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  2. The strength of the wolf is the pack: how a study of lupus patient

    https://www.phpc.cam.ac.uk/pcu/lupus-patient-experiences/
    23 Feb 2024: Site Search. The strength of the wolf is the pack: how a study of lupus patient experiences involved patients. ... Primary Care Unit. Behavioural Science Group. The strength of the wolf is the pack: how a study of lupus patient experiences involved
  3. Clinicians rank patient views as least important in diagnosis, study…

    https://www.cam.ac.uk/research/news/clinicians-rank-patient-views-as-least-important-in-diagnosis-study-finds
    Thumbnail for Clinicians rank patient views as least important in diagnosis, study finds | University of Cambridge 18 Dec 2023: Search. Search. Clinicians rank patient views as least important in diagnosis, study finds. ... Attribution of neuropsychiatric symptoms and prioritisation of evidence in the diagnosis of neuropsychiatric lupus: mixed methods analysis of patient and
  4. PPI Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/ppi/
    23 Feb 2024: In addition to my work supporting students and researchers within the PCU, I am beginning to develop […]. Filed Under:Tagged With:March 8, 2021. Lupus patient experiences Lupus patients joined a ... research team at the University of Cambridge to study
  5. lupus Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/lupus/
    23 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Patients with Lupus and related diseases […]. Filed Under:Tagged With:December 14,
  6. public Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/public/
    23 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body,
  7. https://www.phpc.cam.ac.uk/pcu/tag/lupus/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/lupus/feed/
    19 Feb 2024: guestAccessKey=090b9218-6d9f-4919-88e7-dfaec1b1d0d6"Medication decision-making and adherence in lupus: Patient-physician discordance and the impact of previous ‘Adverse Medical Experiences/a/em’ 13 July 2021 in Rheumatology. ... s/photos/take-my-medic
  8. Melanie Sloan Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/melanie-sloan/
    23 Feb 2024: People with incurable systemic auto-immune conditions, including lupus, often need lifelong medications to slow or stop the progression of the disease. ... Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to
  9. https://www.phpc.cam.ac.uk/pcu/tag/public/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/public/feed/
    19 Feb 2024: com/search/lights/"Pexels/a/p The strength of the wolf is the pack: how a study of lupus patient experiences involved patients ... public https://www.phpc.cam.ac.uk/pcu/?p=23264 Lupus patient experiences Lupus patients joined a research team at the
  10. PCU in the media - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/pcu-in-the-media/
    23 Feb 2024: Patient experience: The LISTEN study explores the experiences of patients with lupus and related conditions, led by Melanie Sloan in the Behavioural Science Group. ... Lupus researchers Coco Barrerre, expert patient and Dr Chris Wincup, rheumatologist,
  11. https://www.phpc.cam.ac.uk/pcu/tag/sle/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/sle/feed/
    19 Feb 2024: The paper encapsulates the shared experiences of people living with lupus and importantly identifies issues faced by many and provides recommendations for improved patient care and wellbeing. ... We’re pleased to see the value of online patient
  12. News Archives - Page 19 of 76 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/page/19/
    24 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body,
  13. https://www.phpc.cam.ac.uk/pcu/tag/melanie-sloan/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/melanie-sloan/feed/
    19 Feb 2024: p“emWaiting for a call back after 4 voicemails…feel sad and scared knowing that when I really need medical help I have no-one/em,” said one young lupus ... discussed by this female lupus patient:/p p“emI am very glad that telemedicine has become
  14. https://www.phpc.cam.ac.uk/pcu/search/lupus/feed/rss2/

    https://www.phpc.cam.ac.uk/pcu/search/lupus/feed/rss2/
    19 Feb 2024: p“emWaiting for a call back after 4 voicemails…feel sad and scared knowing that when I really need medical help I have no-one/em,” said one young lupus ... discussed by this female lupus patient:/p p“emI am very glad that telemedicine has become
  15. Miranda Van Emmenis Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/miranda-van-emmenis/
    23 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body,
  16. Featured Archives - Page 19 of 45 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/featured/page/19/
    24 Feb 2024: Primary Care Unit. Featured. March 8, 2021. Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related ... diseases. Lupus is a chronic auto-immune condition
  17. Dr Melanie Sloan - Department of Public Health and Primary Care

    https://www.phpc.cam.ac.uk/people/pcu-group/researchers/melanie-sloan/
    23 Feb 2024: Medication decision-making and adherence in lupus: Patient-physician discordance and the impact of previous ‘Adverse Medical Experiences’. ... Is it me? The impact of patient-physician interactions on lupus patients’ psychological well-being,
  18. https://www.phpc.cam.ac.uk/pcu/tag/rheumatology/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/rheumatology/feed/
    19 Feb 2024: p“emWaiting for a call back after 4 voicemails…feel sad and scared knowing that when I really need medical help I have no-one/em,” said one young lupus ... discussed by this female lupus patient:/p p“emI am very glad that telemedicine has become
  19. https://www.phpc.cam.ac.uk/pcu/tag/telephone/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/telephone/feed/
    19 Feb 2024: p“emWaiting for a call back after 4 voicemails…feel sad and scared knowing that when I really need medical help I have no-one/em,” said one young lupus ... discussed by this female lupus patient:/p p“emI am very glad that telemedicine has become
  20. https://www.phpc.cam.ac.uk/pcu/tag/lupus-uk/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/lupus-uk/feed/
    19 Feb 2024: The paper encapsulates the shared experiences of people living with lupus and importantly identifies issues faced by many and provides recommendations for improved patient care and wellbeing. ... We’re pleased to see the value of online patient
  21. https://www.phpc.cam.ac.uk/pcu/tag/telemedicine/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/telemedicine/feed/
    19 Feb 2024: p“emWaiting for a call back after 4 voicemails…feel sad and scared knowing that when I really need medical help I have no-one/em,” said one young lupus ... discussed by this female lupus patient:/p p“emI am very glad that telemedicine has become
  22. Group Blogs Archives - Page 16 of 51 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/16/
    24 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body,
  23. PCU Updates Archives - Page 18 of 54 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/18/
    24 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body,
  24. https://www.phpc.cam.ac.uk/pcu/tag/online-forum/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/online-forum/feed/
    19 Feb 2024: The paper encapsulates the shared experiences of people living with lupus and importantly identifies issues faced by many and provides recommendations for improved patient care and wellbeing. ... We’re pleased to see the value of online patient
  25. https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/feed/

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/feed/
    19 Feb 2024: p“emWaiting for a call back after 4 voicemails…feel sad and scared knowing that when I really need medical help I have no-one/em,” said one young lupus ... discussed by this female lupus patient:/p p“emI am very glad that telemedicine has become
  26. https://www.phpc.cam.ac.uk/pcu/tag/miranda-van-emmenis/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/miranda-van-emmenis/feed/
    19 Feb 2024: wolf is the pack: how a study of lupus patient experiences involved patients https://www.phpc.cam.ac.uk/pcu/lupus-patient-experiences/ ll448 Mon, 08 Mar 2021 15:32:45 ... Lupus patient experiences Lupus patients joined a research team at the University
  27. https://www.phpc.cam.ac.uk/pcu/tag/virtual-ethnography/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/virtual-ethnography/feed/
    19 Feb 2024: The paper encapsulates the shared experiences of people living with lupus and importantly identifies issues faced by many and provides recommendations for improved patient care and wellbeing. ... We’re pleased to see the value of online patient
  28. https://www.phpc.cam.ac.uk/pcu/tag/ppi/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/ppi/feed/
    19 Feb 2024: problems among sexual minority adults, using data from the nationally representative English General Practice Patient Survey. ... In particular, PPI helped make the research more acceptable and accessible to the target patient group.
  29. Research News Archives - Page 15 of 43 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/research/page/15/
    24 Feb 2024: Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus and related diseases. ... Lupus is a chronic auto-immune condition which can damage many parts of the body,
  30. patient and public involvement Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/patient-and-public-involvement/
    23 Feb 2024: In addition to my work supporting students and researchers within the PCU, I am beginning to develop […]. Filed Under:Tagged With:March 8, 2021. Lupus patient experiences Lupus patients joined a ... research team at the University of Cambridge to study
  31. Behavioural Science Group Archives - Page 2 of 6 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/page/2/
    23 Feb 2024: Primary Care Unit. Behavioural Science Group. March 8, 2021. Lupus patient experiences Lupus patients joined a research team at the University of Cambridge to study the experiences of patients with lupus ... Patients with Lupus and related diseases […].
  32. Patient and public involvement (PPI) - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/work-with-us/ppi/
    23 Feb 2024: Primary Care Unit. Patient and public involvement (PPI). Patient and Public Involvement Page Contents: Intro / 1. ... Introduction. This page is a resource page on Patient and Public Involvement (PPI).
  33. https://www.phpc.cam.ac.uk/pcu/tag/remote-consulting/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/remote-consulting/feed/
    19 Feb 2024: p“emWaiting for a call back after 4 voicemails…feel sad and scared knowing that when I really need medical help I have no-one/em,” said one young lupus ... discussed by this female lupus patient:/p p“emI am very glad that telemedicine has become
  34. https://www.phpc.cam.ac.uk/pcu/tag/covid-19/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/covid-19/feed/
    19 Feb 2024: p“emWaiting for a call back after 4 voicemails…feel sad and scared knowing that when I really need medical help I have no-one/em,” said one young lupus ... discussed by this female lupus patient:/p p“emI am very glad that telemedicine has become
  35. https://www.phpc.cam.ac.uk/pcu/tag/patient-and-public-involvement/feed…

    https://www.phpc.cam.ac.uk/pcu/tag/patient-and-public-involvement/feed/
    19 Feb 2024: strength of the wolf is the pack: how a study of lupus patient experiences involved patients https://www.phpc.cam.ac.uk/pcu/lupus-patient-experiences/ ll448 Mon, 08 Mar 2021 ... pcu/?p=23264 Lupus patient experiences Lupus patients joined a research team
  36. https://www.phpc.cam.ac.uk/pcu/tag/gp/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/gp/feed/
    19 Feb 2024: p“emWaiting for a call back after 4 voicemails…feel sad and scared knowing that when I really need medical help I have no-one/em,” said one young lupus ... discussed by this female lupus patient:/p p“emI am very glad that telemedicine has become
  37. https://www.phpc.cam.ac.uk/pcu/tag/autoimmune-disease/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/autoimmune-disease/feed/
    19 Feb 2024: Updates Research News autoimmune disease lupus Melanie Sloan Mental health patient experience https://www.phpc.cam.ac.uk/pcu/?p=29635 More than half of patients with auto-immune conditions experience ... psychiatric symptoms amongst 1,853 patients with
  38. All Primary Care Unit Publications - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/research/all-pcu-publications/
    23 Feb 2024: Patient experience of follow-up after surgery for kidney cancer: a focus group study. ... Implementing patient-centred outcome measures in palliative care clinical practice for adults (IMPCOM): Protocol for an update systematic review of facilitators and
  39. ‘But you don’t look sick’: A qualitative analysis of the LUPUS UK…

    https://www.phpc.cam.ac.uk/pcu/but-you-dont-look-sick-a-qualitative-analysis-of-the-lupus-uk-forum/
    23 Feb 2024: The paper encapsulates the shared experiences of people living with lupus and importantly identifies issues faced by many and provides recommendations for improved patient care and wellbeing. ... We’re pleased to see the value of online patient
  40. https://www.phpc.cam.ac.uk/pcu/tag/patient-experience/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/patient-experience/feed/
    19 Feb 2024: Updates Research News autoimmune disease lupus Melanie Sloan Mental health patient experience https://www.phpc.cam.ac.uk/pcu/?p=29635 More than half of patients with auto-immune conditions experience ... guestAccessKey=090b9218-6d9f-4919-88e7-dfaec1b1d0d6
  41. https://www.phpc.cam.ac.uk/pcu/tag/health-services/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/health-services/feed/
    19 Feb 2024: A patient with lupus explained:‘I would never try and report it or ask them for help again…they just ignored me… you stop asking…it makes me feel worried for ... on the telephone.’ (Patient with lupus)/p pClinicians also discussed concerns
  42. https://www.phpc.cam.ac.uk/pcu/tag/healthcare-inequalities/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/healthcare-inequalities/feed/
    19 Feb 2024: A patient with lupus explained:‘I would never try and report it or ask them for help again…they just ignored me… you stop asking…it makes me feel worried for ... on the telephone.’ (Patient with lupus)/p pClinicians also discussed concerns
  43. Publications - Behavioural Science Group - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/research/research-groups/bsg/publications/
    23 Feb 2024: Medication decision-making and adherence in lupus: Patient-physician discordance and the impact of previous 'Adverse Medical Experiences'. ... Is it me? The impact of patient-physician interactions on lupus patients' psychological well-being, cognition
  44. CRMH - Data Management - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/research/research-groups/crmh/research/crmh-data-mangement/
    23 Feb 2024: To investigate key factors in effects of the disease and patient-physician interactions pre and post diagnosis on patient behaviour, mental health/ wellbeing and disease acceptance. ... To compare lupus and related disease patients’ wellbeing, mental
  45. https://www.phpc.cam.ac.uk/pcu/category/featured/feed/

    https://www.phpc.cam.ac.uk/pcu/category/featured/feed/
    19 Feb 2024: The results showed many areas where patient reports were under-valued./p pThe doctors were asked to rank 13 types of evidence used to diagnose neuropsychiatric lupus, a type of lupus ... This included blood tests, observations by family or friends, and
  46. https://www.phpc.cam.ac.uk/pcu/tag/mental-health/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/mental-health/feed/
    19 Feb 2024: Updates Research News autoimmune disease lupus Melanie Sloan Mental health patient experience https://www.phpc.cam.ac.uk/pcu/?p=29635 More than half of patients with auto-immune conditions experience ... psychiatric symptoms amongst 1,853 patients with
  47. Research reveals pandemic's impact on healthcare for people with…

    https://www.phpc.cam.ac.uk/pcu/research-reveals-the-pandemics-impact-on-healthcare-for-people-with-chronic-disease/
    23 Feb 2024: A patient with lupus explained: ‘I would never try and report it or ask them for help again…they just ignored me… you stop asking…it makes me feel worried for ... on the telephone.’ (Patient with lupus).
  48. https://www.phpc.cam.ac.uk/pcu/category/group-blogs/feed/

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/feed/
    19 Feb 2024: 76 to £229.82, with a median of £43.17 per patient, higher than was previously thought. ... For example, it might be possible to reduce the number of vials of anti-emetics issued if nausea and vomiting is not anticipated for the individual patient.
  49. https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/feed/

    https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/feed/
    19 Feb 2024: The results showed many areas where patient reports were under-valued./p pThe doctors were asked to rank 13 types of evidence used to diagnose neuropsychiatric lupus, a type of lupus ... This included blood tests, observations by family or friends, and
  50. https://www.phpc.cam.ac.uk/pcu/category/news/research/feed/

    https://www.phpc.cam.ac.uk/pcu/category/news/research/feed/
    19 Feb 2024: The results showed many areas where patient reports were under-valued./p pThe doctors were asked to rank 13 types of evidence used to diagnose neuropsychiatric lupus, a type of lupus ... This included blood tests, observations by family or friends, and
  51. “Perfect for some but disastrous for others”: Patients and clinicians …

    https://www.phpc.cam.ac.uk/pcu/perfect-for-some-but-disastrous-for-others-patients-and-clinicians-express-concerns-over-phone-and-video-consultations/
    23 Feb 2024: Waiting for a call back after 4 voicemails…feel sad and scared knowing that when I really need medical help I have no-one,” said one young lupus patient. ... discussed by this female lupus patient:.

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