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1 - 50 of 78 search results for `lupus LUPUS UK` |u:www.phpc.cam.ac.uk

  1. Fully-matching results

  2. LUPUS UK Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/lupus-uk/
    23 Feb 2024: These arise from traumatic diagnostic journeys and negative medical interactions, according to an in-depth study of patients’ experiences led by the University of Cambridge and Lupus UK. ... People living with lupus report frequent lengthy time delays

  3. Dr Melanie Sloan - Department of Public Health and Primary Care

    https://www.phpc.cam.ac.uk/people/pcu-group/researchers/melanie-sloan/
    23 Feb 2024: She is currently funded by LUPUS UK and The lupus trust on several research studies. ... COVID-19 and shielding: experiences of UK patients with lupus and related diseases.

  4. lupus Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/lupus/
    23 Feb 2024: Patients with lupus – and related systemic autoimmune rheumatic diseases, (or SARDs) – have experienced the UK’s shielding guidance as inconsistent, and many who felt they should have shielded were not advised ... This in-depth analysis of the

  5. ‘But you don’t look sick’: A qualitative analysis of the LUPUS UK…

    https://www.phpc.cam.ac.uk/pcu/but-you-dont-look-sick-a-qualitative-analysis-of-the-lupus-uk-forum/
    23 Feb 2024: Site Search. ‘But you don’t look sick’: A qualitative analysis of the LUPUS UK forum. ... sick’: a qualitative analysis of the LUPUS UK online forum, published online, Rheumatology International, 27 October 2020.

  6. The strength of the wolf is the pack: how a study of lupus patient…

    https://www.phpc.cam.ac.uk/pcu/lupus-patient-experiences/
    23 Feb 2024: The team used mixed methods including surveys, qualitative interviews with patients and healthcare providers, and ethnographic analyses of LUPUS UK forum posts. ... But you don’t look sick’: a qualitative analysis of the LUPUS UK forum.

  7. Melanie Sloan Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/melanie-sloan/
    23 Feb 2024: People with incurable systemic auto-immune conditions, including lupus, often need lifelong medications to slow or stop the progression of the disease. ... Patients with lupus – and related systemic autoimmune rheumatic diseases, (or SARDs) – have

  8. PCU in the media - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/pcu-in-the-media/
    23 Feb 2024: Updated analysis of UK primary care workforce data reveals inequalities remain as wide as ever. ... The study was reported across print and broadcast media nationally and locally in the UK.

  9. SLE Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/sle/
    23 Feb 2024: But you don’t look sick’: A qualitative analysis of the LUPUS UK forum. ... This in-depth analysis of the LUPUS UK forum, led by Melanie Sloan from the BSG and involving forum members, LUPUS UK, psychologists and leading rheumatologists, found

  10. CRMH - Data Management - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/research/research-groups/crmh/research/crmh-data-mangement/
    23 Feb 2024: To compare lupus and related disease patients’ wellbeing, mental health and perception of medical care with patients with RA, fibromyalgia and healthy friend controls.

  11. https://www.phpc.cam.ac.uk/pcu/tag/online-forum/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/online-forum/feed/
    19 Feb 2024: lupus LUPUS UK Melanie Sloan online forum SLE https://www.phpc.cam.ac.uk/pcu/?p=20546 People living with lupus report frequent lengthy time delays between their first symptoms and ... their lupus diagnosis, in new research from the University of

  12. online forum Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/online-forum/
    23 Feb 2024: But you don’t look sick’: A qualitative analysis of the LUPUS UK forum. ... This in-depth analysis of the LUPUS UK forum, led by Melanie Sloan from the BSG and involving forum members, LUPUS UK, psychologists and leading rheumatologists, found

  13. lupus Archives - Page 2 of 2 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/lupus/page/2/
    23 Feb 2024: These arise from traumatic diagnostic journeys and negative medical interactions, according to an in-depth study of patients’ experiences led by the University of Cambridge and Lupus UK. ... People living with lupus report frequent lengthy time delays

  14. News Archives - Page 23 of 76 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/page/23/
    24 Feb 2024: But you don’t look sick’: A qualitative analysis of the LUPUS UK forum. ... These arise from traumatic diagnostic journeys and negative medical interactions, according to an in-depth study of patients’ experiences led by the University of Cambridge

  15. Melanie Sloan Archives - Page 2 of 2 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/melanie-sloan/page/2/
    23 Feb 2024: These arise from traumatic diagnostic journeys and negative medical interactions, according to an in-depth study of patients’ experiences led by the University of Cambridge and Lupus UK. ... People living with lupus report frequent lengthy time delays

  16. https://www.phpc.cam.ac.uk/pcu/tag/lupus-uk/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/lupus-uk/feed/
    19 Feb 2024: ll448 Mon, 14 Dec 2020 16:24:36 0000 Behavioural Science Group Featured News PCU Updates Research News COVID-19 lupus LUPUS UK Melanie Sloan ... Group Featured News Research News lupus LUPUS UK Melanie Sloan online forum SLE virtual ethnography

  17. News Archives - Page 21 of 76 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/page/21/
    24 Feb 2024: January 26, 2021. Patients with lupus – and related systemic autoimmune rheumatic diseases, (or SARDs) – have experienced the UK’s shielding guidance as inconsistent, and many who felt they should have shielded ... Patients with Lupus and related

  18. https://www.phpc.cam.ac.uk/pcu/tag/sle/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/sle/feed/
    19 Feb 2024: dont-look-sick-a-qualitative-analysis-of-the-lupus-uk-forum/ ll448 Mon, 02 Nov 2020 14:37:03 0000 Behavioural Science Group Featured News Research News lupus LUPUS UK Melanie ... lupus LUPUS UK Melanie Sloan online forum SLE https://www.phpc.cam.ac.uk/pcu

  19. virtual ethnography Archives - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/virtual-ethnography/
    23 Feb 2024: But you don’t look sick’: A qualitative analysis of the LUPUS UK forum. ... This in-depth analysis of the LUPUS UK forum, led by Melanie Sloan from the BSG and involving forum members, LUPUS UK, psychologists and leading rheumatologists, found

  20. Group Blogs Archives - Page 20 of 51 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/20/
    24 Feb 2024: This in-depth analysis of the LUPUS UK forum, led by Melanie Sloan from the BSG and involving forum members, LUPUS UK, psychologists and leading rheumatologists, found ‘Invalidation’ was the key […]. ... These arise from traumatic diagnostic

  21. Featured Archives - Page 22 of 45 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/featured/page/22/
    24 Feb 2024: This in-depth analysis of the LUPUS UK forum, led by Melanie Sloan from the BSG and involving forum members, LUPUS UK, psychologists and leading rheumatologists, found ‘Invalidation’ was the key […]. ... up other forms of cancer, according to new

  22. https://www.phpc.cam.ac.uk/pcu/tag/lupus/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/lupus/feed/
    19 Feb 2024: I spent several months on the LUPUS UK forum and then I invited five of the most expert, objective and compassionate forum members to join the PPI team. ... News COVID-19 lupus LUPUS UK Melanie Sloan https://www.phpc.cam.ac.uk/pcu/?p=21900 During the

  23. News Archives - Page 26 of 76 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/page/26/
    24 Feb 2024: May 19, 2020. Digital interventions are effective in helping patients in primary care take the medicines they have been prescribed, according to the first UK study of whether highly tailored text ... with lupus report frequent lengthy time delays between

  24. COVID-19 Archives - Page 3 of 5 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/tag/covid-19/page/3/
    23 Feb 2024: Patients with Lupus and related diseases […]. Filed Under:Tagged With:January 4, 2021. ... During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a strong sense of being endangered from both the virus

  25. Research News Archives - Page 18 of 43 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/research/page/18/
    24 Feb 2024: But you don’t look sick’: A qualitative analysis of the LUPUS UK forum. ... These arise from traumatic diagnostic journeys and negative medical interactions, according to an in-depth study of patients’ experiences led by the University of Cambridge

  26. Behavioural Science Group Archives - Page 2 of 6 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/page/2/
    23 Feb 2024: This in-depth analysis of the LUPUS UK forum, led by Melanie Sloan from the BSG and involving forum members, LUPUS UK, psychologists and leading rheumatologists, found ‘Invalidation’ was the key […]. ... These arise from traumatic diagnostic

  27. The Listen Study - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/research/research-projects-list/other-projects/the-listen-study/
    23 Feb 2024: Primary Care Unit. The Listen Study. Title:. Listening: Involving SLE (Systemic Lupus Erythematosus) patients to empower and negotiate recognition. ... Collaborative:. Professor Stephen Sutton (University of Cambridge). Funding information. Funding

  28. https://www.phpc.cam.ac.uk/pcu/tag/virtual-ethnography/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/virtual-ethnography/feed/
    19 Feb 2024: US hourly 1 https://wordpress.org/?v=6.4.3 ‘But you don’t look sick’: A qualitative analysis of the LUPUS UK forum ... members, LUPUS UK, psychologists and leading rheumatologists, found ‘Invalidation’ was the key theme, including from society,

  29. Featured Archives - Page 23 of 45 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/featured/page/23/
    24 Feb 2024: How lupus patients would like to be treated: study identifies physician behaviours that help build trust and medical security. ... These arise from traumatic diagnostic journeys and negative medical interactions, according to an in-depth study of

  30. Featured Archives - Page 26 of 45 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/featured/page/26/
    24 Feb 2024: with lupus report frequent lengthy time delays between their first symptoms and their lupus diagnosis, in new research from the University of Cambridge and LUPUS UK. ... At least a quarter of the UK population have more than one long-term disease, and

  31. GP News Archives - Page 4 of 21 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/gp-news/page/4/
    23 Feb 2024: It shows […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and those with related systemic autoimmune diseases – often experience persisting medical insecurity and negative healthcare-behaviours. ... These arise from traumatic

  32. GP News Archives - Page 6 of 21 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/gp-news/page/6/
    24 Feb 2024: May 19, 2020. Digital interventions are effective in helping patients in primary care take the medicines they have been prescribed, according to the first UK study of whether highly tailored text ... with lupus report frequent lengthy time delays between

  33. https://www.phpc.cam.ac.uk/pcu/tag/public/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/public/feed/
    19 Feb 2024: I spent several months on the LUPUS UK forum and then I invited five of the most expert, objective and compassionate forum members to join the PPI team. ... pcu/diagnostic-delays-for-people-with-lupus-described-in-new-study/"Lay summary/a./li li‘But

  34. Group Blogs Archives - Page 23 of 51 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/23/
    24 Feb 2024: With:May 19, 2020. Digital interventions are effective in helping patients in primary care take the medicines they have been prescribed, according to the first UK study of whether highly tailored ... with lupus report frequent lengthy time delays between

  35. PCU Updates Archives - Page 25 of 54 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/25/
    24 Feb 2024: With:May 19, 2020. Digital interventions are effective in helping patients in primary care take the medicines they have been prescribed, according to the first UK study of whether highly tailored ... with lupus report frequent lengthy time delays between

  36. PCU Updates Archives - Page 22 of 54 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/22/
    24 Feb 2024: The new plain-language framework, the For Us (For Unit Safety) framework, was developed through a multi-site ethnographic study and […]. Filed Under:Tagged With:September 21, 2020. Lupus patients – and ... These arise from traumatic diagnostic

  37. Research News Archives - Page 21 of 43 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/research/page/21/
    24 Feb 2024: May 19, 2020. Digital interventions are effective in helping patients in primary care take the medicines they have been prescribed, according to the first UK study of whether highly tailored text ... with lupus report frequent lengthy time delays between

  38. https://www.phpc.cam.ac.uk/pcu/tag/melanie-sloan/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/melanie-sloan/feed/
    19 Feb 2024: I spent several months on the LUPUS UK forum and then I invited five of the most expert, objective and compassionate forum members to join the PPI team. ... pcu/diagnostic-delays-for-people-with-lupus-described-in-new-study/"Lay summary/a./li li‘But

  39. Behavioural Science Group Archives - Page 3 of 6 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/page/3/
    23 Feb 2024: Primary Care Unit. Behavioural Science Group. May 14, 2020. People living with lupus report frequent lengthy time delays between their first symptoms and their lupus diagnosis, in new research from the ... University of Cambridge and LUPUS UK.

  40. https://www.phpc.cam.ac.uk/pcu/search/lupus/feed/rss2/

    https://www.phpc.cam.ac.uk/pcu/search/lupus/feed/rss2/
    19 Feb 2024: Now is the time for the Government to act to give them the support they desperately need.”/p pThe research was funded by The Lupus Trust and LUPUS UK/p ... I spent several months on the LUPUS UK forum and then I invited five of the most expert,

  41. Featured Archives - Page 20 of 45 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/featured/page/20/
    24 Feb 2024: Lockdown and social distancing measures have meant that many people have little or no contact with others, which can […]. Filed Under:Tagged With:January 26, 2021. Patients with lupus – and related ... Patients with Lupus and related diseases […].

  42. Featured Archives - Page 21 of 45 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/featured/page/21/
    24 Feb 2024: How COVID-19-related healthcare changes affected patients with systemic autoimmune rheumatic diseases, including lupus. ... December 14, 2020. During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a

  43. PCU Updates Archives - Page 19 of 54 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/19/
    24 Feb 2024: The figures, drawn from a systematic review of literature on the characteristics of hospice populations in the UK and other countries with similar healthcare models, show that certain groups have […]. Filed ... Patients with Lupus and related diseases [

  44. Group Blogs Archives - Page 18 of 51 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/18/
    24 Feb 2024: January 26, 2021. Patients with lupus – and related systemic autoimmune rheumatic diseases, (or SARDs) – have experienced the UK’s shielding guidance as inconsistent, and many who felt they should have shielded ... Patients with Lupus and related

  45. https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/feed/

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/bsg/feed/
    19 Feb 2024: Now is the time for the Government to act to give them the support they desperately need.”/p pThe research was funded by The Lupus Trust and LUPUS UK/p ... p– Melanie Sloan, lead author, Primary Care Unit, University of Cambridge/p/blockquote p /p

  46. Group Blogs Archives - Page 19 of 51 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/group-blogs/page/19/
    24 Feb 2024: How COVID-19-related healthcare changes affected patients with systemic autoimmune rheumatic diseases, including lupus. ... December 14, 2020. During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a

  47. PCU Updates Archives - Page 20 of 54 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/pcu-updates/page/20/
    24 Feb 2024: During the 2020 pandemic, patients with systemic autoimmune rheumatic diseases (including lupus) expressed a strong sense of being endangered from both the virus and the redeployment of medical resources.

  48. Relationships with clinicians and adverse medical experiences affect…

    https://www.phpc.cam.ac.uk/pcu/relationships-with-clinicians-and-adverse-medical-experiences-affect-medication-adherence-amongst-lupus-patients/
    23 Feb 2024: Professor David D’Cruz, Consultant Rheumatologist, Louise Coote Lupus Unit at St Thomas’ Hospital. ... This research was funded by LUPUS UK. Read the study: M Sloan, E Lever, C Gordon, R Harwood, S Georgopoulou, F Naughton, C Wincup, S Sutton, D

  49. https://www.phpc.cam.ac.uk/pcu/tag/miranda-van-emmenis/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/miranda-van-emmenis/feed/
    19 Feb 2024: I spent several months on the LUPUS UK forum and then I invited five of the most expert, objective and compassionate forum members to join the PPI team. ... pcu/diagnostic-delays-for-people-with-lupus-described-in-new-study/"Lay summary/a./li li‘But

  50. https://www.phpc.cam.ac.uk/pcu/tag/ppi/feed/

    https://www.phpc.cam.ac.uk/pcu/tag/ppi/feed/
    19 Feb 2024: communities. Helpline: 0345 3 30 30 30/p pa href="https://www.stonewall.org.uk/help-and-advice"Stonewall/a.Information and support for LGBT communities and their allies. ... of PPI representatives recruited from the four CanTest UK University locations,

  51. Research News Archives - Page 16 of 43 - Primary Care Unit

    https://www.phpc.cam.ac.uk/pcu/category/news/research/page/16/
    24 Feb 2024: The figures, drawn from a systematic review of literature on the characteristics of hospice populations in the UK and other countries with similar healthcare models, show that certain groups have […]. Filed ... Patients with Lupus and related diseases [

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