (IMPCOM): Protocol for an update systematic review of facilitators and

  21. ‘But you don’t look sick’: A qualitative analysis of the LUPUS UK…

    https://www.phpc.cam.ac.uk/pcu/but-you-dont-look-sick-a-qualitative-analysis-of-the-lupus-uk-forum/
    23 Feb 2024: The paper encapsulates the shared experiences of people living with lupus and importantly identifies issues faced by many and provides recommendations for improved patient care and wellbeing. ... We’re pleased to see the value of online patient

  22. https://www.phpc.cam.ac.uk/pcu/tag/patient-experience/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/patient-experience/feed/
    19 Feb 2024: Updates Research News autoimmune disease lupus Melanie Sloan Mental health patient experience https://www.phpc.cam.ac.uk/pcu/?p=29635 More than half of patients with auto-immune conditions experience ... guestAccessKey=090b9218-6d9f-4919-88e7-dfaec1b1d0d6

  23. https://www.phpc.cam.ac.uk/pcu/tag/health-services/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/health-services/feed/
    19 Feb 2024: A patient with lupus explained:‘I would never try and report it or ask them for help again…they just ignored me… you stop asking…it makes me feel worried for ... on the telephone.’ (Patient with lupus)/p pClinicians also discussed concerns

  24. https://www.phpc.cam.ac.uk/pcu/tag/healthcare-inequalities/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/healthcare-inequalities/feed/
    19 Feb 2024: A patient with lupus explained:‘I would never try and report it or ask them for help again…they just ignored me… you stop asking…it makes me feel worried for ... on the telephone.’ (Patient with lupus)/p pClinicians also discussed concerns

  25. CRMH - Data Management - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/research/research-groups/crmh/research/crmh-data-mangement/
    23 Feb 2024: To investigate key factors in effects of the disease and patient-physician interactions pre and post diagnosis on patient behaviour, mental health/ wellbeing and disease acceptance. ... To compare lupus and related disease patients’ wellbeing, mental

  26. Publications - Behavioural Science Group - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/research/research-groups/bsg/publications/
    23 Feb 2024: Medication decision-making and adherence in lupus: Patient-physician discordance and the impact of previous 'Adverse Medical Experiences'. ... Is it me? The impact of patient-physician interactions on lupus patients' psychological well-being, cognition

  27. https://www.phpc.cam.ac.uk/pcu/category/featured/feed/

    https://www.phpc.cam.ac.uk/pcu/category/featured/feed/
    19 Feb 2024: The results showed many areas where patient reports were under-valued./p pThe doctors were asked to rank 13 types of evidence used to diagnose neuropsychiatric lupus, a type of lupus ... This included blood tests, observations by family or friends, and

  28. https://www.phpc.cam.ac.uk/pcu/tag/mental-health/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/mental-health/feed/
    19 Feb 2024: Updates Research News autoimmune disease lupus Melanie Sloan Mental health patient experience https://www.phpc.cam.ac.uk/pcu/?p=29635 More than half of patients with auto-immune conditions experience ... psychiatric symptoms amongst 1,853 patients with

  29. https://www.phpc.cam.ac.uk/pcu/category/group-blogs/feed/

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/feed/
    19 Feb 2024: 76 to £229.82, with a median of £43.17 per patient, higher than was previously thought. ... For example, it might be possible to reduce the number of vials of anti-emetics issued if nausea and vomiting is not anticipated for the individual patient.

  30. https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/feed/

    https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/feed/
    19 Feb 2024: The results showed many areas where patient reports were under-valued./p pThe doctors were asked to rank 13 types of evidence used to diagnose neuropsychiatric lupus, a type of lupus ... This included blood tests, observations by family or friends, and

  31. Research reveals pandemic's impact on healthcare for people with…

    https://www.phpc.cam.ac.uk/pcu/research-reveals-the-pandemics-impact-on-healthcare-for-people-with-chronic-disease/
    23 Feb 2024: A patient with lupus explained: ‘I would never try and report it or ask them for help again…they just ignored me… you stop asking…it makes me feel worried for ... on the telephone.’ (Patient with lupus).

  32. https://www.phpc.cam.ac.uk/pcu/category/news/research/feed/

    https://www.phpc.cam.ac.uk/pcu/category/news/research/feed/
    19 Feb 2024: The results showed many areas where patient reports were under-valued./p pThe doctors were asked to rank 13 types of evidence used to diagnose neuropsychiatric lupus, a type of lupus ... This included blood tests, observations by family or friends, and

  33. “Perfect for some but disastrous for others”: Patients and clinicians …

    https://www.phpc.cam.ac.uk/pcu/perfect-for-some-but-disastrous-for-others-patients-and-clinicians-express-concerns-over-phone-and-video-consultations/
    23 Feb 2024: Waiting for a call back after 4 voicemails…feel sad and scared knowing that when I really need medical help I have no-one,” said one young lupus patient. ... discussed by this female lupus patient:.

  34. Doctors rank patients’ own assessment of their illness as least…

    https://www.phpc.cam.ac.uk/pcu/doctors-rank-patients-own-assessment-of-their-illness-as-least-important-in-diagnosis/
    23 Feb 2024: The results showed many areas where patient reports were under-valued. The doctors were asked to rank 13 types of evidence used to diagnose neuropsychiatric lupus, a type of lupus that ... Neuropsychiatric lupus explained. ‘Objective’ doesn’t

  35. Relationships with clinicians and adverse medical experiences affect…

    https://www.phpc.cam.ac.uk/pcu/relationships-with-clinicians-and-adverse-medical-experiences-affect-medication-adherence-amongst-lupus-patients/
    23 Feb 2024: Professor David D’Cruz, Consultant Rheumatologist, Louise Coote Lupus Unit at St Thomas’ Hospital. ... making and adherence in lupus: Patient-physician discordance and the impact of previous ‘Adverse Medical Experiences’ 13 July 2021 in

  36. 'Inconsistent' shielding guidance increases fears for…

    https://www.phpc.cam.ac.uk/pcu/inconsistent-shielding-guidance-increases-fears-for-vulnerable-lupus-patients-during-the-pandemic/
    23 Feb 2024: Site Search. ‘Inconsistent’ shielding guidance increases fears for vulnerable lupus patients during the pandemic. ... Lupus researchers Coco Barrerre, expert patient and Dr Chris Wincup, rheumatologist, explain to on BBC Radio Cambridgeshire on 4

  37. News - Page 20 of 89 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/news-about-research-and-activities-at-the-primary-care-unit-research-news-medical-education-news-applied-clinical-research-news-primary-care-research-news/page/20/
    Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body,

  38. How COVID-19-related healthcare changes affected patients with…

    https://www.phpc.cam.ac.uk/pcu/the-system-abandoned-its-existing-patients-to-make-room-for-new-ones-due-to-covid-19-how-covid-19-related-healthcare-changes-affected-patients-with-systemic-autoimmune-rheumatic-diseases-includi/
    Site Search. How COVID-19-related healthcare changes affected patients with systemic autoimmune rheumatic diseases, including lupus. ... Patient, 40s). At the start of the pandemic we were very concerned that SARD (including lupus) patients would be at

  39. How lupus patients would like to be treated: study identifies…

    https://www.phpc.cam.ac.uk/pcu/how-lupus-patients-would-like-to-be-treated-study-identifies-physician-behaviours-that-help-build-trust-and-medical-security/
    23 Feb 2024: Site Search. How lupus patients would like to be treated: study identifies physician behaviours that help build trust and medical security. ... The impact of patient–physician interactions on lupus patients’ psychological well-being, cognition and

  40. HE@Cam Seminar: Tray Brown - Building a Discrete Event Simulation to…

    https://www.phpc.cam.ac.uk/pcu/event/hecam-seminar-tray-brown-building-a-discrete-event-simulation-to-determine-the-cost-effectiveness-of-treatments-for-systemic-lupus-erythematosus-tray-brown-department-of-public-health-and-prima/
    In this Seminar, Tray will share his experience as a model developer, using examples from his model on Systemic Lupus Erythematosus. ... These make cohort models unsuited to accurately reflect the experiences of patients with systemic lupus erythematosus

  41. Legend

    https://www.mrc-mbu.cam.ac.uk/files/buddy-2021q4-20211001-dist_0.xlsx
    4 Oct 2021: Patient with mitochondrial phenotype. OXPHOS/RC; Morphology; Cristae; Mitophagy; Larger; Fewer. Mitochondrial disease. ... Patient with mitochondrial phenotype; Human cell line with mitochondrial phenotype. OXPHOS/RC (V).

  42. Synthetic Biology in Australia

    https://haseloff.plantsci.cam.ac.uk/resources/SynBio_reports/ACOLA_HS3_SynBiology_2018.pdf
    14 Aug 2023: i. H O R I Z O NS C A N N I N G. IN AUSTRALIA BIOLOGY. SYNTHETIC. AN OUTLOOK TO 2030. ii. Australian Council of Learned Academies (ACOLA). ISBN 978-0-6483303-0-1 (print) ISBN 978-0-6483303-1-8 (digital). This work is copyright. All material

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